Wife in remission with Humira, but fistula may have developed.

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BillyLitt
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 5/1/2008 8:39 AM (GMT -7)   
My wife had a resection done in February of 2007 and was placed on Remicade/6MP.  She developed a reaction to Remicade and was placed on Humira/6MP around the summer of 2007.
 
She has been sypmtom free of Crohn's since the surgery, but she thinks she is noticing a vaginal fistula.  She's had them before, so she knows the symptoms of one.
 
She contacted her doctor this morning.
 
My questions concerns Crohn's/Humira/Fistula.  Because of an active fistula, does this mean her Crohn's is active or is Crohn's vs. Fistual independent of each other?
 
She doesn't have any symptom's of her Crohn's being active, just this possible fistula forming.  Is this just a tip of a bigger problem?
 
She had other fistula's close up with Flagyl and Cipro.  Not sure what these new doctors are going to do though.  I'm just concerned about her Crohn's acting up again.

althingspossible
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/1/2008 12:22 PM (GMT -7)   
BillyLitt.... Is your wife still on Humira??? I just started Humira and I'm kind of worried about the side effects of the medication. Somebody please respond to me if anyone has been on Humira for a while.. I also had a reaction to Remicade and was taking off of it......

BillyLitt
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 5/1/2008 12:35 PM (GMT -7)   
Yes, she is still on it.
 
She had really bad joint pain while on Remicade, so they switched her to Humira.  No problems since she's been on it, probably 10 months or so.  Well, until this fistula anyway.
 
I've been reading that they might increase Humira to help close this fistula (she's getting an MRI tomorrow to make sure it is one).
 
Anyone have experience with Humira closing fistulas?

Ladybugs
Regular Member


Date Joined Jan 2006
Total Posts : 158
   Posted 5/1/2008 12:58 PM (GMT -7)   
I have a fistula and I've been on Humira for 10 months.  So far, no luck with fistula closure.  I don't think I'm really responding to Humira much at all.  My GI wants to talk about switching to something else.  He said if i were going to achieve fistula closure on Humira I would have by now. 
 
Best of luck to your wife.

BillyLitt
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 5/2/2008 5:10 AM (GMT -7)   
Hi Ladybugs.
 
Did they increase your dose of Humira for the fistula or put you on Humira to help close the fistula?
 
My wife had surgery to remove a blockage.  After the surgery, her crohn's was all cleaned, not a trace of it.  I guess you can say she is in surgical remission.
 
So, being on Remicade or Humira never put her in remission.  They are using Remicade and now Humira as a maintenance drug to prevent future flare ups, that's their hope anyway.
 
Does having a fistula mean her crohn's is active or does it just mean she has a fistula?  She has no other symptoms of active crohn's.  I know crohnies have an increased risk of getting a fistula, but does active crohn's cause fistulas or is a fistula something that can happen anytime?
 
 

Ava Marie
New Member


Date Joined Apr 2008
Total Posts : 9
   Posted 5/6/2008 6:11 PM (GMT -7)   

*BUMP*

I'm curious about this one.  I'm about to start Humira and I'd be curious to know the answer to the fistula question he's asking.  Does anyone know?

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