Hope4now -- you don't mention if you've tried the immune suppressors like azathioprene (Imuran), 6-MP or Methotrexate (MTX). There is also Cimzia and Tysabri which have recently been approved for Crohn's. Both come with warnings, but so do Remicade and Humira.
Don't get down on yourself for feeling overwhelmed though! This disease takes all it can. Just stay strong and know you are not alone!
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl