Anna, I don't think many of us "understand" this darned disease very well. It is such an individualized disease that what bothers one might be therapeutic for another, what works for one might be pure poison for another.
Crohn's favorite area to strike is at the end of the small intestine and beginning of the colon (the cecum). But there are those of us who have had it begin elsewhere. Crohn's USUALLY move UP the digestive tract rather than down. But there are those of us wherein it has struck higher up the small intestine and then moved down.
the ONLY consistency to Crohn's is that it is chronic inflammation of the digestive tract. And that, unlike ulcerative colitis, Crohn's likes to dig and bury deeper into the lining of the digestive tract, and sometimes even thru it, usually but not limited to the intestines. And Crohn's often likes to throw in extra intestinal symptoms like joint pain, etc.
The first thing I would do if I were you would be to get on an immune modulator such as Imuran or 6MP along w/that Pentasa w/the goal of getting off and hopefully being able to stay off of prednisone - and even off Entocort - ASAP and for as long a period as possible.
We need to grasp and accept that even when we are symptom free this DD could still be perking away doing its damage and to keep taking our meds despite how good we might feel even for prolonged periods of time.
I am a prime example of preaching to the choir. I enjoyed a 20 year true remission after a resection. And when the Crohn's returned I was FAITHFUL about
getting on and STAYING on my meds. For the first 8 years - the next 2 I got a little lax. "They" were saying Pentasa really does nothing and wasn't effective. I don't think any of us enjoy popping 16 capsules a day plus our other meds. I got sloppy and despite my common sense telling me to keep taking those Pentasa ..... sometimes I'd take only 8, then more and more I started taking less or none at all. When minor symptoms would start up I'd go back on the Pentasa faithfully - for a month or two.
I'm now facing a resection in the near future. I've let "it" get past inflammation and now have some pretty severe narrowing due to scarring.
Don't let minor or no symptoms lull you into a false sense of security. TAKE YOUR MEDS FAITHFULLY! There is no cure for Crohn's disease, only treatment. Be faithful w/your treatment no matter how good you feel. THAT is the HARD part to wrap your mind around and accept. There is NO CURE except continued treatment and medication for the rest of your life.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.