Just diagnosed...Horrendous Cough!

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LaLa in SF
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/2/2008 10:56 PM (GMT -7)   

I was diagnosed with Crohn’s this week. I am extremely overwhelmed and about to go insane!

Symptoms that I am experiencing include diarrhea, cramping, abdominal pain, acid reflux, etc. What is bothering me the most is a horrendous cough. I have been coughing non-stop for three weeks and I am about to go insane. My coughing fits are so strong that I typically vomit, pee my self or poop myself. I cannot sleep or eat. From what I understand my flare up is severe (my first one). My doctor has explained that in my case the inflammation is in my esophagus, mouth (sores in my mouth), stomach, and my entire colon. I am on Pentasa and Nexium. My doctor wants to wait to see if the Pentasa works for me, he doesnt seem too concerned about my coughing. Has anyone experienced this? I would appreicate any advice?

chattycat
Regular Member


Date Joined Aug 2004
Total Posts : 334
   Posted 5/3/2008 1:16 AM (GMT -7)   
Hello and Welcome!!
So, did you just start the pantasa and nexium this week then? I ask because I was having a problem with a really bad cough last year, could not even recline slightly withoout going into a huge coughing fit. Treid almost everything I could think of at the drug store (cough candies, cough syrup, neo-citron, etc....) nothing was working. Family doctor even gave me prescription cough syrup and a puffer. It wasn't until an appointment with my GI that he mentioned that it could be some post nasal drip caused by GERD that was irritating my throat. He prescribed Pariet (which is like Nexium, I think), and within a week the cough was gone!!! This was after having the cough for almost three whole months! I was close to going insane as well just from the lack of sleep! Hopefully, your cough is stemming from the same thing, and the nexium will give you relief from it. I am also wondering if maybe a puffer with steroids wouldn't help a bit if the inflammation is in your mouth and esophagus. Just a thought.
Good luck, let us know how it goes.
Cathy

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/3/2008 2:11 AM (GMT -7)   
It might help, too, to use some bricks to raise the head of your bed, so that your head is higher than your feet.

I had a relative with a severe chronic cough, and that was one of the doctor's suggestions. I don't know if it will work for you, but it's relatively quick and might help.

I'm sorry you're suffering like this. I know how wearing such coughs can be.

I.
Co-Moderator Crohn's Forum.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/3/2008 4:42 AM (GMT -7)   
Hello LaLa! I'm sorry you are going through this! I am glad you are now on medication. I'm praying it will all calm down for you very soon!!

teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 5/3/2008 5:36 AM (GMT -7)   
Hi and Welcome to HealingWell, sorry to hear that you have a bad cough. I also recommened raising you heard high when you sleep. It may help you.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 5/3/2008 6:33 AM (GMT -7)   
Hi La La its good you found us this is a great place to be.... I haven't had crohn's very long either, but here you can get so good advice,or just someone to lessen to you,I know it has helped me I know I'm not alone anymore....so keep posting, or at least keep reading... it doe's help..... WELCOME







Ne Ne

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/3/2008 6:40 AM (GMT -7)   
I have the chronic cough with my crohns like others I recommend sleeping at at least a 45 degree angle or in a recliner. I have a pillow wedge that I use along with about 3 pillows. I found the most relief from codiene cough syrup in addition to this. I would still ask for a pulmonary and cardiac workup.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 5/3/2008 7:17 AM (GMT -7)   
welcome lala, pentasa is a mild drug that is usually better for maintaince than it is for healing (I think) so if you aren't feeling well quickly, pehaps a short course of pred is in order. keep coming here--it saved my life two years ago! yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/3/2008 8:11 AM (GMT -7)   
Pentasa is definately not the strongest of the crohns meds.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


LaLa in SF
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/3/2008 8:34 AM (GMT -7)   

Thanks to all that have replied! Knowing that I do not have to go through this alone makes it a little easier. I guess I am still in that stage of being overwhelmed, not knowing what to expect, and not really knowing much about this disease. My doctor wants me to wait a month to see whether Pentasa is the correct med for me. Does that seem reasonable? How soon should I start feeling relief? Thanks again!


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/3/2008 8:54 AM (GMT -7)   
Alot of it depends on your disease, such as location and how damaged everything is...It took me two years to get any kind of relief, but that is rare... and I had alot of other issues like major orthro injuries

We are going to help you get thru this, it does take time, and I am so glad you found this site so quickly. I didn't get on until more then a year after dx.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 5/3/2008 10:12:01 AM (GMT-6)


yogaprof
Veteran Member


Date Joined Apr 2006
Total Posts : 1665
   Posted 5/3/2008 9:08 AM (GMT -7)   
there are GIs who start mild and go stronger, and GIs who start with the big guns, and of course mixed ideas on which is better. I wanted to remind you (as I try to with anyone new) that there is SO much to learn, accept, and figure out in the first few months. it is terrifying to get the dx of a chronic illness. so be easy with yourself. realize that you will probably have lots of tests, different meds, and ups and downs for awhile. things will become clearer--it just takes time. if your cough is that severe, I wouldn't wait a month, as I doubt your meds will make it go away. maybe make a follow-up appt sooner than a month? take care, yp
48 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

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