Advice needed for crohn's sufferer

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super gran
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Date Joined May 2008
Total Posts : 4
   Posted 5/3/2008 3:02 AM (GMT -7)   
Can anyone please advise? I have had my bowel and rectum removed, but lately am having bad 'wind' like pains. Has anyone else experienced this and if so, can you advise me on what to take or do?
 

FallColors
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Date Joined May 2007
Total Posts : 1220
   Posted 5/3/2008 4:49 AM (GMT -7)   
Hello Super Gran!

Welcome to the Forum! I'm sorry you are having problems. Could you tell us a little more about your condition and any meds you are taking? Don't be shy about giving details. You can read many posts here that are very graphic. And this is the place to share.

Hope you fell better very soon!!

MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 5/3/2008 6:55 AM (GMT -7)   
Hi Super Gran,
Welcome to the crohns forum, I also posted your question on the osomies forum so hopefully you could get more people with your situation and hopefully a good answer. I did assume (which maybe I am wrong) that you do have a osomie. I think fall colors is right on with the questions about your condition and what meds you are on?
Talk with you soon,
Navy
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We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 5/3/2008 9:07 AM (GMT -7)   
Welcome Super Gran, I haven't had your kind of surgery, but have experienced wind pains. It can be extremely painful.
I've tried all kinds of things to get rid of it, but it's tough. Usually end up in some stupid position on the bed, that probably
would be more suitable in the Karma Sutra LOL!

Have you seen your doctor lately?
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


super gran
New Member


Date Joined May 2008
Total Posts : 4
   Posted 5/5/2008 2:00 AM (GMT -7)   
Thank you for my replies; it's comforting to know there are people out there who understand and listen! I had my bowel removed in 2005, through Crohns, then my rectum removed in 2006. So I have an Illeostomy. I'm not on any medication for the Crohns as they said seeing as I'd had it all removed I shouldn't have much trouble, apart from the mouth ulcers, which I permanently have! But, I'm in Spain (for an extended hol) and I spent a week in hospital here when i had a blockage.  So even though my stoma is 'active' and certainly not blocked, I still get these 'wind like' symptoms. My diet hasn't changed and I'm very aware of water, drinks, etc. I just wondered if there's anyone who's got an Illeostomy and gets these pains. I thank you both once again for your reassurance. VIEW IMAGE

super gran
New Member


Date Joined May 2008
Total Posts : 4
   Posted 5/5/2008 2:03 AM (GMT -7)   
Please can you tell me what an osomie is? I have an Illeostomy, is it short for that? Ta muchly Navy, Super Gran confused

Razzle
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Date Joined Aug 2007
Total Posts : 4392
   Posted 5/5/2008 2:32 AM (GMT -7)   
I think "osomie" is a typo ~ I think the word intended is "ostomy" LOL
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.


super gran
New Member


Date Joined May 2008
Total Posts : 4
   Posted 5/5/2008 3:10 AM (GMT -7)   
Aw, right! Thanks a lot for your reply. Thought I was learning something new.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/5/2008 4:27 AM (GMT -7)   
It is razzle thanks! Check that forum under your named post.
They said this was pretty normal....
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/5/2008 4:29 AM (GMT -7)   
Hello Super Gran. From what I understand, Crohn's (CD) doesn't go away. Just because you have damaged parts removed doesn't mean inflammation won't occur elsewhere and cause additional damage. Which clearly is what is happening if you have CD-related mouth sores. CD can effect from mouth to anus, so you still mave many parts that can be damaged!! I suggest you talk to your Doc about whether you need medicaiton. Take care!

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/5/2008 4:49 AM (GMT -7)   
I do agree with FallColors that you need to think about being on a crohns med, especially with active disease in your mouth.
Forum Co-moderator
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
Praise in public, chew in private.
Make sure your suffering has meaning....
All suggestions/options/opinions are caveated with please consult with your local health care provider...

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