ready to give up on SCD already.....

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 5/3/2008 7:36 PM (GMT -7)   
Man, This is tough.
 
$15.00 for a couple of almond flour muffins and cookies that will probabaly tear me UP!!! A stick of butter! eggs after eggs everyday, I just dont think I can do it. What is the nutritional value for a almond flour muffin? It has to be way over 100% of DV fat.
 
 How is this diet possible if your having "D"?
 
Juice, fruits, veggies, nuts, eggs,
 
The only thing I can think of it to eat just straight chicken brest with mustard. Anyone else have bright Ideas?

Matthew
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Date Joined Oct 2004
Total Posts : 3932
   Posted 5/3/2008 7:43 PM (GMT -7)   
This is why I just avoid foods that hurt me quickly. Never met a diet that actually helped with my CD.

Matthew

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 5/3/2008 8:16 PM (GMT -7)   
You got farther than me - all I did was buy the book!
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 5/3/2008 8:48 PM (GMT -7)   
I made it most of a day! ;-) But, if you try and it doesn't work, then you will know. For me, whenever they start taking ileostomy, I start wondering if I could try that SCD one more time. But, in the end, I just don't know... It takes so much dedication. It does seem like, as with other things, once you adjusted to the new protocol, it would get easier to follow.
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


EMom
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Date Joined Aug 2007
Total Posts : 990
   Posted 5/4/2008 9:37 AM (GMT -7)   
Hi redspot, sorry you're struggling with D... Just wanted to let you know there are a couple of significantly cheaper sources for buying almond flour if you're interested. Here's a great link with further links:

http://www.scdiet.org/8resources/almonds.html

I was blown away at the cost of almond flour at my local grocery store ($10.99 a lb), but now I see I can get it for about 1/2 to 1/3 that price.

Are you trying the home made yogurt? They say it is key--700 BILLION live good guys in one cup, I read somewhere. No lactose since you make it. Maybe this would help the D? I don't know...
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September. Gradually learning/using more SCD recipes, too! (cooking challenged)


CrazyHarry
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Date Joined Mar 2006
Total Posts : 1034
   Posted 5/5/2008 5:16 PM (GMT -7)   
since almond flour is so expensive i dont use it very often. and i havent had much success baking with it. i mostly do the makers diet with elements of the scd. that allows me to eat some grains, mainly sprouted like ezekiel though. going off grains and grain based foods is very difficult. with time it does get a bit easier.

try smoothies out of yogurt - plain yogurt with fruit (fresh or frozen) with vanilla extract and flax seed oil and coconut oil. plain yogurt and fresh fruit is great too.

there are all kinds of salads you can have, if you can tolerate raw veggies. for salad dressing i use lemon juice, olive oil, and red wine vinegar.

all kinds of soups. i find cooked veggies are easier to digest. this means you can grill and sautee veggies too.

meat is fantastic. eat all you want.

i wouldnt worry too much about fat. once you get off the processed foods and start eating more natural, you arent exposed to all the bad fats any more. yes almonds (and all nuts for that matter) are high in fat, but they are a good fat. the bad fat comes from the processed foods and fried foods cos it is used as a stabilizer and thickening agent and extends the shelf life. these are the stuff that has trans fat. fat is actually good for you. you do need it, in moderation of course. you need fat to assimilate, store, and use vitamins A, D, E, and K. most artery plaque is mono-unsaturated and poly-unsaturated fats, which are vegetable fats. research is showing that like less than a third is from saturated fat, which is what we are told to eschew, and instead consume copious quantities of vegetable oil (liquid fats). in this time saturated fat consumption has drastically decreased. the "connection" between coronary disease and saturated fat scared a lot of people, so much so we started to eat margarine instead of butter, which is essentially trans fat (hydrogenated vegetable oil) in a stick. now the tables have turned - trans fat is bad and saturated fat is losing its bad undeserved reputation.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 5/5/2008 5:42 PM (GMT -7)   
you have to read the book..it tells you how to ease into foods after you healed..

Jen77
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Date Joined Mar 2006
Total Posts : 2689
   Posted 5/5/2008 7:22 PM (GMT -7)   
Just wanted to say good luck! I looked in to some of those diets, but knew before I even started that it wasn't going to be for me. Seems really hard, and I just don't have the time (or really energy) to make so much by stratch! Not to mention with food costs right now, it would be quite pricey! I too just try and stay away from those "trigger" foods.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/6/2008 6:58 AM (GMT -7)   
I use the Sniper diet. If it agrees with me, I eat it, if it dont, I dont. I kept a diary of what I ate , and what ate me up, for a long time. Now I know what works and what dosen't. You may want to try that, as we are all diff. Luck to you.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 5/6/2008 7:03 AM (GMT -7)   
The problem with the Sniper diet, or the Gumby diet in my case, is that I can eat the identical thing one day and it will bother me, and I try it another day and I'm fine! I can't figure this stupid disease out!!!!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


butterfat
Regular Member


Date Joined Feb 2006
Total Posts : 31
   Posted 5/6/2008 10:56 AM (GMT -7)   

It's crucial to follow the Intro Diet in the early stages of SCD.  (Almond flour baked goods are NOT part of the intro diet.  They are, however, delicious and nutritious.  I also buy almond flour in bulk online for a very good price.)  Your body cannot handle nuts, seeds, raw fruits or vegetables, or fatty/spicy foods right now.

Once your intestines have healed, you will be able to eat an amazing variety of foods.  But the Intro diet is certainly tough.  I did it while I was very sick and alarmingly underweight, so I know how challenging it can be.  But it was worth it to me.  Which is harder, changing the way I eat, or going to the bathroom 30 times a day while being weak, feverish, dizzy, and in constant pain?  The choice was easy. 

You can read about the intro diet here:

http://www.breakingtheviciouscycle.info/beginners_guide/the_intro_diet2.htm 

I also suggest that you sign up for the SCD listserves so that you can get advise from veteran SCDers:
 
SCD since 12/05
Asacol 12 x 400mg per day
fish oil, green tea extract, bee propolis, coconut oil, ginger


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 5/6/2008 12:32 PM (GMT -7)   
It makes no sense to me to pick and choose between these two diets. The SCD is supposedly based on a scientificly grounded principle. If it works, it is because this principle has merit. To pick bits and pieces of the diet as Crazy Harry suggests, completely negates the therapeutic value, if there is one. It would be like choosing how you want to take your medications and in what combinations.

If you are not following the SCD as it is outlined, then you aren't on that diet and shouldn't be referring to yourself as being on it. This is not to say that you all aren't experiencing improvements in your quality of lives, you just can't attribute those changes to being on the SCD diet.
Belleenstein:

30+ years living with Crohn's.


EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 5/7/2008 5:43 AM (GMT -7)   
No one is picking and choosing. If one truly understands proteins, carbohydrates and fats and if one read both of the books they will see how very, *very* similar--nearly identical--these two diets are in their main concept: eliminate certain "bad" carbohydrates. (The SCD takes it a step further and allows no fluid milk products. Not a problem here because we don't use any milk/dairy whatsoever, except yogurt.) (Rubin puts a Biblical slant on his format and incorporates prayer, fasting, and the dietary dos and don'ts as handed down to Moses from God in the book of Leviticus. He also focuses more intensely on the logic and science behind the good fats and advocates organics.)

I'm glad butterfat pointed out the fact that the intro diet for the SCD is the healing part that allows one to eventually move on to a much broader diet. Much like phase 1 in the MD.

The reason we personally branched out to the SCD is frankly, I am cooking challenged, and there are more recipes available for the SCD in the advanced stage of the diet. Books and books available at your local book store/library FULL of recipes. The SCD recipes we all use are 100% compliant with the Maker's Diet (if one uses organics) (oh...and no pork or shellfish). The Maker's Diet recipes we use are nearly 100% compliant with the SCD (I often substitute coconut milk for cow's/goat's milk).

Sooooo...unless one is in phase 1 or the intro diet of either of these diets, they are for all practical purposes, the same diet. And even in the intro phases of these diets one can argue the same because of the types of proteins, carbs and fats allowed.
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September. Gradually learning/using more SCD recipes, too! (cooking challenged)


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 5/7/2008 6:21 AM (GMT -7)   
butterfat........your philosophy matches mine exactly. I am also one who has gotten better following an atifungal diet, eating lots of meat/fish/poultry,veggies, select fruits, yogurt, and eventually select grains. It was hard in the beginning to get off the addiction of sugar and processed foods, but changing my eating habits was waaaaay worth it compared to going to the bathroom so many times in a day, along with the pain and suffering. I feel great now, no meds. "Change" is a personal decision that can't be made for anyone. I was just so sick and tired of being sick and tired, that I was willing to try anything. Fortunately for me, it worked! EMom and Crazy Harry, I enjoy reading your posts. You give the rest of us hope.

EMom
Veteran Member


Date Joined Aug 2007
Total Posts : 990
   Posted 5/7/2008 7:09 AM (GMT -7)   
Thanks, Kim! And you bring forth another good point. The Maker's Diet and the SCD are very, very similar to certain anti-fungal diets and other "healthy" diets like the South Beach Diet. I picked up a South Beach Diet cookbook at the grocery check-out not too long ago (one of those little ones for $4 or $5). We can use most of the recipes in it! :-)

And Ingrid is correct. It takes educating oneself. It takes dedication, and it takes time to cook....

....gee, I wish I liked to cook...any tips, butterfat? You seem to have a passion for it! ....reluctantly learning to enjoy cooking here... eyes
EMom
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September. Gradually learning/using more SCD recipes, too! (cooking challenged)


butterfat
Regular Member


Date Joined Feb 2006
Total Posts : 31
   Posted 5/7/2008 12:36 PM (GMT -7)   

I'm the first to admit that transitioning from a standard American diet to the SCD is very challenging.  And SCD is definitely more expensive.  Sometimes I think how great it would be if I could get grocery subsidies from my health insurance company, seeing as how I'm saving them thousands of dollars a year (or whatever it is) by following this diet instead of being on Remicade or some other high-tech drug.  I seriously empathize with people who start the diet with a limited budget or limited cooking interest. 

I was interested in cooking long before SCD or Crohn's.  I especially loved baking bread.  Everyone thought it was so sad when I started SCD, like it was especially hard for me since I loved to cook.  But now I realize that that is what saved me.  Seeing the SCD as a creative culinary challenge actually got me interested in taking care of my health, and having fun while doing it.

One of these days I am going to start an SCD website.  When I do, I promise I'll put the address in my signature :)  One thing I want to write about is the Intro diet and how I eat and take care of myself when I'm not feeling so great.

These diets certainly may not be for everyone.  I can't help but think, though, that everyone with Crohn's could probably benefit from eating homemade SCD yogurt (all those probiotics) and from reducing refined sugar and grains in their diet.

One more thing--I started SCD because, pre-SCD, everything I ate immediately made me sick.  I was in pain and running to the bathroom after eating a cracker or a piece of toast.  (This was the so-called BRAT diet my doctors had put me on.)  Maybe others don't feel that way, like a regular diet is directly and immediately provoking their symptoms.  But I did.  I was desperate to find any foods that didn't cause me instant distress (since I was so weak and emaciated, I was extra-desperate).  Once I started the Intro diet--which for me was mainly chicken broth, diluted apple cider, ripe bananas with SCD yogurt, and eventually pureed butternut squash and roast chicken--that direct food-provoked pain went away.  That is how I became determined to stick with the diet.  So if your "regular" diet isn't causing you that kind of pain, I can see why it would be harder to commit to the SCD. 


Diagnosed with Crohn's disease 11/05
SCD since 12/05
Asacol 12 x 400mg per day
fish oil, green tea extract, bee propolis, coconut oil, ginger


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 5/7/2008 1:18 PM (GMT -7)   
I think that for some people, especially those early in the disease process, the SCD diet is terrific. But I cannot understand how it can be called the SCD diet when you are eating things like sprouted grains? It's been awhile since I last read Elaine Gottchalls amazingly detailed book but are not these grains expressly forbidden on this diet?

My point is not that it is bad to pick and choose and figure out what works for you when it comes to diet. My point is that, you aren't on the Markers Diet or the SCD diet when you ignore crucial elements of either of the diets. You're doing what many of us are doing -- using your own experience to inform your decisions about diet. You have experience in what works for you.
Belleenstein:

30+ years living with Crohn's.


butterfat
Regular Member


Date Joined Feb 2006
Total Posts : 31
   Posted 5/7/2008 2:01 PM (GMT -7)   
 
belleenstein said...
I think that for some people, especially those early in the disease process, the SCD diet is terrific. But I cannot understand how it can be called the SCD diet when you are eating things like sprouted grains? It's been awhile since I last read Elaine Gottchalls amazingly detailed book but are not these grains expressly forbidden on this diet?

My point is not that it is bad to pick and choose and figure out what works for you when it comes to diet. My point is that, you aren't on the Markers Diet or the SCD diet when you ignore crucial elements of either of the diets. You're doing what many of us are doing -- using your own experience to inform your decisions about diet. You have experience in what works for you.
Belleenstein, I would have to agree with you for the most part.  I follow strict SCD--no grains of any kind.  Elaine Gottschall would have agreed with you since she demanded fanatical adherence to the diet.
 
I can certainly believe that if one is educated on the science behind the diets, a combination of the multiple diets could work for some people.  But I agree that it is not the same thing as following one of the diets strictly.  And it could certain confuse people who are just starting out.  That's pretty much why on the SCD listserves, they do not allow questioning or modifying or "cheating" on the diet (they don't allow postings about this stuff, that is).  Because it's hard enough to learn this new way of eating, simply on its own terms.
Diagnosed with Crohn's disease 11/05
SCD since 12/05
Asacol 12 x 400mg per day
fish oil, green tea extract, bee propolis, coconut oil, ginger


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 5/7/2008 5:26 PM (GMT -7)   
scd is alot of work..i have years of food diaries and testing different foods/reactions. It was almost a hobby at one point :) I really don't think people understand this, so they end up worse. There are hundreds of scd threads from years back to search in just these forums, i really wish people would take the time to check them out :) good luck people
SCD since 01, remission since 01, occasional Arby's breaks :)


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 5/9/2008 4:21 PM (GMT -7)   
I just got my book in the mail today.  After reading all the posts, it's good to know that it has it's up and downs.  I feel it's going to be more of a mental thing for me.  Like kim 123 said... I'm sick and tired of being sick and tired... At this point I'm willing to try it.  I LOVE food so I know it's going to be a challenge to get my cravings met but I feel my health is on the line and it's something I HAVE to do not NEED to do.
April
 
If God brings you to it, He will bring you through it

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