Thank you all for your responses, I am still in a little bit of awe that this is all happening. It has been a very humbling experience and I am finally admitting to myself that a little help is not the worst thing. Before I was diagnosed, I was somewhat of a workaholic and love the feeling of coming home from a hard days work knowing I had done my best. While I was so grateful for the support that my employer gave me with their long term disability, I always held out hope that I would be returning to work the next week or the next month. 3 years later, I am now accepting the fact that I can not work right now. I have been on the max dose of remicade and methotrexate every month and week for 3 years and had to be taken off of it all last month. I have tried humira, 6-mp, steroids, asacol, and just about every other crohn's medication out there with little or no success. My crohns has been a weird case in which all of the manifestations of the disease have been the arthritis, pain, bleeding, nausea, D., body inflammation, but never would just show up in one place enough for a biopsy. They would do scope after scope and see the inflammation, but never get a positive biopsy. Eventually, after having my appendix and gallbladder removed, I was hospitalized for 3 weeks and diagnosed through the pill cam. Still, 3 years later, they still can not get the disease to settle enough in one place long enough to get a positive biopsy. They have had the positive promethius test and all the blood work show the right markers, so they have a positive diagnosis finally. Now, my G.I. has taken me off of all my meds in order to get that biopsy. He figures that the high dose of remicade that I was receiving monthly has been suppressing the disease just enough to not allow it to settle.(isn't that what is is supposed to do?) It has been a terrible month off of the remicade, but the remicade was now only working for about a week. So, the news of the approval was very needed.
Sorry that this is so long, but I wanted to answer all of the response questions that I had. As for the process of the application, I am probably not the best one to ask because my employer had hired a law firm to do everything for me. I do know that before you apply, you really need to make sure that all of your doctors are on board with both the diagnosis and your applying for disability. You want to make sure that what you put on your application matches what they are putting. YOu also need to be very honest in what you put about your situation. Too many people try to make their situaton seem a lot worse that it really is, and the S.S.I. people can see through the B.S. Don't sugercoat it either, just be honest and make sure that you make copies of everything that you send in. When I was talking about my hobbies, I was really hesitant to include all of them, but I went into detail about what I like to do on my good days and what I can't do on my bad days. My wife did not want me to put down that we like to go trail riding on our 4 wheeler, but I included it so that they can not come back and get me for fraud or exaggerating my situation down the line. All in all it did not hurt me and my lawyer thought that they would appreciate my honesty.