crohn's & bladder pain?

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Veebo
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Date Joined Nov 2007
Total Posts : 147
   Posted 5/4/2008 9:23 AM (GMT -7)   

Hi All,

 

Does anyone ever get bladder pain with a Crohn’s flare up?  I am trying to figure out if the pain I am having is from Crohn’s or a kidney stone.  At present I have not been diagnosed with Crohn’s because the biopsies from my 2 colonoscopies came back with indeterminate colitis (chronic inflammation).  Pillcam showed nothing of concern but my blood work was strongly ASCA positive.  Typically, my symptoms are bouts of diarrhea, joint pain, moderate stomach cramping during and after bowel movements (typically subsides in a few hours with tylenol), occasional rectal bleeding, and fatigue.  I am currently only taking sulfasalazine which I have been on for 1 month.  Now the pain that I typically get, while it sucks, does not stop me and I am able to move on with my life within an hour or so.  But his past Thursday the pain was intolerable.        

 Basically on Thursday morning I woke up felt just peachy.  Went to the bathroom and had a BM that was perfectly normal as far I could tell.  But when I tried to stand up I doubled over in pain and I felt as though I was going to give birth to something .  I thought at first that I had really bad gas but the pain persisted.  The pain was in my lower stomach/pelvic area and when I had additional bowel movements or tried to urinate the pain got worse.  So then I began to worry about it being my appendicitis or that I some other important organ had burst inside of me.  I called my primary care and they saw me right away.  I had to have my husband drive me there as I could barely walk.  As soon I got there my Doctor sent me to the emergency room.  The docs in the ER really did not tell me much and said that I must be having flare up of my colitis…even though I have never felt pain even close this from my colitis.  They only ran a few blood tests and a urine test…no xrays or anything.  They told me there was blood in my urine, gave me some pain meds via IV and sent me home after about 8 hours…after which I still had pain.  The next day I felt as though I had muscle soreness in my stomach (but not the kind you get frome exercise) like if I tried to walk it hurt when my feet hit the ground with each step and my stomach felt like it was being pushed out…overextended.  As I started to think about what happened the day prior I figured it may be that I passed a kidney stone (I had kidney stones last year but had a lithotripsy to break them up…so pain was moderate).  But what led to the discovery of my kidney stones last year was the blood in my urine.  It is now a few days later and I still have pain on and off and I do notice that when I eat I get a sharp pain for about a half hour on my lower right side…and I am also in the bathroom shortly there after.  So I am wondering if this type of pain and lingering pain is typical of Crohn’s disease?  I also have a sharp pain in my buttox when I sit down.  But what is making me think kidney stone is the fact that there was blood in my urine and my bladder hurts.  Can Crohn’s cause bladder pain?  I am just so confused and appreciate any info you all can provide. 

 

Thank You!    


sr5599
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Date Joined Aug 2007
Total Posts : 1202
   Posted 5/4/2008 9:56 AM (GMT -7)   
I don't know if Crohn's can actually cause pain in the bladder, but for months I thought I had a bladder infection because I thought my bladder hurt. Not the type of "I can't walk pain" but a constant throb and yes, it hurt more with bms and urination. It turns out that it was the rectal region being so inflamed that I am feeling. My doc thought maybe I was feeling my fistula.

But, this sounds different because you are showing blood in the urine. My urine tests always come back clear. Wish I could be of more help, but just wanted to share my experience.
--39 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


Redjeep
Veteran Member


Date Joined Nov 2005
Total Posts : 1024
   Posted 5/4/2008 12:41 PM (GMT -7)   
I have bladder and kidney pain at times. Check you'r potassium level. Too much and the linning od my bladder infames as well as the kidney's. I have to be very careful with fruit and juice. Not to mention drinks like gadorade[sp].

But blood in the urine is strange. Is it bright or tea like color?

I'd make an appointment.

rj

Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 5/4/2008 6:40 PM (GMT -7)   
I have bladder pain that wakes me up but no blood in the bladder. You need to be seen and completely evalutated asap! Take care and best wishes.

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 5/5/2008 12:02 PM (GMT -7)   
Hi All,
 
Thanks for the replies.  I am seeing my GI on Thursday evening so hopefully he can figure out what happened...though I am not sure how much he can tell a week later.  As for the blood in my urine...I can't actually see it, it is showing up in testing.  When I had a kidney stone last year I knew it was there as the color was unmistakable.  So I guess I just have to wait it out and see.  I still feel kind of crappy but I get better each day...I usually bounce back rather quickly but this time it seems to be taking forever.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 5/5/2008 6:02 PM (GMT -7)   
This is strongly suggestive of a kidneystone, especially blood in the urine. The pain sounds like bladder spasm to me. Unfortunately, Life has given me plenty of experience with BOTH. When stone are on the move, or you have lots of grit from them, you can get the spasms.
I'd go to the ER & get an IVP x-ray or a CT scan if I were in your place.

Sincerely,
Matthew

GingerGal
New Member


Date Joined May 2008
Total Posts : 8
   Posted 5/9/2008 11:53 AM (GMT -7)   
Good that you are seeing a doctor. Bladder pain (and the feeling it was being pushed down) happened to me 10 years ago when I first got Crohn's; it was one of the first symptoms I had, and I had spotting as well. After that, the pain progressed and they didn't know it was Crohn's yet. It turned out that there was a big infected mass in the ilieum, and it was pushing down on the bladder (and the surrounding organs were inflamed as well). The bladder itself was fine, however. We are all individuals here with unique Crohn's stories, so this could have nothing to do with what's going on with you, but I just wanted to share, because it's still a possible reason. I'm having my first real flare-up in 10 years, and I know this, because I feel the same type of pain (with a few altercations), and the feeling of my bladder aching and being pushed down. So, some sort of xray or ultra sound might be worth it to see if there is any mass there!

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 5/9/2008 2:46 PM (GMT -7)   

Hi GingerGal,

 

 

Thanks for your reply.  I was at my GI yesterday and he is not really sure what is going on since most of my tests results indicate only mild disease.  He also told me that my condition could be evolving a bit.  I am going for CT scan on Tuesday so he can check to make sure there are no masses or other fun goodies floating around.  I do know that when I had a cystoscopy last year my urologist mentioned something about my bowel pushing down on my bladder…not sure if that could be part of the problem.  Hopefully this will get sorted since I am still having some pain…not even close to the amount that it was but I am still uncomfortable.    

 


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 5/9/2008 6:53 PM (GMT -7)   
And inflamed bowel could be causing pressure. I have heard this suggestion a couple of times..
Still check for stones, they are high risk with both kinds of IBD..

Matthew

ivy's mom
Regular Member


Date Joined Jul 2006
Total Posts : 62
   Posted 5/14/2008 11:40 AM (GMT -7)   
Hey ,
Just wanted to let you know that my daughter has severe bladder pain, blood in urine and loss of control when she is having a flair. Now that things are being controlled then not many bladder symptoms. They have never found out what caused the bladder problem. Ivy had her last severe flair in February. So much blood that I thought she had started a period but she is only 10. She is doing good now but she has psoriasis all over her head. Oh I forgot Ivy's bladder pain was so severe that she would vomit and almost pass out.
Ivy's mom
Becky

Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 5/14/2008 6:16 PM (GMT -7)   
I am in a flare right now, Yersterday, I would no sooner leave the bathroom , walk down the stairs, and say to my daughter."darn , I have to go again.!" but the pain I was having wasn't cramping as usual , it was bladder pain and burning. ....exactly like something was pushing on my bladder. There was no blood in my urine...but some blood in my stool. I often have symptoms such as these with a flare...there are times when I just can't pee even tho I feel the urge to go. After I've had a few #2's ...then I can pee again. Very strange. When I have flares, I've been known to have urethral strictures, which need to be dilated with a catheter and balloon. My GI has never explained the connection between the two...but they definately go hand in hand....and I have also had kidney stones...
Right now I'm also experiencing sores in my mouth wich are extremely painful....and a sinus infection. Seems like every orifice in my body is protesting very loudly.
Good luck with your bladder problems and colitis...hope everything gets better for you really soon.
Love and prayers
Tired old Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


GingerGal
New Member


Date Joined May 2008
Total Posts : 8
   Posted 5/23/2008 12:56 AM (GMT -7)   
Hi Veebo,

Did you get your CT scan results back yet? I had one last week too.

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 5/28/2008 8:19 PM (GMT -7)   
Hi Gingergal,
 
I did get the results of my ct scan and everything was normal.  Which is good news but it sheds no light on to what is going on with me.  I am still having problems and the past few days have been really bad.  I actually let out little groans of pain when I have bowel movements....which is quite troublesome when in the public bathroom at work eyes .  I have an appointment next week with my GI so we will see what additional fun he has in store for me.  Did you get your CT results back? I hope all is well.

Brig
Regular Member


Date Joined Apr 2008
Total Posts : 33
   Posted 5/28/2008 10:42 PM (GMT -7)   
Hi, I am having a flare at the moment and cant really focus but wanted to share I also get bladder pain and the feeling I have to go but cant but no blood etc. I drink some urinal that helps.

Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 5/29/2008 5:34 AM (GMT -7)   

Hi Brig,

Thanks for sharing your experience.  I hope you are feeling better soon. 


Amanda25
New Member


Date Joined Jan 2006
Total Posts : 17
   Posted 6/2/2008 7:43 PM (GMT -7)   
Veebo-
I also had bladder pain and blood in my urine.  Thought it was a bladder infection, but came back clean, beside the blood. My GI sent me to a urologist, and I was diagnosed with Intersistal Cystitis...another lovely autoimmune disorder where the lining of the bladder is being attacked, causing ulcerations.  My urologist says about 75% of his patients with IC also have IBD. Mine always flares up at the same time as my Crohn's.  Did your urologist do a hydrodistention with the cystoscopy?

26 yr old from Iowa
Diagnosed w/ Crohns Jan. '06
Ileocolectomy Aug. '06
Currently taking: Pentasa 4000mg, Entocort 9mg, 6MP 100mg
"I can be changed by what happens to me. I refuse to be reduced by it." - Maya Angelou


Veebo
Regular Member


Date Joined Nov 2007
Total Posts : 147
   Posted 6/3/2008 9:12 AM (GMT -7)   
Hi Amanda,

Thank you for your reply and I will keep IC in mind should I experience this issue again. My Urologist did do the hydrodistention to see if he could ID the source of the bleeding but he did not see anything. However, he did not think the bleeding was coming from the kidney stones and was uncertain what was causing it. Of course my IBD really started to act up a few months later so the cystocopy that I had was done over a year ago and before my IBD got bad. I have actually been doing dipstick tests ever so often and at present there is no blood in my urine so I have no clue what is going on. I am actually thinking edometriosis at this point as my doctor has brought it up a few times. I have been having really bad nausea over the past week and I see my GI tomorrow...so hopefully he will give me some direction.

Best Wishes

mtbcubs2004
Regular Member


Date Joined May 2008
Total Posts : 25
   Posted 6/3/2008 2:12 PM (GMT -7)   
I had the same exact pain. One day I was wiping snow off my car, than felt what I thought was a muscle pull. It got increasingly bad over the next few days, than hurt whenever I took a step. the pain was relieved when I urinated. By the time someone saw me in the ER, the pain was gone. One of the docs wanted to remove my appendics. A barium study revealed that I have strictures in my small intestine.

map lady
Regular Member


Date Joined Feb 2008
Total Posts : 154
   Posted 6/3/2008 2:46 PM (GMT -7)   

Oh how helpful!  For the past couple months I had bladder trouble where it was really easy to accidentally wet myself a little and I would be like "gotta go gotta go gotta gooooo" maybe 3x per hour on some days.  I thought it was maybe a tumor (I am good at getting those near my bladder) and recently found out it wasn't, so I was like well I didn't have an infection either so what gives?

Nobody I went to for the bladder issue knew that bowel problems could cause bladder issues.  The fact that I am back to having no bladder problems now that I have to go #2 too often again explains a LOT tongue

I love this forum :D


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 6/3/2008 4:14 PM (GMT -7)   
I've had much the same symptoms...bladder spasms & blood in the urine prior to my resection. In fact the bladder spasms & overactive bladder were the first Crohn's symptoms I had too. I also had a crohns related cyst 4.5cm growing on the outside of my ovary causing pressure on the bladder along with the small bowel inflammation pressure. Then they found out that the cyst was blocking my ureter (tube from the kidney to the bladder). Having said all of that ...did they run the CT using a dye contrast? I would ask for a referral to a urologist myself (sounds like you may have one already with prior stones). It could just be inflammation related, kidney stones, bladder stones/cysts, etc.. All of which puts you in the position for infection to ravage your body even more. Not to mention sounds like you make occasionally be in need of a better pain reliever. Pain relievers do not work on intestinal gas so it's my guess something else is amiss. Matthew is the self proclaimed "Stone King" here...and I agree with him! Hope this helps and you are feeling better soon.
Dx'd Jan'06, 1st Resection 7/06, Predinsone, Humira, Imuran, B12 injections, Nexium. Secondary conditions: Psorasis, Acne, Fatigue, Joint Pain, Lactose Intolerant, gallstones, fibroid cysts, peri-menopausal.


jenny42
New Member


Date Joined Jun 2008
Total Posts : 1
   Posted 6/14/2008 6:51 AM (GMT -7)   
I am going thru many of the same symptoms and doctors can't seem to find out what's wrong with me. All my troubles began approx 8 yrs ago with what I thought was a really bad UTI - with extreme back pain and nausea. Got treated with CIPRO for weeks...pain would come back and go after having sex...over the years..the pain would return and on the CIPRO again. Pain free for a few years and then BANG get hit with a big attack of vomiting that rushes me to hospital by ambulance (the stomach pain was that bad)..and after TONS of tests & tests, I'm diagnosed with Crohn's. Was Crohn's the problem since the beginning? Maybe. They also said that I had a cyst that broke which caused a lot of the pain.

Back to last fall - again experiencing weird pelvic pain after PAP test (!). Pain stays with me for almost two months. This time with blood in urine (dark brown). CT scan again. They see a bit of inflammation on intestine but nothing else. ARGH!!! Blood in urine eventually goes away. Now, it's back again. Seems to appear one week before my period and then goes away. Especially visible in urine after a bowel movement.

I am 42 yr old female. Non-Smoker, healthy weight, who has not had a violent vomiting attack in 3 years (yay!).

I am so fed up. I am going to go see Doc again next week. I hope it's nothing serious.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 6/14/2008 9:07 AM (GMT -7)   
I have Intersistal Cystitis as well. I've had that since I was a little girl (1st grade I can remember getting symptoms). Wasn't told what it was until much later. It acts up on me sometimes still, I'll get pain and burning. So I can relate!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 25 mg, Asacol, Questran, Toprol XL (for high blood pressure).


carrolld
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/9/2009 6:52 PM (GMT -7)   
It could be Intersistal Cystitis.  You could have blood in urine with this condition.  My mom has this condition and I may :(  I have a urologist appointment tomorrow :(  It's possible that the Crohn's disese has flared up your bladder.  Here is a wonderful Intersistal Cystitis (IC) website.  http://www.ic-network.com  Also check out the IC diet at http://www.ic-network.com/diet/  Try the elimination diet and see if some of the symptoms subside.  Here is the IC cookbook http://www.ic-network.com/icchef/ In the meantime if you are in a lot of pain here is something that will help for a little bit.  Do not use this a lot because it can mess with your sodium levels if you do it too much.  Take one teaspoon of baking soda and mix it in a cup of water.  Tray Evian water, Deerpark or Arrow, these are the most bladder friendly water.  Tap water may aggrivate the bladder if the Ph balance is not a 7.  If you have IC or think you may, immediatly eliminate all acidic foods, sodas, chocolate, spices, fruits (except for pears and blueberries which are bladder friendly), anything with yeast (this means bread :( ), and any foods with potassium.  If you can't bear to live without some of the foods, take Prelief with every meal that contains something on the must avoid list and limit your intake of them.  Here is a wonderful book to read: You don't have to live with Cystitis by Larrian Gillespie, M.D.  Very informative book about IC.  I hope by now you are much better!

1+1=2
Regular Member


Date Joined Sep 2005
Total Posts : 25
   Posted 10/9/2010 2:58 PM (GMT -7)   
A "tingling" when urinating and a feeling of pressure on my bladder was a symptom all 3 times when my small bowel became blocked.
-------------------------------------------------------------
Diagnosed with Crohn's Disease in 1994
1st resection 1994
2nd resection 1999
3rd resection 2008 followed closely by 2 more operations due to major complications - leak at the anastomosis, GI hemorrhage, temporary jeujenostomy
--------------------------
also have MEN Type 1

FunGuy
Veteran Member


Date Joined Oct 2009
Total Posts : 1070
   Posted 10/9/2010 7:40 PM (GMT -7)   
I had bladder pain
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