I feel like I am on the verge of a "breakdown". We are going to see the doctor tomorrow. I believe he will suggest Remicade. I'm just so angry that my son had to deal with this!! I wish so much that it was me. When I look at the options, they are all terrible options! I just want to scream!!
Hi Georgia RN,
I was 14 when I was diagnosed with Crohns of the terminal ileum. I had a miserable 2 years between 14 and 16 that included plenty of flares, abcesses, etc. I tried the asacol, pentasa with no help. I am very sorry that immuran is not working. I had a lot of success with it between 17 - 22. I started remicade at 22 and had a fair amount of success with that. Recently I had surgery which is slowly becoming a blessing.
I know what it is like to be a kid with Crohn's. It hit me one day during algebra class. Never forget it. The worst belly pain ever. It kept me up and my parents just couldn't understand it. I even tried ignoring it for awhile, that didn't work. I just wanted to be a normal kid, hang out with friends. Ultimately, it won and I was diagnosed. The bright side, I am now 29, done with school, and doing pretty well. It was hard, I know exactly what you guys are going through. Hang in there, don't view remicade as a bad thing. Can be very effective. Good luck with the dcotor, let us know how he makes out.