Is it so wrong to want a 2nd opinion?!

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abl
Regular Member


Date Joined Apr 2008
Total Posts : 30
   Posted 5/6/2008 12:59 PM (GMT -7)   
I just called my doctor's office to request a referral to a dr. in the St. Louis area. I am from a small town in IL and have not been happy with my dr. here for awhile now. He is extremely busy and is hard to get a hold of and he is terrible at communicating. He hasn't ever really explained anything to me about my Crohn's....or at least not very well. I don't really have a clue about my disease or the severity of it. All I know is that I am stuck in the bathroom for hours on end and in pain. I have a young daughter and husband and this is not just affecting my life but their's too. This dr. actually has Crohn's himself and I thought that was going to be a huge benefit to me but I just don't feel like he is taking care of me. So.....I called to ask them to refer me and the nurse acted kind of ticked off about it. She wanted to know if this was my idea or the doctor's. Then she told me that she would ask HIM where HE wanted to refer me! I already had a place I wanted to go to. Isn't it my right to get a second opinion if I want to and to go where I want to go?! I got a second opinion once before with another GI dr. around here and when my original doctor's office found out about it they told me they would have to ask him if he even wanted to see me again when I tried to make an appt! I hear all of you talk about where your crohn's is and blood work that you've had done and I feel very clueless about my health. I am a little bit of a control freak and I like to know things! Am I being overly sensitive about this?


~Anna
 
30 years old~ Diagnosed in 2000 with Crohn's~ Currently taking 3000 mg Pentasa, Prednisone, and Bentyl.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 5/6/2008 1:09 PM (GMT -7)   
It's not at all wrong to want a second opinion. I'd have a hard time getting one myself. We have two big offices with GI docs, one my insurance company covers, the other doesn't. I've heard of others asking to change doctors within the office, and they would tell them NO! Unbelievable! I always figured they'd just stick together in what they would say anyway.

Mine isn't always great about expaining things either. They have computerized medical records, so he just sits behind a computer in the room not even making eye contact with me. Very frustrating. So the last time I went in to see him I just starting belting out the questions (best to have them written down). I really didn't give him any other choice but to educate me about where my Crohn's was, what the biopsy report actually said ect... I plan on doing that again next week. I do PAY him for this after all! I'd go in and tell him your concerns and the info that you want!


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/6/2008 1:21 PM (GMT -7)   
Any doctor who is worth while should welcome a second set of eyes on a case. I personally see a GP who is also a GI, a local GI and then several times a year I go into the city to see the head of GI at a major teaching hospital. They all talk and confer on my case. This way, I can get an appointment when I need one ASAP, but if things are tricky or complicated my local doctor (who trained with the doctor in the city so they are good friends as well) gets on the phone and they have a phone conference.

You shouldn't be made to feel like you are doing anything wrong by asking for a second opinion. Could you talk to someone at your insurance company? Do they have some sort of patient advocacy program where they might help you set something up? It might be a place to start.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/6/2008 1:21 PM (GMT -7)   
It is your right to obtain a second opinion. How one goes about it is another matter. When I wanted a second opinion, I did not want my GI to know I was going to see someone else. I got a copy of my colonoscopy reports, CTs, blood work, etc saying I wanted it for my personal file. I then booked an appt with another GI, taking my copies. As it turned out, I liked the second doctor so much better, I asked on the spot if he would accept me as a patient and he agreed. I did pay for this appt myself as my insurance would not cover it. It was the best $185.00 I ever spent.

Should your current GI get ticked off about you going to see someone else, might he refuse to have you as a patient anymore? If that happens, how much of a hardship would it be having to travel to St. Louis for your GI care? I like Jen77's idea about making a list and going to your appointment, and telling your current GI that you need some questions answered. Take out your pen, and as he answers each question, write down the answer. Some doctors actually think that patients do not want to know the small details regarding their illness. Make him aware you do.

Good luck and let is know what happens. If you want help compiling a list of questions, I bet our veterans here would love to help you out!
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


abl
Regular Member


Date Joined Apr 2008
Total Posts : 30
   Posted 5/6/2008 1:41 PM (GMT -7)   
Thank you! I have been a little bit worried about alienating myself from my current dr. because it's about a 2 hour drive to St. Louis but I think it will be worth it. There are quite a few doctors at the place I am wanting to be referred to and I just feel like maybe they will be more knowledgeable and eaiser to communicate with. I did try to get in to the new dr. on my own but they required a referral. I hope this turns out the way I am hoping! :) Thanks for the validation!
~Anna
 
30 years old~ Diagnosed in 2000 with Crohn's~ Currently taking 3000 mg Pentasa, Prednisone, and Bentyl.


abl
Regular Member


Date Joined Apr 2008
Total Posts : 30
   Posted 5/6/2008 1:43 PM (GMT -7)   
Oh! And the list is a great idea! I am definitely going to do that! Thanks Jen77!
~Anna
 
30 years old~ Diagnosed in 2000 with Crohn's~ Currently taking 3000 mg Pentasa, Prednisone, and Bentyl.


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 5/6/2008 2:25 PM (GMT -7)   
Why would you ask your gi for a referral? Wouldn't that be your pcp's job? Any dr. who is worth anything will not get upset about a second opnion.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/6/2008 2:37 PM (GMT -7)   
I think a 2nd opinion is just good medicine.
[color=cyan>Forum Co-moderator - Crohn's Disease</FONT>
<FONT]We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants)
[/color][color=green>Praise][/color][color=blue>Make]
<FONT color=red>All suggestions/options/opinions are caveated with please consult with your local health care provider...[/color]

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