I'm sure you will get a lot of different responses on this one. I started receiving Remicade infusions in December of 1999 and I still am receiving it every 8 weeks since then.
For me, it has been a lifesaver. I had no reactions to it and it helped me tremendously! I was also suffering from arthritis secondary from CD and it took all my arthritic pain away. I can tell when it is time for my next treatment, because 2 weeks prior to it the arthritis starts to come back.
I was doing so well on it my Gi wanted me to try for every 10 weeks. Unfortunately my arthritis came back big time by the 9th week and then when I called to get my appt. moved to ASAP they couldn't get me in until the 10th week. By then I was practically crippled from the arthritis and pain. If I had waited any longer I know for sure I would have been in a wheel chair.
I was able to go into remission for many years but since May of 2007 until now I have been under a tremendous amount of stress and I have been having many flare ups. No diarrhea, just lots of bloating & pain.
I had a partial obstruction in June 2007 and was admitted for that and fed steriods and antibiotics through I.V. and got better.
In November of last year I had another small bowel follow thru since my symptoms were coming back and we found that my crohns has not spread but had now developed strictures. My crohns affects about 12 inches of my terminal illieum. Since then to present I have been off/on with the entocort and alternating between constipation and normal bowel movements which is common for someone who has strictures.
The last 2 weeks for me I have been entocort free and feel pretty good, but I still have the bloating at times.
So for me it helps a lot. I am also taking Methotrexate. I would recommend it as it has been wonderful to me.
I'm sure other's will chime in with their opinions.
Post Edited (sukay) : 5/8/2008 11:49:45 AM (GMT-6)