capsule enboscopy

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Ne Ne
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Date Joined Apr 2008
Total Posts : 243
   Posted 5/10/2008 2:38 PM (GMT -7)   
eyes I was wondering it seems like everyone is always talking about C-scans, MRI's but I haven't heard of anyone talking about capsule endoscopy ( the camera pill ).I've had one and my GI wants to do another...He was talking about a C-scan, But now he wants to do the pill again... I wasn't to worried the first time, I really didn't know what I had, I had never herd of crohn's... So it was no big deal. It showed I had 4 spots, so my GI wants to see if they have changed or what..I've had a lot of pain and bloating, I just don't want that pill to get stuck...And has anyone else heard of one getting stuck????



Ne Ne yeah
49 Female
Dx June 07 crohn's take asacol 2x3 a day , entcort 1 a day ,lotrel for HBP , omeprezole for stomach , potassium , one a day crohn's & colitis therapy , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08


sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 5/10/2008 2:46 PM (GMT -7)   
There are threads dealing with this but I don't remember their names-but in short yes there are people here who have had them and they will be around soon to share their experiences. They have a disolvable test pill that they can give you before the capsule endoscopy if their is concern about it getting stuck.
Sj

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/10/2008 7:18 PM (GMT -7)   
NeNe . . . go to the top of the page and find a blank box and the words "Search Site".

Type in "pill cam stuck" or "capsule endo stuck" or other combination of words and you find lots.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 5/10/2008 7:31 PM (GMT -7)   
I really WANTED to do the capsule endoscopy and have wanted to for years BUT we KNOW I have a partial obstruction at my old resection site so I refused to do the PCE regardless how badly I wanted to "see" until they ordered the Agile Patency Capsule for me to try first. (Good thing too, the APC did get stuck!).

The APC is the exact same size as the PCE but it is dissolvable w/in 3-4 days. You swallow the APC and 26 hours later go in for a simple abdominal xray. If the APC is seen on xray you are NOT a candidate for the PCE.
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 5/10/2008 8:19 PM (GMT -7)   
What happens when it gets stuck?

brit tuck
Regular Member


Date Joined Jun 2007
Total Posts : 143
   Posted 5/10/2008 9:22 PM (GMT -7)   
CrohnieToo, you aren't necessarily not a candidate for the capsule endoscopy if the patency capsule doesn't go through. I did two patency capsules, and both times they didn't pass (and just dissolved). But I decided it was more important to find out what was going on, because my doctor and I figured if it got stuck then at least we would know what it got stuck in. And the actual pill camera passed within a week. So I was lucky, but it isn't necessarily for everyone. I'm having another one done in August after I return from studying abroad this summer. It does help the doctor to see some things that they otherwise wouldn't be able to see.

nursetiff
Regular Member


Date Joined Jul 2007
Total Posts : 33
   Posted 5/10/2008 11:48 PM (GMT -7)   
I had the capsule done after I healed from my partial bowel resection to map out the disease. I did fine but most of my inflammation was down. If the capsule gets truly stuck, they have to do surgery to get it out. The images from it were really neat, it found stomach ulcers I had developed and didn't know I had, plus bleeding ulcers in my small bowel. good luck to you!
diagnosed with Crohn's 2/2007. Small bowel resection 4/2007 d/t abcess, perforation.
Currently on Remicade, Pentasa 1000mg 3xday.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/11/2008 1:24 AM (GMT -7)   
Thanks, Brit. But its a long standing anastomosis (1978) and we know from previous imaging procedures that inflammation has been going on there on and off for the last 9 years. I've had a surgical recommendation for several years now but since I keep popping in and out of symptomatic remission I just don't feel sick enough yet to agree to another resection. I really don't care to put myself in the position of HAVING to have that surgery because I swallowed the PCE and it go stuck.

But I, oh so very much, would LOVE to see just what the innards of my small intestine does look like - sigh! Just not enough to risk surgery.

We know where the narrowing is and we also can clearly see the amount of distention above it.

Now - I wonder if "when" I am ready to agree to the surgery, I could con my gastro into doing the PCE and then when it gets stuck head like heck for Mayo for the surgery. Hmmmmmm. (I wonder if she would go for that .....) besides, maybe it "wouldn't" get stuck .....
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 5/11/2008 8:21 AM (GMT -7)   
The first time I had the pill I had no problem.. My GI said hes not to worried about what he will find, but after reading some of your posts it makes me think.. I've been constipated for a few and I keep getting bloated..When it started my GI wanted to do a C-scan, now he wants to go back to the pill.. when I did the first pill, they found 4 sores..My GI said that was not bad.. Then he did a colonoscopy, and said he saw the crohn's at the end of my colon where it attaches to the small intestine.My question is how long does it take to get really bad. It has been a year and sense the last one and I've been getting worse all the time..But at the same time I want to know for sure..


Ne Ne
49 Female
Dx June 07 crohn's take asacol 2x3 a day , entcort 1 a day ,lotrel for HBP , omeprezole for stomach , potassium , one a day crohn's & colitis therapy , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/11/2008 2:32 PM (GMT -7)   
Inflammation eventually causes scarring. It is the scarring that causes the blockages that "could" make it difficult to pass the PCE. Most likely you are still quite safe to go the PCE route. On the other hand, if you have had really aggressive Crohn's who's to say how much scarring has occurred. Why not ease your mind by insisting on the dissolvable Agile Patency Capsule first?
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/11/2008 8:58 PM (GMT -7)   
I had one. Thats how I was DXed. Had no trouble with it, but at that time nothing stayed in me more than a few minutes anyway. I never did see it pass but doc said it did so it was still taking pics when it went.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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