GI appt Tuesday. I want a long talk!!

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dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 5/11/2008 5:06 PM (GMT -7)   
The last time I saw him, I was told I had bad scarring of my pancreas, and told to take an enzyme. Also told to stop humira
because of liver enzymes. I feel like I;m between a rock & a hard place. My crohns is still active and the prognosis of chronic
pancreatitis is not very good, or so I've discovered. I f I'm going to die of this disease, he needs to be more up front with me.
I know that sounds dramatic, but I'm so tired of everything not being clear cut. I need to know if I need to tell my family what
to expect, I need to know what to expect! In fact I need to know if I need "to live life like I am dying" (Tim Mcgraw)
Sorry to whine,but I can't talk to anyone else about this.

No need to answer anyone, Just needed to almost say it out loud. Thanks LOL.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 5/11/2008 5:26 PM (GMT -7)   
Vicki,  I would ask him exactly what you wrote to us.  Tell him to be upfront so you know what your dealing with.  If you can't take Humira, what are the alternatives he's suggesting?  It's no fun to not feel good and to feel like you are in limbo.  HUGS to you.  Sometimes in these types of appointments it's good to have someone go along with you, do you have anyone?  Take care. 

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/11/2008 5:35 PM (GMT -7)   
Hi Vicky I am listening .lol gail

CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 5/11/2008 5:48 PM (GMT -7)   
Don't be bashful. Sometimes you NEED that extra time. Good luck and God bless. (((hugs)))
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/11/2008 6:54 PM (GMT -7)   
Thanks for being there. I've never been morbid, even when diagnosed with crohns. I knew it was a chronic illness, but
always knew that it wouldn't kill me, unless I had a real big problem. But this chronic pancreatitis deal has thrown me
completely. When he first told me, my heart sank, I knew how hard life can be with your pancreas in trouble. What I
didn't know or expect was, how short it can cut your life, even if you do everything you can. It's so progressive. darn
it, I'm not even a drinker, they are usually the high percentage group for this.

I guess I'll get through this. I should be used to life throwing me a curve ball by now. Please know that having you guys
is the best thing that I could have had. I thank God that just over a year ago I stumbled onto this forum. Someone must
have been guiding me!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/11/2008 7:13 PM (GMT -7)   
Vicky,
I would definetly ask for the long talk with the doc. If he normally schedules you for a double booked 15 minute appointment I would call the office and ask to set up a consultation-tell them you have some questions and are going to need some extra time-then they can schedule a longer appointment.
SWj

ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 5/12/2008 5:05 AM (GMT -7)   
VIcky, I hope you get answers today, but ones that we all want to hear. Have you looked into consulting with a physician who specializes in pancreatitis? I don't even know what specialty that would be - internal med? GI? Also, if you're taking probiotics, check this link: http://firs***ch.jwatch.org/cgi/content/full/2008/214/1

Good luck today and keep us posted.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4101
   Posted 5/12/2008 7:28 PM (GMT -7)   
Good luck with your appointment. If you don't get all of your questions answered, tell the doc you need more time, or another appointment ASAP. It is really hard to hear bad news, but for me all the worrying when you don't know what is going on is worse! Let us know what you find out, and know that many of us are thinking of you and hoping for the best!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/12/2008 7:30 PM (GMT -7)   
endocranologist would probably be the right specialist though an internist might also treat this.

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/12/2008 8:20 PM (GMT -7)   
Thanks guys for all your thoughts, I will keep them in mind tomorrow. I'll let you know how it goes...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

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