New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/12/2008 1:36 PM (GMT -7)   
Yeah!!!!

I finally got a call from the GI doc about the Crohn's bloodwork. The bloodwork (IBD7) is negative for it being genetic!! Which means a lower likelyhood of severe problems. . . YEAH!!!

And . . . I won't have to start on the steroid (Entocort) unless/until I have another flare. So . . . YEAH!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/12/2008 1:39 PM (GMT -7)   
I am happy for you. Make sure you don't take this as permission to neglect the problem. The better care you take of yourself the better your outcome especially without the genetic component hanging over you.

PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 5/12/2008 4:59 PM (GMT -7)   
What is the IBD7 test? Is that the same as the ASCA test?
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff
Home now after being in hospital for 45 days
Canasa, Lialda, Vancomycin, Flagyl, Colestipol, Pred 80 mgs, Remicade (3rd infusion due 5/22/08), VSL#3, FloraStor
Still having problems, hoping for a remicade miracle
Need to get off the pred ASAP


jan2003
Regular Member


Date Joined Jul 2004
Total Posts : 92
   Posted 5/12/2008 7:26 PM (GMT -7)   

Hi, Rosie,

I was wondering when you'd get the results! - was that about a month?

I'm glad the results are negative. Did you get a copy of the report, with the actual numbers and ranges? I'm curious to know how yours turned out.

So, your GI doc is taking a "wait-and-see" approach with no meds for the IBD symptoms? I hope you're feeling better in that regard and if you do indeed have Crohn's, it's a mild case. From what I've read of your posts, you're really careful with your diet and your health, so I hope you stay in remission.

Take care,

Jan 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/13/2008 7:41 AM (GMT -7)   
Hey sis
I am so glad for you .........you sure deserve some good news EH.
keep us posted on how you are doing

Luvs
God Bless
Lyn/Sis
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE
 
   
 
                   
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 8:21 AM (GMT -7)   
Thanks skly . . . by "neglect" do mean ignore? No, I'll be right on it if/when I have another true flare. I have had some minor stuff perking around down there . . . but I'm never sure what is "normal" and what is a problem. But the doubled over pain won't go ignored. I'm filling the Entocort rx and will start it immediately with next flare. Thanks for the encouragement.

PV - the IBD7 is bloodwork that checks 7 markers of Inflammatory Bowel Disease. It is a bit controversial I think . . . because I had it run and then read all manor of comments pros and cons about the test. It is only done at one lab in California (Permetheus) . . . .but my Cleveland Clinic GI felt like it was a good tool in deciding how aggressively to treat my issues. I'm not sure what the ASCA is . . . so I don't know how to compare it. We find good information on lots of blood tests at labtestsonline.org . . . but I'm sure something like the IBD7 are not included there. I hope things improve for your husband and you. I know he's had a huge battle and you along side him. Like I've said in other posts, I believe that the care-taking partner has it harder than the chronically ill person. I tell my hubby that ALL the time. He doesn't believe me . . . but its true. I don't know what I'd do w/o his love and support. Thanks for being so dedicated to your hubby and his care!

Jan . . .yes, it's a full 4 weeks. YES I do want to get a copy of the the blood work and the biopsy results for my records. I am REALLY comfortable with the wait and see. I think if I'm going to use steroids (Entocort) I will feel much more comfortable about it if I start it during a flare . . . with a really definite need to use it. I know its a mind game . . . but I'm also waiting to see if stopping the IBUPROFEN will end/lessen the GI flares. I'm not sure ibuprofen is the culprit because I did have my worst flare (last May) after a 6 month break from anti-inflammitories. . . . so this gives me a chance to see for sure if ibuprofen is involved. Thanks for the encouragement!

((((( Lyn ))))))) . . . thanks sis . . . now I want YOU to get some good news!! I hope you are feeling better AND adding some extra days/weeks' rest before you tackle your big project! I'm thinking of you lots!! and I mentally place you in God's mighty palm. I've got a little picture of you curled up, resting in His palm, all comfy, safe and protected!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/13/2008 8:22 AM (GMT -7)   
THanks sis
Wow do I feel comfy.......

Love and God Bless

Sis/Lyn
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE
 
   
 
                   
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 8:44 AM (GMT -7)   
LOL . . . It's the best place to be!!!

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 5/13/2008 4:12 PM (GMT -7)   
Oh yes, you've really gotta pay attention to even that small stuff I've learned. I let the joint pains and stuff go, and BAM found myself in the middle of a huge flare. Never ignore the small stuff. LOL

Glad to hear our blood work turned out good though!!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 5/13/2008 4:30 PM (GMT -7)   

Rosie,

That is great news and I think it calls for a cup of tea.......  :)
I am very happy for you and remember I am always here to support and brew the tea if you need me to.

Hugs galore,
Kitt

 
Kitt, Moderator: Anxiety ~ Panic 
Not a mental health professional of any kind
It is health that is real wealth and not pieces of gold and silver.~Mahatma Gandhi~
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 5:33 PM (GMT -7)   
Oh Kitt . . . thanks for the tea!! Its great!! Thanks for your help too!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 5:35 PM (GMT -7)
There are a total of 2,736,123 posts in 301,354 threads.
View Active Threads


Who's Online
This forum has 151451 registered members. Please welcome our newest member, YoEve.
291 Guest(s), 11 Registered Member(s) are currently online.  Details
bluelyme, YoEve, tickcheckguy, Sarebear89, porkysgal, astroman, NiceGuyEddie, rocckyd, maddysmom2015, myrawens, julymorning


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer