Thanks skly . . . by "neglect" do mean ignore? No, I'll be right on it if/when I have another true flare. I have had some minor stuff perking around down there . . . but I'm never sure what is "normal" and what is a problem. But the doubled over pain won't go ignored. I'm filling the Entocort rx and will start it immediately with next flare. Thanks for the encouragement.
PV - the IBD7 is bloodwork that checks 7 markers of Inflammatory Bowel Disease. It is a bit controversial I think . . . because I had it run and then read all manor of comments pros and cons about
the test. It is only done at one lab in California (Permetheus) . . . .but my Cleveland Clinic GI felt like it was a good tool in deciding how aggressively to treat my issues. I'm not sure what the ASCA is . . . so I don't know how to compare it. We find good information on lots of blood tests at labtestsonline.org . . . but I'm sure something like the IBD7 are not included there. I hope things improve for your husband and you. I know he's had a huge battle and you along side him. Like I've said in other posts, I believe that the care-taking partner has it harder than the chronically ill person. I tell my hubby that ALL the time. He doesn't believe me . . . but its true. I don't know what I'd do w/o his love and support. Thanks for being so dedicated to your hubby and his care!
Jan . . .yes, it's a full 4 weeks. YES I do want to get a copy of the the blood work and the biopsy results for my records. I am REALLY comfortable with the wait and see. I think if I'm going to use steroids (Entocort) I will feel much more comfortable about
it if I start it during a flare . . . with a really definite need to use it. I know its a mind game . . . but I'm also waiting to see if stopping the IBUPROFEN will end/lessen the GI flares. I'm not sure ibuprofen is the culprit because I did have my worst flare (last May) after a 6 month break from anti-inflammitories. . . . so this gives me a chance to see for sure if ibuprofen is involved. Thanks for the encouragement!
((((( Lyn ))))))) . . . thanks sis . . . now I want YOU to get some good news!! I hope you are feeling better AND adding some extra days/weeks' rest before you tackle your big project! I'm thinking of you lots!! and I mentally place you in God's mighty palm. I've got a little picture of you curled up, resting in His palm, all comfy, safe and protected!!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
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