So I was doing real well....

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HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 5/12/2008 5:15 PM (GMT -7)   
Hi all you new folks since I last wrote.  Miss all you "long time" guys and your sense of humor.  Well, of course I was away becuase I was feeling good even though my company downsized (I am the only employee left in my town and that feels precarious), I traveled for work a lot in the last month and I was a baking fool under major time limits.  Huge cakes, dessert for 75 people, 300 mini desserts and then 75 mini pies all within a month while traveling for work.  I guess it has all caught up with me.
Thinking I have a partial obstruction.  Tossed cookies (literally! and a few other things) Thursday night in one of those "please just let me die" nights.  My guts feel luck a truck hit me....hmmm I can hear a major expressway from my bathroom?????   So maybe the guts are just sore from a night a Heave Ho (no pirate patch included).  That's what I chose to believe.
 
Right now I am downing the Ensure and Gatorade (I am so sick of Ensure, but it is the best option for me).  So our best friend was sleeping over Thursday night in the room next to our bed/bathroom.  He never heard a thing he says.  My poor husband wishes he was so lucky (he barfs if he even hears someone yakking and I had to send him from the room to keep from cleaning up 2 messes)!  I promised both caring men (mostly my loving husband) that if my guts were still too sore to walk without supporting them with my arms by Wednesday--I would call the GI
Ha...GI got to me first with a reminder call that I have my 6 month appt this Wednesday!  I had completely forgotten.
 
So...here's a ? amongst the rambling.  GI REALLY REALLY REALLY REALLY wants me on remicade and would possibly settle for Imuran.  I still dont want to go there.  So how do I get all better in 2 days tongue   Seriously...any recommendations on very logical arguments to make for not taking new drugs when you go in with a flare?  Do I counter with a willingness to try a short stint of Pred even though I know he practically never prescribes it and I am not a big fan (keeping in mind that I have never had to take Pred for longer than 2 months in a stint)?
 
thanks for listening.....promise I'll try to be around more as the workload decreases
 
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/12/2008 5:43 PM (GMT -7)   
Hey the last time I did not want to take something the doc suggested I doubled up on my pred two days before the appointment. Told her about it-asked what she wanted me to do in that same situation and then told her I was feeling so good I wanted to try to get off the pred. She looked at me like I was nuts said you can take double pred if you want to but it means you need the mtx. Then she told me to go ahead and try the pred taper and to call her when I was ready for the mtx-she handed me the lab sheet as I was leaving and said when your ready have the labs done and give me a call.
I was on the phone six days latter telling her she was right-I suffered for two weeks just to prove the doc right.

Maybe your doc is wrong and you aren't ready for stronger meds yet but you might want to marshal a more logical arguement then the one I made.

When I asked my doc later she admitted she only let me try the pred taper so I could demonstrate to myself I needed the meds. I think what she said was I just gave you enough rope to hang yourself.

Good luck getting well enough in a few days to fool your doc. Hope it works better for you than it did for me
Sj

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/12/2008 6:08 PM (GMT -7)   
I would do a liquid diet until then making sure you get all the nutrients you need.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 

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