Pain still after Resection

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Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/12/2008 8:15 PM (GMT -7)   
I had a ileocolic resection done earlier this year for a stricture.  I had suffered it for months and the time had come to have it done.  Since having the surgery I have still been in pain.  My bowels have been all over the place but most have been loose, soft and easy.  Today I had three bowel movements the first two were very lose and the last one was a mix of liquid and soft.  The pain is more like cramp in the lower right quadrant and it leads to the belly button.  So I did what most Crohn's patients do start on a liqiud diet just to see.  I am beginning to think that maybe I am over reacting....I had a resection and the doc is sure that they got it all...but the pain has never gone away.  I wonder has anyone else had this happen?  Can crohn's start up within three months of having a resection?  Should I go along with my doctor and wait to see how I feel in August before he does anything? 
 
By the way since having my surgery I have had a slight bought of Uveitis and my Ankylosing Spondylitis has flared up.  With this I have joint pain in my knees, elbows, hands and fingers. 
 
I realy thank you all for helping me here.

Crohn's Girl
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/12/2008 8:59 PM (GMT -7)   

Oh my gosh, this is unbelievable...I joined this forum right before you posted this because I am having many of the same problems and was getting ready to post this topic myself!!!  I am literally crying reading your posting because now that I see someone else is having similar issues, I don't feel like I am crazy. I had my second resection on Valentine's Day (first was in 2000) and I am still in pain.  Mine is not a crampy pain.  It is more of a constant burning pain about 1" from my belly button.  The most positive thing that has happened since surgery is that I have not really had any problems with foods that bothered me before surgery, but I am still having 4 - 6 completely liquid bowel movements a day.  I have developed a fistula, which I haven't had to deal with for 15 years (3 years before I was diagnosed with Crohn's Disease).  For the past month or so, I have also had problems with joint pain in my knees, elbows, wrists, and fingers.  After surgery I lost about 10 pounds (probably about 40 pounds total including what I lost before surgery).  I gained 5 back, then lost it again, and have started gaining again within the past week.  I am still taking pain meds, about 1 - 2 a day, and I am really tired of the constant pain.  My surgeon ordered a CT, but didn't see anything that is surgical so he is turning me back over to my GI to figure out what is going on.  I see my GI later this week and can't wait!

With all that said, I feel your pain sad .  I don't think I would wait until August.  Seems like a long time to go when you're in pain.

Let me know if you find out anything and I'll do the same.

Post Edited (Crohn's Girl) : 5/12/2008 10:42:38 PM (GMT-6)


Bradlaugh60
New Member


Date Joined Apr 2008
Total Posts : 16
   Posted 5/12/2008 9:17 PM (GMT -7)   
Hi,
I recently had a resection on May 1st and also have several loose bowel movements per day wich from what I have read seems to be normal for this type of surgery and should last only 2 or 3 months.I can`t figure out why you are having the pain though,hope you both can find some relief soon.
Take care,
Michael

Crohn's Girl
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/12/2008 9:29 PM (GMT -7)   
Thanks Michael. I hope your recovery is going well.

I somewhat expected the loose bowel movements. I'm more concerned about the pain and fistual at this point.

Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/12/2008 10:30 PM (GMT -7)   
I thank you both....I don't want to wait to see what will happen...but the gastro feels that I should wait. I am going to see if I can push him and may have the way to do it. I was just wondering if I was the only one that this happened to. Every where I read about resections they never talk about it happening before a year is up and then they say that it not common.


Shoshanna

Post Edited (Shoshanna) : 5/13/2008 7:15:18 PM (GMT-6)


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 9:08 AM (GMT -7)   
((((((((( Shoshanna ))))))))))))) so sorry you are having such a hard time. With your AS acting up . . . it makes you wonder if you are having a gut flare as well. I'm sorry I don't know too much about the crohn's stuff yet, but wanted to wish you well. If you are uncertain about things, you should be able to call your doctor's office and talk to someone so you feel confident you aren't ignoring something that needs attention. Sometimes a short increase in meds can make a huge improvement.

Keep us posted!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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smile1967
Regular Member


Date Joined Jan 2008
Total Posts : 174
   Posted 5/13/2008 10:08 AM (GMT -7)   
I too had a resection in Feb. and have been experiencing on and off pain in my RLQ. It feels more like a throbbing pain a bit burning feeling, and very tender to touch. I saw my surgeon 2 weeks ago and he feels it is adhesion pain that I am having. Unfortunately it is not uncommon to have after surgery. He also wants to do the wait and see game, since I am not vomiting, have no fever etc. If of  course I start to have any other symptoms to call right away and he will order a CT. As I said, the throbbing pain comes and goes, some days are more tender than others and this past week I have been feeling good. Did your dr mention anything to you about it maybe being adhesion pain. I am so sorry you are feeling so awful and I hope you get some answers soon!
Shelley

kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 5/13/2008 11:23 AM (GMT -7)   
I had a resection in September, part of the ileum gone. I still have slight pain in RLQ, and its been over 6 months. The pain was pretty bad for a couple of months, and then it slowly started fading. I had a scope in March just to check and everything was fine, no active disease. My pcp just did an ultrasound yesterday to make sure my ovary wasn't the problem, it was fine. He called today and said it might just be an adhesion. He called in a script, Mobic, but I can't take it since it's an NSAID. Docs just don't always think, do they?!! Hang in there, the pain should lessen.
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07. Doc says no active disease, but flare-ups anyway. 11 year old son with IBS-C, on Bentyl.


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/13/2008 5:57 PM (GMT -7)   

Crohn's girl,

Is your burning pain more on the surface or more internal? 

After my resection, I had terrible burning pain below my belly button and in a few other spots on my abdomen.  It turned out to be nerve pain from the surgery.  It hurt to have clothing touch me.  I had to suffer with it because topless teaching is frowned upon, especially by females.

It took almost a year for it to go away completely.


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/13/2008 6:06 PM (GMT -7)   
I really thank you for you responces and will tell you that I am going to the GP tomorrow and the eye specialist. Have my appointment with my Gastro at the end of the month and in two more months the GI. I spent today on the LOO (think it is engraved with my name) had fifteen bowel movements that were so loose and watery. I also had a look at an old small bowel follow through and they may be some answers on there but will have to talk to the GP first.

Also earlier this year I moved from one city to the one that I am in now and I just realized that they don't have a copy of all of my tests. So I will have to get ahold of the last hospital and have them send me or transfer the results to the GP and my GI. I just never realized it. I am person that when I go to the hospital or a doctor I get a copy of the tests and blood work. The strange think is that I thought my old GI gave me copies of the ones done in the hospital.

Shoshanna

Post Edited (Shoshanna) : 5/13/2008 7:10:22 PM (GMT-6)


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/13/2008 6:09 PM (GMT -7)   
Dagger said...

Crohn's girl,

Is your burning pain more on the surface or more internal? 

After my resection, I had terrible burning pain below my belly button and in a few other spots on my abdomen.  It turned out to be nerve pain from the surgery.  It hurt to have clothing touch me.  I had to suffer with it because topless teaching is frowned upon, especially by females.

It took almost a year for it to go away completely.

I have been there done that as they say.  The pain is not a burning pain...it is a dull pain that is cronic and constant.  It hurts so much when stool is passing that point.  Today my stools are so loose and they haven't been this way for a long while. 

Shoshanna


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/13/2008 6:13 PM (GMT -7)   
AlwaysRosie said...
((((((((( Shoshanna ))))))))))))) so sorry you are having such a hard time. With your AS acting up . . . it makes you wonder if you are having a gut flare as well. I'm sorry I don't know too much about the crohn's stuff yet, but wanted to wish you well. If you are uncertain about things, you should be able to call your doctor's office and talk to someone so you feel confident you aren't ignoring something that needs attention. Sometimes a short increase in meds can make a huge improvement.

Keep us posted!

Blessings!

My Rhume and my GI agree that I am in a flare but it hasn't gone fully to CD.  AS and Uveitis are precursors to CD but I just have to wait it out till it flares up fully.  It may be good one day and bad another day. 
 
I have been there before many years ago before I started Remicade; but, I am not taking it now.  They have suggested that I shouldn't take again either seeing how the last year I was taking it I had pneumonia twice. 
 
Shoshanna

Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/13/2008 6:14 PM (GMT -7)   
Crohn's Girl said...

Oh my gosh, this is unbelievable...I joined this forum right before you posted this because I am having many of the same problems and was getting ready to post this topic myself!!!  I am literally crying reading your posting because now that I see someone else is having similar issues, I don't feel like I am crazy. I had my second resection on Valentine's Day (first was in 2000) and I am still in pain.  Mine is not a crampy pain.  It is more of a constant burning pain about 1" from my belly button.  The most positive thing that has happened since surgery is that I have not really had any problems with foods that bothered me before surgery, but I am still having 4 - 6 completely liquid bowel movements a day.  I have developed a fistula, which I haven't had to deal with for 15 years (3 years before I was diagnosed with Crohn's Disease).  For the past month or so, I have also had problems with joint pain in my knees, elbows, wrists, and fingers.  After surgery I lost about 10 pounds (probably about 40 pounds total including what I lost before surgery).  I gained 5 back, then lost it again, and have started gaining again within the past week.  I am still taking pain meds, about 1 - 2 a day, and I am really tired of the constant pain.  My surgeon ordered a CT, but didn't see anything that is surgical so he is turning me back over to my GI to figure out what is going on.  I see my GI later this week and can't wait!

With all that said, I feel your pain sad .  I don't think I would wait until August.  Seems like a long time to go when you're in pain.

Let me know if you find out anything and I'll do the same.

Make you a deal we are both new so lets keep in touch and maybe between us we may figure this out. 
 
Shoshanna

Crohn's Girl
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/13/2008 9:41 PM (GMT -7)   
Dagger said...

Crohn's girl,

Is your burning pain more on the surface or more internal? 

After my resection, I had terrible burning pain below my belly button and in a few other spots on my abdomen.  It turned out to be nerve pain from the surgery.  It hurt to have clothing touch me.  I had to suffer with it because topless teaching is frowned upon, especially by females.

It took almost a year for it to go away completely.

Dagger,
It seems to be more internal.
That sounds miserable.  Luckily, I have not had that problem.
Hope all is well now.


Crohn's Girl
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/13/2008 9:50 PM (GMT -7)   
smile1967 said...
I too had a resection in Feb. and have been experiencing on and off pain in my RLQ. It feels more like a throbbing pain a bit burning feeling, and very tender to touch. I saw my surgeon 2 weeks ago and he feels it is adhesion pain that I am having. Unfortunately it is not uncommon to have after surgery. He also wants to do the wait and see game, since I am not vomiting, have no fever etc. If of  course I start to have any other symptoms to call right away and he will order a CT. As I said, the throbbing pain comes and goes, some days are more tender than others and this past week I have been feeling good. Did your dr mention anything to you about it maybe being adhesion pain. I am so sorry you are feeling so awful and I hope you get some answers soon!
Shelley
Glad to hear you've been feeling good this week.  Hopefully that will continue.
 
My surgeon did not mention adhesion pain.  I think he just went ahead and did the CT to rule out surgical problems so he could turn me back over to my regular doctor.  I see him later this week and I plan on asking about this.
 
Thanks.

Crohn's Girl
New Member


Date Joined May 2008
Total Posts : 5
   Posted 5/13/2008 9:57 PM (GMT -7)   
Shoshanna said...
 
Make you a deal we are both new so lets keep in touch and maybe between us we may figure this out. 
 
Shoshanna
Sounds like a good idea. 
 
I am really glad I found this forum.  Everyone has been so helpful. :-)
 
Christi 
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