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sunny017
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 5/13/2008 10:43 AM (GMT -7)   
It seems as though a barium swallow aggravated my Crohn's.  There was lots of gurggling etc., I'm sure you all know the routine.  My question is this....my doctor put me on Cipro for 10 days.  A couple of days into the pills, I can't believe the difference.  Is the Cipro a one time event or is it a maintanence item?  I currently take Pentasa and 6MP.
 
I have to call my doctor next week buy any thoughts would be greatly appreciated. 
 
 I wish everyone a "feel good" day! :-)
 
 

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 5/13/2008 11:14 AM (GMT -7)   
When I've taken Cipro it's been for a couple of weeks. I had such nausea that I didn't want to continue it, but it did seem to help with some of the other Crohn's symptoms.
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


ohio84
Regular Member


Date Joined Feb 2008
Total Posts : 35
   Posted 5/13/2008 11:29 AM (GMT -7)   
They put my daughter on it 3 weeks ago after surgery and I was under the understanding that it is an antibiotic that they gave her so she did not get an infection after surgery.

bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 5/13/2008 11:46 AM (GMT -7)   
My GI likes a combo of Cipro and Flagyl and considers them maintenance meds.  He wanted me on them indefintately, but between the antibiotics and the Pred I had the Yeast Infection That Would Not Die, so I managed to talk him out of the antibiotics.  Also, I want those available to me later if I need them, and over use will make them ineffective.

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 5/13/2008 1:16 PM (GMT -7)   
Are you taking probiotics while on these antibiotics?

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 5/13/2008 6:52 PM (GMT -7)   
There is some belief that Cipro has anti-inflammatory properties, and it has been used one week a month for Crohn's in addition to the other traditional Crohn's meds. I believe Dr. Hanauer from U of Chicago wrote an article about it.
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/13/2008 7:23 PM (GMT -7)   
DO NOT use it as a maintenance. a few days/weeks/months is fine. the same with flagyl. remember, cipro is a powerful antibiotic. it used to fend off anthrax, so once you develop cipro resistant bacteria in your system (which will only happen through long term use, like over a year on it, which happened to me) you're out of luck and your only defense against anthrax is self inoculation via sound waves. you can order this type of treatment via the web actually. docs wont tell you about it cos it is a "natural cure" and is relatively cheap. if you google it you'll know what i am talking about. i recommend getting the "persistence of time" or "state of euphoria" strains. basically anything 1990 or earlier works. the later stuff was pretty weak.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/13/2008 7:23 PM (GMT -7)   
I am on Levaquin long-term. It is a cousin to Cipro. Levaquin also works well for cellulitis, which is a problem for me.

Bektold -- I was on a combiniation of Flagyl and Levaquin for about 3.5 months when I was very ill. Neither was enough alone. Together they saved me!! Unfortunately, Flagyl now causes peripheral neuropathy (tingly toes and super-sensitive feet). So sad because it works great!!

sunny017
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 5/14/2008 4:57 PM (GMT -7)   
Thank you everyone for all of the information.  I too would like a "fall back" and do not want to over use it.  I am very grateful that it work with little side effect.  Again, I can't thank everyone enough for sharing....it means alot. tongue

mtlsweetie
Regular Member


Date Joined Nov 2003
Total Posts : 28
   Posted 5/14/2008 5:15 PM (GMT -7)   
My specialist originally gave me the Cipro for 1 month he had states it makes the pentasa react more. Basically i would take cipro maybe every 2 months for a week and I then got on probiotics and it decreased me taking the cipro. But when for a long term i do not take a probiotic I notice that I need cipro. So i would suggest to take a probiotic.
Natalie :)


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 5/14/2008 6:09 PM (GMT -7)   
I love Cipro too. My doctor will usually only put me on it for 2 weeks at a time when I have a flare. It works great for me!!

Tara28
Regular Member


Date Joined Apr 2005
Total Posts : 362
   Posted 5/18/2008 8:02 PM (GMT -7)   
I was on cipro for 4 years.
What I was not told was to avoid caffeine while on it, I love coffee and coke zero and cipro actually lets the caffeine pool in your system. It pooled in mine to the point where i thought I was having a heart attack. Turned out to be a panic attack and it lasted months a, the hopped up super anxious feeling.

I went off Cipro as soon as I found out I was pregnant and havent been on it since.
30 years old, dx with Crohn's in 1998. Currently on Imuran 100mg/day, Flagyl 1000mg/day
and Cipralex 10mg/day for anxiety. Just got off Cipro which was my drug for last 4 years.
Perianal fistula, and 2 more suspected. Crohn's only at end of colon, cecum. Remi and asacol did NADA.


sunny017
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 5/19/2008 6:40 AM (GMT -7)   
Thank you everyone for the information.  Well, about 6 days after being off the Cipro, the side started again and now so did everything else!  Just when you think something is going to work......
 
No, I wasn't taking probiotics.  However, everything that I am reading here indicates that I should be on a daily basis.  I am trying to learn not be a myrtr.  I am finding it is important to stop things before they get too far.  I am trying to be proactive instead of reactive with this.  I too have stopped all the meds (pentasa, 6MP) because "I am doing fine."  Only to come to learn the idiot I am.....its the meds that are keeping me fine.
 
I appreciated everyone sharing their struggles and wish everyone a feel good day!

crystal1
New Member


Date Joined May 2008
Total Posts : 3
   Posted 5/19/2008 8:09 AM (GMT -7)   

I had the same issue with the barium~ ended up back in the hospital it had hardened inside like cement! hopefully yours will pass.

I also took Ciprol several times for 10 days - watch out if you are out in the sun while taking it, I got a terrible sun burn.

Good luck! :-)


sunny017
Regular Member


Date Joined Apr 2008
Total Posts : 26
   Posted 5/19/2008 11:07 AM (GMT -7)   
Thanks about the sun....I found out a little too late!

Crohn's Ileitis
Meds: Pentasa
         6MP
         Aciphex

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