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Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 5/13/2008 1:21 PM (GMT -7)   
So, looks like I'm going to be okay. I got a GOOD LONG lecture from my doctor today about reading online, apparently as he tells me, I have no business looking up stuff I can't understand. LOL Smart man! My blood tests aren't showing hereditary angioedema. Just very slightly low because my immune system is messed up and inflammed from the Crohn's flare. But no where near anything being serious. So that was wonderful news. He still feels my lip swelling and joint problems were from the flare, and it makes sense.
 
He seemed a little irritated that I went over his head to my Crohn's doc, but um yeah that's what I'm supposed to do in a flare! So I see my GI on Thursday to see how long he wants me on this lovely Pred. I'm doing pretty well on the pred, just the mood swings are bad. With all the fear of an extra serious health problem, I was not the person to be around this weekend. But I can deal with the regular mood swings (I guess!), just as long as I don't have anymore swelling!
 
So thanks again for all the prayers, looks like they worked! Yes, Crohn's flare sucks, but I couldn't handle having anything else seriously wrong with me! :)
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


Bible
Regular Member


Date Joined Jul 2007
Total Posts : 188
   Posted 5/13/2008 2:05 PM (GMT -7)   
Jen,
When I was on Pred. I had very serious swelling and fluid retention. The doctor even mentioned Congestive Heart Failure at the time. But, once I dropped down on Pred. it went away and I am fine!! So goodluck to ya!!!!

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/13/2008 3:19 PM (GMT -7)   
Hopefully I won't get that too! My swelling was actually my foot, thumb, hand, and then my lip got HUGE. It was angioedema, just not the scary hereditary kind. Guess it's an odd presentation of Crohn's. But my sed rates were through the roof, and I was just flaming all over the place! I guesss that's what scared me so much, having such odd symptoms. I sure hope things get just better from here!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/13/2008 4:00 PM (GMT -7)   
(((((((( Jen ))))))))) Great news Jen . . . . doc doesn't need to be so defensive! sheeeze!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/13/2008 4:10 PM (GMT -7)   
LOL Yeah I know, he chewed me out pretty good. My husband was happy about it though. LOL Guess I drive him nuts with my internet "trying to diagnose myself" stuff. LOL But you know when they take their time giving you info it's hard to just wait around and see. But I guess I need to start doing that, instead I just upset myself!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/13/2008 6:31 PM (GMT -7)   
I think its good to be educated. How else will you know if they might be wrong lol!! I have a feeling C2 won't like your doctor lol.
26 Year old married female law student.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid.  For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn.  I also have bad acid reflux and have been on PPI's since age 13.  I have been through prilosec, prevacid, and nexium.  Currently I am on Protonix in the morning and Zantac at night.  I alos take a birth control pill to allow some fun in my life.
 
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/13/2008 8:16 PM (GMT -7)   
LOL Well I normally agree. I'm my own advocate after all. Since it took these doctors 10 years to properly diagnose me, I tend to be wary of what they say. But I think there is a line we can cross, if we don't know what were reading, or apply something to ourselves that isn't so. You can effectively scare the daylights out of yourself. I think that's what I did this time. But normally, yes, I read and plan to keep it up. Just have to remember that I don't have MD behind my name, and I don't know everything. Shucks. LOL


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/13/2008 8:29 PM (GMT -7)   
I have always been lucky and until I started to my current GI this year I have been able to suggest anything to any of my doctors. Now I have train him to see it my way. Though, he did say to me that I was more aware of how to deal CD than most of his patients. So don't think that it will be to bad. I hope; because, I have laid the ground work.

Soshanna

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