surgery or not

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jersey
Regular Member


Date Joined Nov 2004
Total Posts : 89
   Posted 5/13/2008 9:31 PM (GMT -7)   
    Hello, I was just recently in the hospital for a partial blockage. I haven't had to have surgery at all yet. I have had crohns for 7 years that i know of. They got my blockage undone with steroids, but did a small bowel and told me i have such narrowing where my small intestine joins the large from scarring that it might have to be removed. I have 2 crohns drs that are partners. One wants me too keep going in to see him taking every med. I was just on remicade. It wasn't working. Now he wants me to try humira. He doesn't want to do surgery if at all possible. The other one thinks that with all the narrowing so bad i might not really have a better alternative. I do not want surgery either, but was just in hospital in december for same spot. I am tired of feeling awful and the hospital visits r getting closer and closer. I was just wondering what anyone elses thoughts would be on this. And if i do have the surgery how long does it take to recupperate and all that.

camjames
Regular Member


Date Joined May 2006
Total Posts : 229
   Posted 5/14/2008 1:17 AM (GMT -7)   
I think if I was in that case, I would make a deal with myself. I would try the humira first, but if you don't notice any fairly significant improvemnt after awhile...then I'd go under the knife. Hopefully they only have to remove that rather small portion of your intestines, and hopefully you'll be 90% symptom free afterwards. I had a resection, and they are totally worth it if you are that bad off. Probably the most difficult part is being able to take 2 months off work or school to do so. You'll probably be in the hospital for 2 weeks, then after you'll basically be recouperating at home regaining strength for another month and a bit until you are totally normal again. So you'll be able to return to most jobs after 2 months, or if you work at home on a computer, then 1 month or so. The pain of the surgery is no where near the long term struggles of constant crohn's symptoms if they are bad enough. Not to mention, even as your recovering in the hospital, you'll feel releived the surgery is over, and good days are ahead. Thats how it was for me. I got about 3-4 years of feeling fantastic afterwards. Of course, the only bad thing is that once they cut it out, you never get it back.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/14/2008 12:46 PM (GMT -7)   
Hi Jersey With 2 different opinions going on with your Dr. I am sure it is a hard chioce . How long have you been not good ? I just want to say that in my case I didn't have a choice and that the operation wasn't as bad as I thought it would be. Just don't keep waiting until your having D in your sleep or you get too weak. I was very weak by the time surgery happened.If you go the Hum. route just don't wait forever to get the surgery if it doesn't help. Meds weren't opening mine but I was on Pred. Only can say good luck. I want you to know that I am alot better now but not sure how long it will last .lol gail

ajz
Regular Member


Date Joined Apr 2008
Total Posts : 21
   Posted 5/14/2008 3:21 PM (GMT -7)   
 
Jersey,
 
Your story sounds exactly like mine !  I had the same thing happen. I have had Crohns for 15 years and within the last 3 years i was on remicade and then humira.  I kept obstructing from all the scar tissue that developed in my ileum and colon.  Like you, i kept using steroids to get over them but ultimately I found myself obstructing again. I saw the CT scans myself, there was no denying how narrow my bowel had gotten.  On April 7th, I had my first surgery, a resection.  The recovery the first 2 weeks was a little rough. Week 3 got better, and week four was even better. I am doing well and eating and drinking and feeling good. I was very resistant to surgery and questioned my decision right up until they put me to sleep.  I know there are things that could go wrong, but for right now, my life is so much better than it was.  I guess my advice is to keep an open mind.  It is a scary decision, I know. Take all the time you need to make it.  Hope you feel better.
 
ajz
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