Newly diagnosed with Crohns

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softballfan
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 5/14/2008 2:32 PM (GMT -7)   
I just got a call from my son's doctor to inform me that that capsule study showed ulcerations in the small intestines and that he has Crohns.  He was diagnosed with systemic juvenile arthritis at age 12, and apparently once you have one auto-immune disease, it is not uncommon to get another.  This is the case here.  He lost a lot of weight very quickly and got terrible mouth sores plus the many trips to the bathroom.  Poor kid.
 
I know a lot about arthritis and now it looks like I will need to learn about Crohns.  She wants to put him on humira or remicade.
 
Does anyone know specific information about exactly what it means to have ulcerations in the small intestines?
 
Thanks for the help
 
 

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 5/14/2008 2:38 PM (GMT -7)   
Welcome! I'm sorry to hear your son was diagnosed with this awful disease. A lot of people here are on Humira or Remicade, and will be able to give you lots of info on them. I'm still on the steroid point of treatment myself. Arthritis and Crohn's Disease really does seem to go hand in hand. I have joint and swelling problems from the Crohn's Disease as well.

Ulcertaions in the small intestines is pretty much what Crohn's is. It mainly goes after the small intestines, causing inflammation and ulcers. Mine are located where the small intestine and large meet up. I've had a really bad bleed from an ulcer in there. No fun at all.

Hope your son starts feeling better and getting some good treatment going!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


ajz
Regular Member


Date Joined Apr 2008
Total Posts : 21
   Posted 5/14/2008 3:08 PM (GMT -7)   
 
softbalfan,
 
I am sorry to hear about pur son. I was diagnosed at 14 and unfortunately I remember it all too well. To address your question, the intestines, which are essentially hollow tubes, are lined with cells that help us absorb the food we eat. To protect us bugs we may consume with food, the intestines also have a lot of immune cells. In Crohns disease, these cells become over active and cause inflammation. The inflammation results in damage to the cells that line the intestine which causes holes and pits in the intestines which are known as ulcerations.  Ulcerations allow bugs in the intestines, the majority of which are normal residents, enhnaced contact with immune cells and the inflammation gets enhanced.  One of the agents that causes inflammation is cytokine called TNF which is blocked by both Remicade and Humira.  I have been on Remicade and did very well on it for a number of years.  Remicade is admistered IV according to a schedule set by your doctor at an outpatient facility.  Overall, not a major inconvenience.  Humira is given by injection and can be done at home in few minutes once your doctor shows you how.  Given that your son is young and missing school can be frustrating, humira may be more convenient.  You should discuss that with your doctor. 
 
I hope your son starts to feel better.  All the best.
 
ajz

softballfan
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 5/14/2008 3:42 PM (GMT -7)   
Thanks for the helpful information. Do the ulcerations heal or once you have them, do you always have them?

ajz
Regular Member


Date Joined Apr 2008
Total Posts : 21
   Posted 5/14/2008 4:57 PM (GMT -7)   

 

Yes, ulcerations can heal if the inflammation is brought under control.  But, it does take some inflammation free time for that to happen. 


Brig
Regular Member


Date Joined Apr 2008
Total Posts : 33
   Posted 5/14/2008 5:38 PM (GMT -7)   
I was told by my gastro that ulcerations can heal but may not and was told by my regular doctor that ginger and rosemary are known to help heal them. I drink a little slippery elm before I eat a meal as it line the digestive tract though your son probably isnt eating much at all at this stage.

LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 5/14/2008 6:18 PM (GMT -7)   
I'm sorry to hear your son was hit with this disease!! I just found out that I have Inflammatory Arthritis due to the Crohns. So like your son, I'm dealing with both. I had a few Remicade treatments in the past but I got real sick from one of the treatments and it landed me in the hospital for a few days. But I do know alot of people who can tolorate it well. I have not had to go on Humria but my doctor is a little leary of trying it with me since I couldn't handle the remicade. I have pretty much been drug free with no major issues until I had a flare last week. I'm on Cipro until next week. He is also going to put me on something else to help with the arthritis but I'm just not sure what yet.

Hang in there with your son. Its not a fun disease but once they find what will work for him, I'm sure he will start feeling better soon!!

softballfan
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 5/15/2008 6:29 AM (GMT -7)   
LBJ,
I hope you feel better soon. Where is your arthritis? It's bad enough to have one of these autoimmune diseases, so having to deal with two of them is extremely difficult. I hope you feel better soon.
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