HUMIRA ( side effects)

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Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 5/15/2008 7:43 AM (GMT -7)   
eyes I was just wondering if anyone has had side effects from the humira and when did it happen??? I've been on humira sense Feb and it seems or I think I'm having side effects from it.. Or I have something else going on. I took my shot on Mon and the next morning I ended up with the shakes, my blood pressure was going up and down, headaches, and my sinus go crazy. And yesterday my face looks and feels like I have a bad sunburn. Has anyone else had these problems after so long (three and half months). confused




Ne Ne
49 Female
Dx June 07 crohn's take asacol 2x3 a day , entcort 1 a day ,lotrel for HBP , omeprezole for stomach , potassium , one a day crohn's & colitis therapy , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 5/15/2008 8:41 AM (GMT -7)   
Hi,yes I have had some of those symtpoms. I find that Nasonex and plain ole saline   drops helps with my sinuses,I sometimes get headaches,but honestly,it's mostly at work,so not sure if it's Humira related or not. I sometimes get a rash,I talked to my GIand a Humira rep and that is actually an "outcome",than reaction for most people. My face does get flushed at times,too.
Did you take your blood pressure? Hoe high,how low?? Sorry,that's the nurse coming out in me tongue
Sometimes I get shakey/hot,but I did that before Humira.
 
Good luck,hang in there!! :-)

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 5/15/2008 5:31 PM (GMT -7)   
I also started on Humira in Feb 08.  I have a few mild side effects that I belive is from Humira.  I have crazy dreams the first few nights after my injection.  I have very mild headaches that do not last very long.  My chest is very red like I am sunburned.  Also I have night sweats occasionally.  I'm not sure if that is the Humira or where I am coming off of prednisone.

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 5/15/2008 5:50 PM (GMT -7)   

Hi,

My son just took his second shot of Humira, and so far the only thing we 'think' might be a side effect is sneezing. He also has some nasal congestion. The problem is that we live in an area known for allergies and have been having high winds which of course just stirs stuff up even more. Not sure if it's the Humira or just the weather.

 


Terri
 
_________________________________________________________________________________
Breast Cancer at 37; bilateral mastectomy with reconstruction.
Colon resection 2004; Sub-Total colectomy September 2007 for colonic inertia - didn't work.
Son (HLA B27 positive) diagnosed with Crohn's at 17 (now 21). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups. Recently diagnosed with ankylosing spondylitis - now on Humira.
Husband HLA B27 postive with ankylosing spondylitis and psoriatic arthritis.


Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 5/15/2008 7:37 PM (GMT -7)   
Well, Night Sweats, Sinuses, Allergies and Red Flushed Face or I look sunburned. Been on Humira a month and a half.

Ne Ne
Regular Member


Date Joined Apr 2008
Total Posts : 243
   Posted 5/15/2008 8:33 PM (GMT -7)   
Crohn'snme, You sound just like me but, it started with sinuses the first month, then it went to headaches, and night sweats, and now this month its red flushed face. How long does it last?? I called my GI doctor and they didn't know it could take this long for someone to get the side effects, But I call the number on my humira and they said that it could take some people longer to get the side effects..


Ne Ne
49 Female
Dx June 07 crohn's take asacol 2x3 a day , entcort 1 a day ,lotrel for HBP , omeprezole for stomach , potassium , one a day crohn's & colitis therapy , calcium & Vit D , lomotil for lose stools , tramadol for pain , started humira in Feb 08


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 5/15/2008 9:36 PM (GMT -7)   
Man, I'm thankful (and a wee bit surprised!) that I haven't had any side effects at all.

Been on it over a year.

Mellie
Regular Member


Date Joined Mar 2008
Total Posts : 110
   Posted 5/16/2008 4:03 PM (GMT -7)   
Staci, I started getting crazy graphic nightmares after starting it. I don't sleep well...CD symptoms better tho
Diagnosed with Crohns/Colitis in 2004. Currently taking Azulfidine 500 mg/3 x 3 day, Synthroid. Have had joint complications such as pyroderma gangrenosum in ankles as complication of IBD. Started Humira March 2007


potatoqwn
Regular Member


Date Joined Jan 2006
Total Posts : 355
   Posted 5/17/2008 10:33 AM (GMT -7)   
Nope, not one of those symptoms at all. Sorry you are having them. I would certainly call the Humira number and ask them.

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 5/18/2008 6:07 PM (GMT -7)   
Mellie, I only lose sleep the first few days after my shot. I suppose its a fair trade because my CD symptoms are alot better.

mmaria
New Member


Date Joined Oct 2007
Total Posts : 4
   Posted 11/29/2008 7:06 PM (GMT -7)   
Hello this is my second time being in hear i have pancolitis and im on humira since the end of june this year. i have been haveing a rash behind my ears and in my belly an also the the line of my but. when i was on remacaide i also had a rash but it was only behinde my ears and on my head. i am also taking ativan for anxiety,taking benadryl 25mg for sleeping,for headache ibuprofen when really need to,when really cant sleep take trazodone half of 50mg. i have no more meds to control my colitis none work for me only the humira. sometime i get shooting pains in my leg and arms bad. i told my dr and he said it shoulg go away just wait an see. i went back to see him and told him i get the shooting pains still but not bad i also go those shooting pains when i was on remacaide. does anyone now if there is more meds out the for colitis? i hope so. it really sucks nowing that there is no meds yet. i might have to be the pig a test the new ones.

randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6050
   Posted 11/30/2008 3:50 AM (GMT -7)   
me neither, just a bit of burning on injection, , well ok a lot of burning, but nothing else so far.. 3 months
randynoguts 



     http://www.geocities.com/randynogutsweb/


Curly9878
Regular Member


Date Joined Apr 2007
Total Posts : 165
   Posted 11/30/2008 7:05 AM (GMT -7)   
I gained a bunch of weight but the main problem I had was EXTREME fatigue... I have been off all meds for a few weeks and havent felt this well in ages!
28 Yrs
Michigan
Newly diagnosed with Crohns


antsawol
Regular Member


Date Joined Nov 2008
Total Posts : 20
   Posted 1/3/2009 7:55 PM (GMT -7)   
I just got out of the hospital after about 10 days. I couldn't stand it anymore. Doctors ran ever test posible, and came up with nothing. I think I found a doctor that is willing to follow this through and figure out what this is. This is my second day home, and can already feel the burning in my arms, hands, and feet. Before I went into the hospital, I could barely walk my feet hurt so bad. I couldn't wear Tee-Shirts because the cloth felt like sand paper on raw skin.
  • UC 15 years - Colazal
  • pneumothorax 2x left side


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 1/3/2009 8:31 PM (GMT -7)   
I developed drug induced lupus while on Humira. I had a severe reaction that laid me out for almost 3 weeks. One year since stopping Humira and I still have lupus.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 1/3/2009 9:10 PM (GMT -7)   
I'm the same as Ides, and I'm now confirmed as a lupus patient. Now this isn't intended to scare you, but I wanted you to be aware.
A facial rash, or sunburn looking rash can be a sign of drug induced lupus. So I would get your doc to run some blood work, to check
your ANA levels, just to be on the safe side...
It's probably not connected, but I rather you were safe than sorry... Good luck Ne Ne.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


malakai
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 5/24/2009 8:33 PM (GMT -7)   

I was on humira from Mar 12 - Apr 14 and was part of the 10% that developed Migraines/headaches with them. 

I separated the 4 doses into 2 doses per day.  1st shot sat -  2nd shot sun - headache mon.

When I would give myself the shot, my vision would get all wonky for about the first hour.  It actually kind of felt like my eyes were shaking but atleast it didn't hurt.

This is the 69th or 70th day I have had a headache and now I'm seeing a neurologist to see if there is something we can do to make them go away.  Now this past week, I am starting to have vision problems too.  I wrote a post sometime back about my headaches and a woman asked me if I had problems with my vision cause she was and now I cant find it to tell her I am. 

I wish you well.  It works for a lot of people.  On the tum tum side.  It made it so i could eat absolutely EVERYTHING with no problems.  Infact I even gained 10#.  =)


Diagnosed: 08/03/07
Meds:
lamictal 200 mg/asacol 2 pills 3x day/imuran 100mg day
Started humira 3/14/09.... pulled off due to migraine side effect.  Dealing with Migraine since then with no end in sight... 


strat1163
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/30/2011 5:33 PM (GMT -7)   
Please whatever you do DO NOT take HUMIRA or an other drug that reduces your immune function. I took Humira for approx one year and I now am so ill and regret taking it. I now have to contend with whatever this drug did to me on top on my arthritis. Before I decided to take it I consulted with my dr and she stated that the risks involved were hype and that it was safe to take. Yes, it worked to reduce my joint inflammation for that year but it was not worth the price to pay.

Back in April 09 when I was on the drug for 9 months, I had developed severe shortness of breath and unable to walk. The cat scan showed no infection but I continued to get increasing worse. Within months I developed severe diarrhea, bloating, tender abdomen, and continued labored breathing. I struggled with this until January 2010, when I began coughing up chunky green colored phlegm and it was cultured and turned out that I contracted Klebsiella pnemonia and was very ill and had it the entire time. I was put on an antibiotic for this and was given numerous amounts of antibiotics. I felt somewhat better for a few weeks and then back to feeling sicker than ever with awful headaches, sinusitis, productive cough and back on more meds. I continued to struggle with GI issues and it was found that I had a dead gallbladder from the humira and it was removed in June 2010. The surgery helped with the GI issues but around this time I began to have awful headaches and bloody noses along with nasal discharge. In dec 2010 I was doing my daily nasal irrigation and I heard a "pop" and tilted my head and had about a cup of blood, pus and skin drop into the sink. Immediately I had a searing pain in my face that would shoot into my neck and I was in agony. Went to ENT a few days later and he stated that it was most likely a cyst and gave me pain killers. I continued to have massive pain and around jan 2010, I developed painful mouth sores on same side as the supposed cyst and my dentist said that I had an abscessed tooth so he pulled the tooth and my condition got worse. I developed swollen gums on that side along with a bigger painful sore that oozed pus. I am now awaiting a biopsy result. Basically, all of my drs just shrug and act clueless as to what to do bc of all the crap that has been going on medically since taking humira. My Rheumy, PCP, ENT, and infectious doc all have basically been pawing me off and telling me to go to a different doctor. This has been a nightmare that I cant wake up from.

This entire time I have barely able to work, to be a dad to my children, and a husband to my wife because of that toxic s$#t of a medication. The thing is that not many doctors know the real risks of taking this med. and they just brush you off. I know in my heart that this medication has ruined my health beyond repair and I am just waiting for the next disease to crop up. What? more infections, cancer. Trust me if go back in time I would not take this drug.

Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 1/30/2011 10:01 PM (GMT -7)   
strat1163 said...
Please whatever you do DO NOT take HUMIRA or an other drug that reduces your immune function.


Wow, I'm really sorry to hear that happened to you. I hope you can recover and get your life back. Unfortunately, if most of us were to not take any drug that lowers our immune response we would be left with little else besides Pentasa or Asacol (remember steriods reduce your immune response so those are out). Many of us would be destined to a life of hospital stays and sickness who would otherwise have been helped by these drugs. Doesn't sound like much of an alternative unfortunately.

CUBFAN26
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 1/30/2011 11:44 PM (GMT -7)   
WOW strat1163 I am so sorry for all you have been through. I hope that each day treats you better than the previous one. I believe that Humira was the start of the worst for me also. ANd at my worst I too could not pick up my baby, be a husband, eat, barely even walk. My best to you and your family, stay strong!
30 yr old Male--Divorced, Daughter 2.5yrs old and PERFECT!
Crohn's since June 2005
Been on Humira, Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
3 Surgeries with about every complication that can happen has happened.
Allergic to Humira
Cannot take any immune suppresents due to the fact I have had disseminated histoplasmosis.

CUBFAN26
Regular Member


Date Joined Feb 2009
Total Posts : 46
   Posted 1/30/2011 11:47 PM (GMT -7)   
Rider fan said: "Unfortunately, if most of us were to not take any drug that lowers our immune response we would be left with little else besides Pentasa or Asacol (remember steriods reduce your immune response so those are out). Many of us would be destined to a life of hospital stays and sickness who would otherwise have been helped by these drugs. Doesn't sound like much of an alternative unfortunately."

This is my only choice because I am allergic. And no it is not much of an alternative.
30 yr old Male--Divorced, Daughter 2.5yrs old and PERFECT!
Crohn's since June 2005
Been on Humira, Pentasa, Asocol. Prednisone, Entocort, Imuran, Protonix, various anxiety meds, painkillers
3 Surgeries with about every complication that can happen has happened.
Allergic to Humira
Cannot take any immune suppresents due to the fact I have had disseminated histoplasmosis.

kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 1/31/2011 1:30 AM (GMT -7)   
I have been on Humira for almost 3 years and recently went from 2 shots a month to 1 shot a week. It has been nearly a month and the only difference I feel is fatigue and a slight difference in my personality. When I say that I feel less drive, but do not feel completely depressed. The drug has done great things for me regarding inflammation, mucus, pain, etc..But I still have an on-going fistula.(Isn`t that redundant, because it is there forever.) of course, everytime I take my shot, I think about long term effects. Then I remember how I was before I started taking the shots. We all are different when it comes to this disease. Where we live, weather, mold, water,...hence parasites ... each of us has to mold to our own treatments and what makes us better. That is the difficult part. Some of the medications that others mention, I have never heard of, s then I research them. I am fortunate to live in Canada and Pharmacare, otherwise I couldn`t imagine a cost of Humira. But I am frightened of the long term. I also get the blurry vision after I take a shot, and sometimes the shakes reak havock-but the one thing that scares me the most is dying. I have nightmares, I have so many fears about dying from Crohns. I have almost died 3 times from it. It scares the crap out of me. That is why I am on this forum...because listening to others that are suffering, that are reaching out, that make me feel like I can relate, I feel I am in the right place. I am sure alot of you can relate-when you are diagnosed your family and friends do not know how to act, do not know what to do and what to say. Please keep writing

Flyers2001
New Member


Date Joined Dec 2010
Total Posts : 14
   Posted 2/3/2011 1:49 PM (GMT -7)   
Anyone else experience back pain while taking Humira?  Mainly in the mourning when waking up?

Kincaid
New Member


Date Joined Feb 2011
Total Posts : 1
   Posted 2/5/2011 5:27 AM (GMT -7)   
I'm only 10 days out from that first Huge Humira dose. I felt just plain bizarre for a few days, I know that's not medical terminology. I've been experiencing sinus problems... sneezing, runny nose, and flu-like symptoms.. cramps, stomach upset and diarrhea for the past few days, Also a headache I can't kick. Any suggestions would be appreciated.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 2/5/2011 9:35 AM (GMT -7)   
H Kincaid,

Welcome to Healingwell. You might get more responses by starting your own post. This is an old post, and folks tend to avoid them, thinking they already responded.

I have no experience with Humira, so have nothing to share. Again welcome.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease
Crohn's Disease for over 35 years. Currently on Asacol, Protonix, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
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