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Is the SCD worth a shot?
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Date Joined May 2006
Total Posts : 1177
Posted 5/15/2008 5:08 PM (GMT -7)
As you guys know, my husband has nervous system disorders which is probably associated with the remicade. He's on 80mgs of pred and the remicade, and his next infusion is due May 22nd. However, we're fairly certain given the seriousness of the nervous system disorders (possible MS triggering), that we're not going to get the next infusion, and we're going to stay away from biologics altogether. So, the plan right now, is to ask the neurologist to do an MRI (to see if there's any lesions on the brain), and to ask the GI to put my husband on Imuran or 6-MP, and continue the prednisone at the same dosage for a while longer, until he hits remission with Imuran/6-MP and Pred, while tracking the neurologial symptoms and hoping for a complete recovery.
The steroids didn't do a thing when my husband was in the hospital (even at 120mgs of methylprednisone on IV). It was the remicade that helped my husband get home. He now has 2-3 mushy stools a day and is putting on weight. I know he's on in remission yet, and probably has some inflammation inside. I am worried that even with Imuran/6-MP and being on Prednisone at a high dose of 80mgs, he'll slide back into the pain, cramping and diarrhea. Here's my question - does the SCD stand a chance of helping prevent that backward slide?
In your honest opinion, can the SCD help my husband stabilize and continue to improve without the Remicade, and eventually taper off steroids, and stay on 6-MP/Imuran long-term? We're willing to follow the SCD strictly with no illegals, no matter how much work it maybe. My other concern is whether I can provide my husband enough calories on the SCD. He is allergic to nuts, so I can't bake him any almond flour stuff. So, pretty much, he has to get his calories from the yogurt, cheese, and meats, and maybe peanut butter and jello. I intend to start him on the diet next week. Any encouraging stories about
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff
Home now after being in hospital for 45 days
Canasa, Lialda, Vancomycin, Flagyl, Colestipol, Pred 80 mgs, Remicade (3rd infusion due 5/22/08), VSL#3, FloraStor
Still having problems, hoping for a remicade miracle
Need to get off the pred ASAP
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Date Joined Mar 2006
Total Posts : 1034
Posted 5/15/2008 6:24 PM (GMT -7)
sounds like he doesnt have much to lose, so i'd yes, do it.
another diet that may be worth trying is the maker's diet. i only suggest this because you noted that your husband is allergic to nuts. the makers diet allows grains, but sprouted grains only. i find myself i do best eating all grains sparingly, but when i eat them they are sprouted. it is similar to the scd in many ways, but different in that it encourages one to eat organic. one thing that is scary to a lot of people is its liberal use of fruits and vegetables, which most of us cannot tolerate, or can minimally.
i'd like to make a point though, diet should not be thought of as a panacea. it can help, but just like how crohn's affects us all differently and we respond to meds differently, we each respond differently to dietary changes. the best advice i can give is recommending you get the book, read it a few times, get a good idea of what to do and expect, and then implement it. and follow it to the letter as best you can in order to maximize its potential with your body. no one knows how this diet will work for your husband. it is like medicine the doctor gives you. you hope it will work but you dont know until you've been on it for a while.
i suggest doing the yogurt as suggested by the diet and getting a good probiotic. check out vsl#3 on the web. that comes recommended by a lot of people. digestive enzymes may be another thing to look into as well. i take 1-3 with every meal and it is very rare that i get stomach aches now after i eat.
best of luck!
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07
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Date Joined Aug 2007
Total Posts : 990
Posted 5/15/2008 8:32 PM (GMT -7)
Hi PV...I'm so sorry your husband is having such a hard time. Did you happen to see the SCD thread here a couple days ago?
I don't know the answer to your question as to whether it will help your husband, but as CrazyHarry basically said, why not?..... I'm sure you are at the try anything and everything point....
Have you thought about
trying LDN (in conjunction with the SCD)?
I'll keep you both in my prayers and I hope something works really soon!!!
Mother to 16 year old boy diagnosed in June, 2007.
Currently taking Asacol, omega 3s, digestive enzymes, probiotics, iron, vit. C, calcium w/D3 and a good multivitamin.
Started The Maker's Diet in early September. Gradually learning/using more SCD recipes, too! (cooking challenged)
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