OMG I so need a new doctor!

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Jen77
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Date Joined Mar 2006
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   Posted 5/15/2008 5:17 PM (GMT -7)   
Okay, you guys just won't believe this stuff. I see my GI today. First time since all this flare started, with the lip/hand/foot swelling and D of course. Now I will say, I've never really liked this man. He's always seemed wishy washy, but it's the only place my insurance will cover, and they give you major crap about switching doctors within the office.
 
First he says he never saw anything on my scope TWO years ago. The scope he did to go in and fix a gushing ucler in my TI. Basically he undiagnosed me, right then and there. I was like WAIT a minute??? You said you found ulcers and the biopsy's showed Crohn's disease of the TI. Then the next minute he said I had UC. WHAT?? Then he started saying Crohn's again. He kept flip flopping all within 10 minutes. I was like "Well why exactly have I been on Asacol for the past TWO years, if you never found anything wrong me?" No answer (stares at computer screen).
 
Then he asks me what my Primary doctor thought was going on with me. I said uh he says I'm flaring, and believes all my swelling is a flare as well. He says "Well I've heard of joint problems with Crohn's (again I have Crohn's, good to know UGH). But never anything in the mouth or lip. I had to tell him what my primary said and what so many here said "From the mouth to the anus right?" Well that's technically true, but I've never seen it. Guess since he's never seen it, it don't happen? Then he starts asking about my history. When did I start having Crohn's symptoms (again saying now I have something). When did I have my fistula sugery, my gallbladder out ect... This is a man I've seen for TWO years. NOW you are asking me such questions???
 
So then he wants a scope, you know that's fine, if your actually going to use it for something. Then he wants me to see an arthritis specialist, which is also okay. Since he obviously doesn't know what he's talking about.
 
THEN, he wants me to start tapering the Prednisone. I'm on 40mg right now. He wants me to taper every 3 days, 10 mg less. Isn't that too much? He want me at 20 mg within a week. Then to stay at 20 mg until after I get back from vacation in a few weeks. He gave me two months worth of Pred. But I have no idea if I should follow such a fast taper, ESPECIALLY since I'm still having 5 loose stools a day still. I'm not well yet! Oh but he said to call him if I start to flare up while tapering. Flare up from what, if I don't have anything wrong with me?? Dope!
 
So basically I'm going to get back in touch with my family doctor, who seems to know a heck of a lot more then my so called specialist. See what he says about the tapering, and I'm obviously going to have to fight that office to get in to see someone else. I need someone who knows what the heck they are doing to help me. This man is just a complete quack! I'm in such shock over that visit, I don't know what to think!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 5/15/2008 5:32 PM (GMT -7)   
Hi Jennifer,

It was good to read your post...have to admit I laughed at how you put it together. Bravo to you.

I would suggest that you get another GI. I think he may be on some type of medication or needs to go back to school and study Crohn's. I agree that you need to talk to your family physician I think that he has you tapering to quickly.

Good luck and have a good holiday.

Shoshanna


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 5/15/2008 5:36 PM (GMT -7)   
Oh I am so sorry that you are having to go through this. How awful. IMHO that doc sounds like he has been hitting the drug cabinet on the sly, or else a bottle of something strong at lunch! I read an article on CNN today about the mistakes women make with their doctors, the number one mistake being not speaking up when a doctor doesn't make sense. You definitely don't have that problem, I'm glad you questioned him! Good luck getting a new doctor in the same practice. The awkwardness will be worth it to find someone who knows what they are talking about.
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07. Doc says no active disease, but flare-ups anyway. 11 year old son with IBS-C, on Bentyl.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/15/2008 5:40 PM (GMT -7)   
Thanks you guys, I was hoping it wasn't just me seeing all the WRONG in that visit. I swear, the man must have been drunk or something! LOL

But I'm really just trying to hold on to what my primary doctor said. I went through a lot trying to figure out what was going on the last two weeks, and I was finally feeling better about things. Only to have this man try to confuse and upset me. Seriously, my family doctor runs circles around this guy, and it shouldn't be that way. So I'm just going to stick with everything my family doctor said, and try to get a new GI. FAST. LOL
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/15/2008 5:47 PM (GMT -7)   
You're right...you really need to find a new GI!  This guy is like eyes   and he's obviously confused   as well!
 
Next time, if you have to see him, you mine as well tell him that you quite possibly have crohns-colitis, explain to him that this is crohn's affecting the colon...that would explain you having to take the asacol (as it is used for any inflammation in the colon, be it from crohns-colitis or ulcerative colitis)...clearly if you've had issues in the TI and now the colon, it's a pretty clear cut case of crohns, not UC which ONLY affects the colon/rectom region of the GI tract.
 
Good luck, sounds like you really need it with this numb skull !

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 5/15/2008 5:49 PM (GMT -7)   
Get a new GI. You will never be able to trust him even if he never makes another mistake in the entire time you know him.
As for the pred taper my Rhuemy-who I love-had me go for 30 to 10 in one week but she warned me about possible side effects of a taper and talked to me about reflaring and told me that if ANY of that happened I was to go right back to 30 immediately and call her. She even specifically stressed to take the additional pred first then call.
I would not take your GI's advice if he told me to breath every few seconds.
Sj

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 5/15/2008 6:06 PM (GMT -7)   
Good for you for sticking up for yourself! How horrible he was not even aware of his own diagnosis! Geez! I hope you are able to find a decent doc there! Best wishes!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--stuck on methylprednisolone, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-year-old girl


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/15/2008 6:18 PM (GMT -7)   
It's just so news to me that he now didn't hink it was Crohn's. He told my husband in the hospital after my scope that it was Crohn's, then confirmed it with me at a follow up two months later, with biopsy results. So where in the world does this stuff come from? I went for 10 years without a diagnosis, I don't need to go back to that! I thought it was funny recently when I went to have a stool sample test done that it said "colitis" down as just the diagnosis. Talk about just wanting to be as vague as possible!

So I went from feeling better on Tuesday when I walked out of my primary doctors office. He was 100% sure I was just flaring, knew exactly what he was talking about (thankfully I've always had him look at all my test results so that he's up on everything). To go to this man who was obviously dazed and confused himself, upsetting me, making me feel like I had no idea what was going on. Asking me things like if my throat ever felt like closing, and if I had any family history of stuff like that (trying to get away from Crohn's causing my swelling again). Then starts researching online right in front of me. I wanted to cry when I left there. But I'm just gonna hang on to what my primary doctor said, and see him about tapering off the pred. Thankfully this idiot gave me 67 days worth, so I can probably do it the right way anyhow. However they are all 20 mg pills, so I'm not sure how to break those up in to 5mg less. Ugh, just so upsetting!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


SallyC
Regular Member


Date Joined Nov 2004
Total Posts : 158
   Posted 5/15/2008 6:20 PM (GMT -7)   
Oh my! I would say by now he should know you and your situation a lot better then that! I really feel bad for you but just loved the way you expressed yourself! And between you and me, I never trust a doctor who tapers pred. that quickly.
I always say you don't always have to go to a specialist for your health problems but to always go to whoever you feel comfortable with.
Hang in there and I wish you well.
Sally
Sally
 
Diagnosed with UC in July of 2003 then diagnosed with Crohns in August of 2006.


Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/15/2008 6:55 PM (GMT -7)   
Totally outrageous. Find a new one pronto.
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp and probiotics.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 5/15/2008 7:56 PM (GMT -7)   
No argument here! You need a new doc! This one apparently has done too many scopes, seeing how he has *bleep!* for brains!

Matthew

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/15/2008 8:44 PM (GMT -7)   
Thanks again you guys. You want to have some faith in your doctors, and when they turn out like this, it makes things really difficult!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 5/16/2008 10:39 AM (GMT -7)   
That is terrible.  Def get a new dr.  I had a great dr before I moved and the one i have now does not seem to be taking very good care of me. 
If you are having a Crohn's flare, isn't it your GI dr who should be taking care of you?  My GI dr recently told me that I should call my primary care dr for pain medicine and for blood work if I have a fever.  Aside from the Crohn's I am otherwise very healthy and see my primary dr once a year for a checkup, so I think it is the GI dr who should be treating all those things.  Any similar experience with that?

Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 5/16/2008 10:48 AM (GMT -7)   
I think we might have the same doc, haha! I am going to start searching for a new GI too. Best of luck to you!


30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...and always ready for a nap.
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007. Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring off and on and trying to avoid steriods.  Taking RF Plus, Similase, Cortine, Pregnenalone, Vit B shots.  http://www.facebook.com/people/Melissa_Huffines/743171473


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/16/2008 11:02 AM (GMT -7)   
wednesday2007 said...
That is terrible.  Def get a new dr.  I had a great dr before I moved and the one i have now does not seem to be taking very good care of me. 
If you are having a Crohn's flare, isn't it your GI dr who should be taking care of you?  My GI dr recently told me that I should call my primary care dr for pain medicine and for blood work if I have a fever.  Aside from the Crohn's I am otherwise very healthy and see my primary dr once a year for a checkup, so I think it is the GI dr who should be treating all those things.  Any similar experience with that?


This was my GI doctor that I saw yesterday! That's whats so scary, my primary doctor seems to know a world more about Crohn's then him! I agree, I think we absolutely need a good GI specialist with this though. For now though, I have to put all my trust and faith in my primary. At least until I can get a better GI.

Unfortunately I have heard from several people that their GI docs don't always want to treat "all" the things that go along with Crohn's. Some just want to focus on the bowel symptoms and either ignore the rest, or send you to other doctors for the rest. Would be nice to have a Crohn's specialist, that would be knowledgable and good at treating all aspects of the disease!


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Predisone 40mg, and Asacol.


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 5/16/2008 11:45 AM (GMT -7)   
Where are you located? Maybe some of us would know of someone better qualified in your area...of course I'm sure right now a monkey is more qualified than you current gi!!
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