Well I am officially in a major flare up. And when I went in for a colonoscapy last week I have gone backwords in progress. The GI found I have 30 cm of CD disease which runs from the sphinter up towards to the first turn in the large intestine. That is good news in a way because it hasn't spread since my last colonoscapy (4 years ago). She has taken me off the prednisone (started tappering down ) and now I am back on the Salofalk enema's morning and night.
The problem is my bum is soooo sore from muscle spasms and I can not keep all the medication in. I can maybe get half of it in a night. I still have to work so I haven't been doing it in the am. My sphinter muscles is so soar and I feel like I bruised my tail bone as it is sore to touch as well. I am worried I might lose control of that muscle as I am running to the washroom faster and faster these days without notice. Is it possible I just pulled it or something. It tends to go into spasms more and more. I mean major spasm.. along with lots of blood and the CD stuff.
I am thinking I should go on Asacol for the time being and give my bum a break from the solafalk as each night is gets harder to insert and keep in. Problem is my next appointment with the GI is not until July 9th. There is no way I can continue doing this until July 9th.
I started Humira and have had 3 dose so far... they say it takes three to feel the effects. My next injection is next week. I don't feel any relief from anything I am on and it has been over two months. Ontop of all this I have a fistula which gets annoyed...
Sorry for the rant but I need advice on any tips or tricks on how I can control my muscles in my bum before I do any real damage. Thank you in advance to anyone who read this.
CD since 1988,
Cocktail of medications ( Remicade included) and have explored many herbal remedies.
Currently experiencing another flair up after 4 years of remission.
"Life is like a box of chocolates you never know what your going to get inside"
Everyone knows that quote... how true how true.