HHH, I was Dx'd w/"mild" Crohn's in early 1976. It was in just one "spot" in my mid-ileum. I'm not sure what criteria "they" use to determine whether the Crohn's is mild or severe. My symptoms sure as h*ll weren't mild!! I could bloat up like I was 11 months pregnant w/twins in no time, I was nauseous 24 hours a day, 7 days a week for 2 1/2 years and had bouts of pain so severe I can remember laying in bed crying "no more, God, please no more!" The "only" relief I got at all was a shot of Demerol and Phenergan in ER and maybe some IV fluids (and I suppose prednisone). I was in ER just about
once a month if not more w/severe vomiting and pain. I ended up spending 6 weeks in the hospital locally on IV fluids and an NG tube pumping out my stomach and intestines. Doesn't sound mild, does it?
After 6 weeks w/that NG tube it became very painful and "they" just ignored my complaints and said it was necessary. I finally pulled the darn thing out myself. When they insisted they had to insert another I panicked and called the airport and my husband and w/in 2 hours released myself from the hospital and was on a plane to Mayo Clinic. I was admitted thru ER and the Mayo docs confirmed that my Crohn's was still confined to that one area of the mid-ileum. They expected that they'd only have to resect 12"-18" of that mid-ileum - no guarantees, of course. BUT I had a 60% chance the Crohn's would eventually return. Those 40% odds that it wouldn't sounded pretty darn good to me at that point in time and I agreed to the surgery. Back then, 1978, they weren't doing laparascopy so I did have the
open abdomen surgery. I was off pain medication, without ANY need for it, before I was released and NEVER had a bit of pain on the flight home nor once I got home. I HAD A LIFE AGAIN!
I was then blessed w/a TWENTY YEAR REMISSION!! And when the Crohn's did return in 1978 it was MUCH more "mild" than at any time prior to that resection 20 years previous. W/today's medications (Imuran and Pentasa) I've been in symptomatic remission for most of these 10 years.
I recently ran into a fellow volunteer at our local hospital that had a resection the same year I did for Crohn's and she is STILL in REMISSION from that surgery!
Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.