I started to have mild symptoms of a flare 9 weeks ago and weent to my dr to see if there was anything I could do to kind of "cut it off at the pass" before I went into a full on flare - he did tons of tests and a little bit of this and a little bit of that (suppositories, tried Lialda, I changed my diet to very bland, no alcohol, no caffiene, no artificial sweetner) - for me what ended up happening was that I went into a full on flare and had an abcess that seemed to be the biggest problem. So I ended up in the hospital for 2 weeks on pain meds and antibiotics. I also got my first dose of Remicade. I am still out of work, low-grade fevers and no energy, I sleep all the time and spend the rest of the time in the tub.
So for me it seems that even with different medicine it will take almost 3 months to get over this (hopefully) - I know if I had taken Prednisone I would have been better within a week or 2 - but it is such an evil drug and is really doing a number on my bones (I have osteopenia and the beginning of osteoporosis). So basically I don't think there was any one thing for me that reversed my flare and helped me back into remission. If ANYONE has a suggestion on how to get/stay in remission I would love to hear.
Good luck and God bless!
Thank you all for your replies. My diagnosis isn't very clear. My doctor seems to thinks it's either UC or crohn's-colitis, but can't say for sure. He says it doesn't really matter which because both are generally treated the same.
In terms of severity of disease I think i'm more on the mild to moderate end of the spectrum. I say this because between flares I generally feel pretty normal, one solid bowel movement every morning usually not many problems other than that unless I decide to have some drinks or eat too much. I take salofalk but am not sure how effective it is.
I understand sometimes steroids are necessary but I was just trying to see if there was another way without the steroids. Is this enteral nutrition, or whatever its called, as effective for both crohn's and colitis or more so for one of the two?
I have a question for those who have used enteral nutrition before. How much weight did you lose during the weeks that you were on it? I would imagine that being on a liquid diet would result in a considerable loss in weight?
To AMY, thank you for the link, I will be sure to check out your website once it is up and running.
Thanks again to all, this really is the only place where I feel I can talk to anyone about these issues. Even the gi's don't fully understand the issues we go through.