Remission Question?

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jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 5/20/2008 9:42 AM (GMT -7)   
So I know remission is the "absence of symptoms" more or less. How about the constant fatigue? Do those of you in remission feel like you did before the disease? I'm scared I'm at the "as good as it gets" point. I don't want this hazy, crappy feeling to be my new standard of normal. confused
Pentasa- 1000mg/2x 1/08; Percocet/Ultram for pain; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/20/2008 9:51 AM (GMT -7)   
My Crohn's is in remission clinically, but I still have bad arthritis pain which requires daily pain meds (and now I have 3 ulcers) due to the Crohn's.  The fatigue may be a little better than it used to be, but I still don't have the energy a healthy person would have.  So, I may not have many of the symptoms they use to measure whether or not you are in remission (D, fevers, abcesses, fistulas, etc.), but I still definitely have some problems and I don't know that they will ever go away.  So, I don't know if the tiredness will go away, but I sure hope that it does soon!     

...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 5/20/2008 10:15 AM (GMT -7)   
Even while I was in remission I had my tired days. They would get worse if I started to have minor flare ups. But some days I just needed a nap, and accepted that. I also couldn't just eat whatever I wanted in remission. Some foods would make me sick regardless. For me remission was wonderful, but I've never been able to get back to the "normal" I knew before Crohn's.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4099
   Posted 5/20/2008 10:52 AM (GMT -7)   
I was just thinking about this exact topic as I drove to work this morning!  My digestive system seems to be doing ok, and my recent blood work, (anemia, sed rate, etc) was completeley normal.  But some days, like today, I am ridicoulously tired to the point of being dizzy.  I don't understand what causes this if the crohn's is not active!

49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 5/20/2008 10:58 AM (GMT -7)   
Gosh Jenny, I'm so glad you mentioned this...I was just having the same thought. I feel like I may be in remission as far as the many trips to the bathroom and all the tummy troubles go -- but I am still so exhausted and I have the persistent nausea.

My thought is that perhaps underlying issues (such as IBS, heartburn, anemia etc.) were always there and the CD flare up just brought them out. So although I may be in "remission" from the Crohn's flare up, I am now experiencing all the wonderful side-effects from other health issues or even from my medications.

Hmm...'tis fun, isn't it?

Blessing, Mel
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...and always ready for a nap.
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007. Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring off and on and trying to avoid steriods.  Taking RF Plus, Similase, Cortine, Pregnenalone, Vit B shots.  http://www.facebook.com/people/Melissa_Huffines/743171473


lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 5/20/2008 3:57 PM (GMT -7)   
When I feel overly fatigued I make sure to get plenty of rest but also force myself to exercise, even if it's only 15-30 minutes. It is hard to start exercising at first, but will get easier and soon you'll be hooked. Exercise DEFINITELY helps with the fatigue.
turboemma.blogspot.com/


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 5/20/2008 8:13 PM (GMT -7)   
Thanks guys! These responses help sooo much. I asked my GI today what the definition, to him, is of remission. Basically, because of how bad my disease was at the start my hope of "full remission" is very bleak..
Pentasa- 1000mg/2x 1/08; Percocet/Ultram for pain; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/20/2008 10:35 PM (GMT -7)   
One thing that may be worth considering is whether you have an infection. If your ulcers have healed and sent you into remission, there is a chance that some foreign matter has been trapped beneath your new, "healthy", tissue, leading to an abscess.

Emotions may also account for your fatigue. A study was done of cancer patients, and it was found that cancer patients experienced considerable fatigue even a year after achieving clinical remission. This was attributed to the heavy emotional work needed to build a new identity as a "survivor", the need to renegotiate relationships, and the stress of re-entering the workforce and restoring a social life.

And, as the others have said, fatigue is also part of the illness itself.

I hope things get better for you soon. It's hard, I know.

I.
Co-Moderator Crohn's Forum.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 5/21/2008 1:47 AM (GMT -7)   
When I'm in remission, there are days when I'm super exhausted by time 7-8pm rolls around. I work full
time and have a 2 year old. So if its a rough day, I make sure to get into bed earlier and get plenty of sleep.
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