being a crohny in the city that never sleeps

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afashionablecrohne
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/20/2008 10:08 AM (GMT -7)   
i was diagnosed with crohns almost 3 yrs ago, during my last summer in college. i have lived in nyc since then and have tried probably every med out there, and pretty much every holistic approach under the sun...there are good and bad days/weeks and i have changed my life dramatically in order to function w all this...
i was just wondering if there are any other new yorkers out there dealing w this disease???
i work freelance jobs now, all in the fashion industry, but is very hard to make ends meet here, so you end up working like 4 jobs....all of which i love and are mostly on my terms (which also took about 2 yrs to really figure out). however, bc there is so much opportunity and so many things to do in nyc if you love fashion and art, it is really really hard for me to stay in bed all day when i am sick and not feel completely depressed!

i am usually such a outgoing and inspired person who is constantly seeing, doing and absorbing all that this amazing city has to offer.....but when your knees and ankles feel like they have just been struck by a hammer, it is rather hard to even walk around the block.

so i guess my question is if there are any other people out there in similar situations that i am?

and how do you get through your days?

it has taken me 3 yrs to muster up the courage to join a forum like this, so any advice at all would be so helpful.....

Melissa H
Regular Member


Date Joined Mar 2008
Total Posts : 85
   Posted 5/20/2008 2:59 PM (GMT -7)   
Hi, and welcome to Healing Well! This forum is so wonderful and has provided me help many times -- even knowing that there are other folks out there who can understand what I'm going through is a huge relief.

I'm actually on the other side of the country and my lifestyle is probably not as exciting as yours (in fact, I'm sure of it!). But I do understand your pain and depression. I think you just keep getting up every day, surround yourself with good friends who know you (and your problems) learn to lean on them, and choose to smile.

Really I don't have a lot advice for you, just wanted to say welcome and send a (((((hug))))) your way!!

Blessings, Mel
30 year old wifey and mom to 3 little girls, 2 dogs, and 2 ratties and working full-time outside of the home...and always ready for a nap.
Suffered with symptoms for 12 years, dx Crohn's-Colitis 11/2007. Taking Asacol, Omeprazol, Rowasa, Bentyl. Flaring off and on and trying to avoid steriods.  Taking RF Plus, Similase, Cortine, Pregnenalone, Vit B shots.  http://www.facebook.com/people/Melissa_Huffines/743171473


BitBit
Regular Member


Date Joined Oct 2007
Total Posts : 44
   Posted 5/20/2008 4:11 PM (GMT -7)   
Hi,
I livein NYc and I know what you mean about missing out on all the fun b/c you do not feel well or just tired.
I feel the same ways at times, so what i do is on days that I feel fine or better I try to do as much as I can; especially if it is a nice, warm, and sunny day. A day like today (rainy and dreary) I take it easy..so easy today that I took the day off from work to catch up on some much needed sleep.

I also try to plan ahead as much as possible/ if I know I am going to be doing something at the end of the week I try to do less leading up to that day. I also have friends who understand my situation and are willing to go out earlier rather than later. I know I still miss out on a lot of the night life, but to have the opportunity to be out there at all is better than nothing. My point is to be grateful you can go out and enjoy yourself in the moment.

Riss
New Member


Date Joined May 2008
Total Posts : 16
   Posted 5/20/2008 4:29 PM (GMT -7)   

Hello,

I’m glad you decided to post on this forum –  I don’t have the best advice but wanted to chime in and try to cheer you up a bit.  I live on the other coast in Los Angeles and work in the music industry.  Take one day at a time and be grateful that you get to pursue your dreams in an amazing city like NYC.  Sometimes when I start to get down, I think back to how I felt the first week I moved to LA.  I felt like I had the entire world in my hands and the opportunities were endless.  Remembering that feeling always seems to motivate me over and over again.  On those days you do have to stay in and rest up - laugh often, find joy in the simple things and remember that there will always be better days ahead. 

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/20/2008 4:53 PM (GMT -7)   
Hi Welcome to HW it is a great place for info and help. I know I have had a few days when a crutch has made a big difference for me. Lately my shoulders and hands are bothering me and your right it is hard to get up I find I don't have a good supply of body strength right now . Hoping this will work it's way out though. lol gail

wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 5/20/2008 5:11 PM (GMT -7)   

Welcome!  This board is wonderful.  I have gotten more information and answers and most importantly QUESTIONS to go back to my dr with than I have in his office in the past 6 months.

everyone is very supportive, again, WELCOME!!!

 

32 year old female

Crohn's colitis

Remicade, pain RX, currently in a "mild to moderate flare" (says doc) the is producing severe symptoms and a rectal abcess that needed surgery to be drained.  Spent 10 days in hospital last week.

 

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