Crohn's and Arthritis

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catgiggles
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Date Joined Sep 2003
Total Posts : 217
   Posted 5/20/2008 3:39 PM (GMT -7)   
Howdy folks! I use to be on here quite often for several years but almost 15 months ago I had my first child ..need I say more LOL..My Crohn's is tolerable. Not in remission but not ruining my day either. My question is about treatment for arthritis. I have arthritius pretty badly from the steriods when I was younger (9 months pred 60mg bad bad for the joints!!). Humira and Remicade are out of the question. Severe reaction to Remicade and personal reasons and well a finiancial on humira. So are any of you using other treatments that work well with your Crohns to (not as in treat it just doesnt send you into a downward spiral). I would love any suggestion so I can begin and indept research at my options. Thanks in advance to all who read/reply!! Tara

sjkly
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Date Joined Dec 2007
Total Posts : 2113
   Posted 5/20/2008 4:11 PM (GMT -7)   
Are you talking about osteoarthritis from the steroids or chron's (or inflamitory) arthritis-answers would be vastly different depending on the type of arthritis.

Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 5/20/2008 4:53 PM (GMT -7)   
If you have arthritis associated with Crohn's, sulfasalazine works well for both. I was prescribed that but unfortunately discovered I was allergic to sulfa/
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 5/20/2008 5:35 PM (GMT -7)   
This past January during a really bad flare I woke up in the middle of the night with excruciating pain in both knees. I had to go to the hospital it was so bad. They said it was from Crohns and prescribed me percocet. My GI told me the next day that I could not take it because it could rupture my intestines. I then went to the Chiropractor and he told me he could help me and he did. I was out of alignment and he aligns your atlas with a machine. He does not pop and crack your body. I didn't feel a thing. There aren't many of these types of Chiropractors around. After I got aligned the pain went away. I got out of alignment a few more times and every time the pain came back in my knees or other joints and I would go see him and be fixed again.

Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/20/2008 8:45 PM (GMT -7)   
Percocet can rupture the intestines, really? *I know some Crohn's people here take percocet for pain.... I've taken it when I was in the hospital... but at home, I take stuff that isn't as strong... pain usually isn't as bad as it is when I am in the hospital... (Because I don't go to the hospital unless the pain is excrutiating)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


catgiggles
Regular Member


Date Joined Sep 2003
Total Posts : 217
   Posted 5/20/2008 9:01 PM (GMT -7)   
I was told (about 14 to 15 years ago I have not been back to a rheumy since then) that I have steriod induced osteoporosis (i can not spell folks so bare w/ me please!) that is causing arthiritis and that I also have inflammotory arthirtis. One knee and elbow was stuck in one positon and it took about 3 months of pt (if i remember right) to get movement back again. I was told that all the medications would only make my crohns worse (I dont take pred n e more unless it is just a 10 day dose pack b/c of the deteration and I am also allergic to sulfa) her recommendation was to not be on my feet more than 45 mins a day and not to lift over 5 lbs permentlly. I of course did not follow that exactly but drastically decreased my activities. I mean drastically. Now I am out of shape and have more joint pain each day it seems. I dont know if it is just from ageing or if it is the loss of so much muscle tone has actually put more stress on my joints. Hope this helps clarify my situation a bit. I'm not sure it will make a difference but I also have a bicuspid valve that leaks severely, and the pressure is causing my mitral to leak a a little bit as well as my pulmonic. BUT my cardiologist says that I can do some exercise just to pay attention to what my body is telling me. If I start to feel the least bit dizzy to stop. I will eventually have to have an artifical aortic valve and have that screened every 6 months.

catgiggles
Regular Member


Date Joined Sep 2003
Total Posts : 217
   Posted 5/20/2008 9:03 PM (GMT -7)   
Celey what do you use for pain medications? I have always tried to stay clear of it and my GI tells me I'm strubborn but her recently I have wanted to take a little bit so I can try to enjoy playing w/ my son some. He is growing so fast and I feel like I'm not getting to fully enjoy it! I am allergic to hydrocodone.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/20/2008 9:42 PM (GMT -7)   
Right now, I take Ultracet...


I was recently prescribed Larocet (it's hydrocodone, so, you probably wouldn't be able to take it)... Because my pain got really bad.... I only take it when my pain is really bad.... Otherwise, I take the ultracet and it helps some...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 5/21/2008 6:03 AM (GMT -7)   
I wonder if water exercise might help (swimming or water aerobics). It could give you a way to keep your joints more limber without putting pressure on them. But of course you would want to let the lifeguard know before you got in the water that you are subject to dizziness.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/21/2008 6:42 AM (GMT -7)   
I take Percoset for my arthritis pain. And it ain't rupturing my intestines. It just relieves the constant pain. I am sure if you had a bad stricture that the opiods could add to your Constipation but you would run that risk with any opiods. Before my first resection I use to take Vicodin a few times a day but also took stool softners every night, and that helped to keep things moving.

Hey Cat have you seen a Rheumatologist? They might have more options for your pain. Or even a Pain Mgmt doc?
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/21/2008 9:53 AM (GMT -7)   
catgiggles, Salsalate is one arthritis medicine my rheumy put me on, but it didn't help enough and I ended up with 3 ulcers because of it (or because of it and the Ultracet I take daily).  So, now we are switching from Cimzia to Humira to see if it will help enough so that I can stop the Ultracet (already stopped the Salsalate).  We've also tried Celebrex and I think it helped for a while but then stopped.  With any arthritis or pain meds, you are going to run the risk of messing up your gut even more.  If you are completely against biologicals, I'm not sure what else you can try, other than natural stuff like fish oil, which didn't help me either.  Cimzia is a new biological similar to Humira but, your personal reasons for not taking Humira may apply to Cimzia also.  And, it's more expensive to your insurance company but the drug manufacturer sent me a card for 3 free treatments and then up to $500 off my copay each month for a year.  So, if it's a completely financial decision, you may want to look into that and possibly get the drug free to you for a while. 

...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


catgiggles
Regular Member


Date Joined Sep 2003
Total Posts : 217
   Posted 5/21/2008 3:41 PM (GMT -7)   
Thanks so much folks! The personal reason is that we are worried about the long term side effects on the newer drugs. I have had some terrible allegeric reactions to medications they have put me on. We tried Remicade when it was right out of the gates about 9 1/2 years ago. Which lead to a terrible side effect that took about a month to pass. So I try to stay away from the newer drugs until you see what it can cause. I was one of the first people to have this reaction to Remicade (now it is actually listed that it can happen). So the drs did not think it was from the Remicade which lead to a merry little chase of trying to figure out what the heck was going on. I just said personal at the beginning b/c I don't want to offend those who are wanting to try stuff when it comes out.
 
I like the water idea but we do not have a pool or something like a ymca in our area. They have a class of water aerobics at our area college for those who have arthritis but when I went to see about joining they said they only allowed seniors to join. So I got quite a few years til I can do that since I'm 29 now lol.
 
Does anyone know the difference between tramadol and ultracet? I may try doing some research on that when my son goes to bed tonite. The tramadol makes my "mind race" is the best way I can describe it. It doesnt seem to be a problem during the day but it is like I can not shut off my mind and go to sleep when I go to bed.

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 5/21/2008 6:58 PM (GMT -7)   
I know that some people take percocet for pain and they haven't "ruptured a gut" but my GI said that my bowel walls were so thin that he did not want me on the pain meds. Has no one else ever tried a Chiropractor rather than pain meds. It truly worked wonders for me. Especially if someone does not want to take everything coming and going.

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 5/21/2008 7:24 PM (GMT -7)   
I've been rxed for Celebrex. Again. Not an overwhelming improvement. but it does help some. If I miss a day, I DO notice it. Also, I take Tramadol (Ultram) for pain. I have both IBD arthritis & Osteoarthritis.

Matthew

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/22/2008 9:39 AM (GMT -7)   
catgiggles, Tramadol is the generic version of Ultracet.
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


potty pooper
Regular Member


Date Joined Dec 2006
Total Posts : 375
   Posted 5/22/2008 5:23 PM (GMT -7)   
I've been taking percocet since my surgery on April 21. Neither my GI or my surgeon feels that it's a problem. I'm not having a problem with constipation, quite the opposite. Have a Gi appt. next week and will ask him about damage to the intestines. I just had mine fixed!!

maggiern
Regular Member


Date Joined Mar 2008
Total Posts : 223
   Posted 5/22/2008 6:18 PM (GMT -7)   
I also have arthritis due to the Crohn's and in between my Remicade treatments I also take ultram, plus my Imuran, and prednisone.  The ultram seems to help but does not last long enough.  I am also happy to see that maybe I can try the percocet, thanks.
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