Need support and encouragement

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Irish Red
Regular Member


Date Joined Nov 2007
Total Posts : 54
   Posted 5/20/2008 7:49 PM (GMT -7)   
 
 

Hello everyone

 

I need to hear that things are going to get better.  I read the forum probably 3 times a day and search for some answers. 

I went to my GI's office today in the hopes of seeing her but she will not be in for another couple weeks.  I have been sick since Jan and things are getting worse.  I had a colonoscopy a week and half ago and since then I have done a downword spirial to a whole other level of pain.  

 

My GI wants me taking salafolk enema's twice a day (morning and night) but my bum is so sore and spastic that I can't keep it all in.  I can't sleep because of the spasms and when I do go I am in severe pain from pushing so hard, but I can't control it.    I have been taking muscle relaxers, pain killers and just took my last sleeping pill to try to get through the night.  I don't even know if I can take these when I am on alll the other meds.  I filled a old prescription for asacol the other day and started taking 2, 2times a day because I figure it can't hurt.  Salofalk is from what i understand Asacol but in a enema form.  I figured since I can't get it all in I might as well take some of the pills as well, as back up. I just took my fourth injection of Humira tonight.I have been on antibiotics for two months now for my fistula which doesn't seem to be getting better to top things off.  Every night I pray I feel better tomorrow and there are times I have relief but the mornings and nights are hell. I don't know how much longer I can do this.

 

I am going to go to a walk in clinic tomorrow to talk to a Family Dr since my GI is away but I don't know what they can tell me that I don't already know. I just want more sleeping pills and to make sure I am not harming myself by taking robaxin (muscle and pain relaxer).  To be honest I don't have a lot of faith in Family Dr when it comes to our disease.

 

I need to hear from someone who understands and can tell me things will get better.  I have Crohns in the first 30cm of my large intestine and have had it since I was 15.  I was recently in remission about a year ago for almost 4 years.  I forgot how terrible this disease can be.

I am still working right now but I am not sure if I can continue if this gets worse.

 

I am sorry for the rant but that is what we are all here for right. 

 

Please someone send me some relief with a tip on how to get through this. 

 

Signed ..... sick of being sick


CD since 1988,

Cocktail of medications ( Remicade included) and have explored many herbal remedies.

Currently experiencing another flair up after 4 years of remission.

 

"Life is like a box of chocolates you never know what your going to get inside" 

Everyone knows that quote... how true how true.


kimberlayn
Regular Member


Date Joined Jul 2007
Total Posts : 239
   Posted 5/20/2008 7:57 PM (GMT -7)   
I'm afraid I don't have any miracle tips for you, I'm sure you know that, but you have all my prayers tonight. Have you been given any pain meds? Asking your family doc for a small prescription, just to get you through until you can see your GI-maybe he will be willing to do that? I know what it's like to be miserable and in pain, and it's hard to see a light at the end of such a long, dark tunnel. But it's there, somewhere. Surgery worked for me, have they considered it for you? May you have a peaceful night tonight, that's my first prayer for you Irish Red. (I'm the Polish Blonde!)
diagnosed 11/06, solving the mystery of years of on/off abdominal pain. No more "it's just a virus". 34f with 2 boys, a lovable dog, and a wonderful husband. 150 mg Imuran, bowel resection 9/07. Doc says no active disease, but flare-ups anyway. 11 year old son with IBS-C, on Bentyl.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/20/2008 8:11 PM (GMT -7)   
:(... *Hugs tightly* Wish there was something I could say that could help... but I don't even know how to get through my own problems... *I'm working on it*


I hope you'll get better... Try to look on the bright side... Hopefully, it won't get worse, right? You can only get better from here! Hope, hope, hope...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Marie-Claire
Veteran Member


Date Joined Mar 2007
Total Posts : 900
   Posted 5/21/2008 3:40 AM (GMT -7)   
Dear one,
I am praying that things will improve for you very soon. ...I often have such terrible nights that I pray God will hit me over the head with a baseball bat so I can be totally out for a few days.Lol.
Keep your courage and determination up. Things WILL get better soon. Keep us posted as we will all worry about you.
Love and prayers!!!!!
Mary
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis
 
 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/21/2008 5:01 AM (GMT -7)   
Hi Red Can you take some time off work so you can get more rest the stress must be high for you now. What about getting admitted for awhile till you get more stable sounds like your going threw a bad go of it. I figure the hospital is the best place when things get beyond our control. Maybe the antibotics are causing sideeffects. Hang in there girl surely the Dr's can give you some help.lol gail

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/21/2008 6:51 AM (GMT -7)   
Do you have any of the antispasmotics like Bentyl or Levsin to try? Those might help some with the spasms you are suffering with. That might be something that you might ask the family doc for. Sure hope you get feeling better soon. I too will keep you in my prayers.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Irish Red
Regular Member


Date Joined Nov 2007
Total Posts : 54
   Posted 5/21/2008 10:29 AM (GMT -7)   
Thank you sooo much everyone. Gail I wrote down the names Bentyl and Levsin and will take it to the Dr.'s office today.

This morning was a little better than the last few so I will keep my fingures crossed that maybe things will turn around soon.
Last week I took some time off but I found if I stay home I just get depressed. If I can get out of the house, it at least helps me get through the day. I hope I can continue to work as it is the only thing keeping me from self pitty. I have a job that is pretty flexiable when you need it so I am fortunate.

All I have to say is thank godness for baths. I must be the cleanest person on the block with 5 baths a day. Right now it seems to be my only relief. That and this forum which helps us pull through . I hope I can be there for someone down the road who needs encouragement.
I have started a liquid diet today as from what I have read it might help.

I will keep you posted on my hopeful progress.. thank you for your prayers.

CD since 1988,

Cocktail of medications ( Remicade included) and have explored many herbal remedies.

Currently experiencing another flair up after 4 years of remission.

 

"Life is like a box of chocolates you never know what your going to get inside" 

Everyone knows that quote... how true how true.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/21/2008 2:58 PM (GMT -7)   
If you're female, Irish... I'd be careful about taking too many baths... I know they feel good... *It's what I used to do to help myself, too...* But... Be sure to go to the bathroom before and after... You don't want to end up with a urinary tract infection... that could aggravate things tremendously... and I'd hate to hear about you being in even more pain than what you are already in...


Oh! Perhaps you should invest in a heating pad... or one of those little massage pillows... sometimes, putting those on the tummy can help you relax...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

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