I need to hear that things are going to get better. I read the forum probably 3 times a day and search for some answers.
I went to my GI's office today in the hopes of seeing her but she will not be in for another couple weeks. I have been sick since Jan and things are getting worse. I had a colonoscopy a week and half ago and since then I have done a downword spirial to a whole other level of pain.
My GI wants me taking salafolk enema's twice a day (morning and night) but my bum is so sore and spastic that I can't keep it all in. I can't sleep because of the spasms and when I do go I am in severe pain from pushing so hard, but I can't control it. I have been taking muscle relaxers, pain killers and just took my last sleeping pill to try to get through the night. I don't even know if I can take these when I am on alll the other meds. I filled a old prescription for asacol the other day and started taking 2, 2times a day because I figure it can't hurt. Salofalk is from what i understand Asacol but in a enema form. I figured since I can't get it all in I might as well take some of the pills as well, as back up. I just took my fourth injection of Humira tonight.I have been on antibiotics for two months now for my fistula which doesn't seem to be getting better to top things off. Every night I pray I feel better tomorrow and there are times I have relief but the mornings and nights are hell. I don't know how much longer I can do this.
I am going to go to a walk in clinic tomorrow to talk to a Family Dr since my GI is away but I don't know what they can tell me that I don't already know. I just want more sleeping pills and to make sure I am not harming myself by taking robaxin (muscle and pain relaxer). To be honest I don't have a lot of faith in Family Dr when it comes to our disease.
I need to hear from someone who understands and can tell me things will get better. I have Crohns in the first 30cm of my large intestine and have had it since I was 15. I was recently in remission about a year ago for almost 4 years. I forgot how terrible this disease can be.
I am still working right now but I am not sure if I can continue if this gets worse.
I am sorry for the rant but that is what we are all here for right.
Please someone send me some relief with a tip on how to get through this.
Signed ..... sick of being sick
CD since 1988,
Cocktail of medications ( Remicade included) and have explored many herbal remedies.
Currently experiencing another flair up after 4 years of remission.
"Life is like a box of chocolates you never know what your going to get inside"
Everyone knows that quote... how true how true.