Just wanted to share...

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JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 5/21/2008 10:43 AM (GMT -7)   
Yesterday I had my 3rd Remicade infusion.  Talking with my doc afterward, he said I could stop taking the Azathoprine!! YEAH!! Two less pills to take and now more blood work.  I've been feeling soooo good!  The best in 5 months. 
Thanks to all of you for your support!  It's such a relief to find others who I can relate with!
 

Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/21/2008 10:46 AM (GMT -7)   
Great news! Howcome you are going off of the Imuran? Are you not reacting well to it?
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp , 20mg prednisone and probiotics.


JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 5/21/2008 10:51 AM (GMT -7)   
Thanks!
For some reason I wasn't responding to the Imuran and that's why I started Remicade.

jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 5/21/2008 10:55 AM (GMT -7)   
Does the Remicade help with the fatigue? I'm currently on azathioprine, and although the fatigue is from my Crohn's, I'm wondering if you noticed that Remicade has helped with your fatigue? I'm willing to suggest anything to my GI to alleviate this constant dragging!
Pentasa- 1000mg/2x 1/08; Percocet/Ultram for pain; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


JenLS
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 5/21/2008 11:02 AM (GMT -7)   
Yes, Remicade has helped with my fatigue.  And, I'm also taking iron supplements.  I still get tired, but it's not every stinking day that I'm dragging. 

chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 5/21/2008 12:34 PM (GMT -7)   
I stopped my imuran last Nov. after being on it for 3 years. It was starting to mess with my liver, so I didn't have a choice. I am still on remicade and have been since I started the imuran. I agree that I feel so much better being off of the imuran also.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/21/2008 4:32 PM (GMT -7)   
Hi JenLS Great to hear you are feeling better .I had to go off the Imuran .Hope things continue to improve for you .lol gail

Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/21/2008 5:32 PM (GMT -7)   
gachrons, did the Imuran affect your liver as well? Seems to happen alot :(
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp , 20mg prednisone and probiotics.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 5/21/2008 7:26 PM (GMT -7)   
Yeahhhh!!!! Woooo Hooo!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/21/2008 9:13 PM (GMT -7)   
Always ready to hear good news. Hope you get better and better.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/22/2008 12:27 PM (GMT -7)   
Hi Mike W No it did not effect my liver. I got a rash I was not on it very long a month but did try it last year for awhile too. lol gail

Mike W
Regular Member


Date Joined Aug 2006
Total Posts : 89
   Posted 5/22/2008 7:11 PM (GMT -7)   
Thanks Gail!
Diagnosed in 1999.
No surgeries.

Age : 31

Currently on 75mg 6mp , 20mg prednisone and probiotics.

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