So, I went for my colonoscopy yesterday. (BTW small bowel series on Friday showed all good--very thankful). Doc was able to dialate rectum and sigmoid colon. Disease action on left and right colon. When he got to the right colon, he saw what he identified as 2
openings. He tried to get in them but couldn't. He was afraid they are fistula
openings. Sent me immediately to radiology for a hydrated barium enema (the one where the contrast is clear). Much drama here as I had to wait almost 3 hours for the test and was an absolute dehyrdated, exhausted week mess by the time I went in. Radiologist tried to do a rectal exam and I SCREAMED. The team decided it was way too tough to do both a colonoscopy and the enema test on the same day. They called my doc who really insisted they do it. So, they used a catheter and we did it. They determined the 2
openings he saw were ulcers. The other results matched his. There were no sinus tracts that got filled with contrast. So, Doc went back to radiology today to see the results for himself. He's still not convinced and wants me to go for an MRI endoscopy. I can't stand the drinks, I'm weak, I have constant D, and I'm out of my head.
I've been with this doc for 23 years and I trust him but I'm wondering if at 36 years old, I need to say NO. I want to start the new med. I want to treat my disease. I'm only on pentasa and immodium.
What do you guys think?
And what is your experience with the MRI endoscopy?
I am so freaking out!!!!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa