Illini, that's a good idea. I didn't have a test for an infection, but I've had burning down there that comes and goes for years and I usually tested neg. for a uti, so I just stopped getting the tests. they just figure it's the cd. So now, the burning comes and goes the same as before, but now I get these pains where my kidneys are. the same kind of sharp come and go pains I get in my ileum.
I paused the 5asa until I can get to a dr who will regularly test me for any neg. side effects. it wasn't that helpful anyway.
now I'm worried that because I'm not taking it, damage could be building up in my kidneys from the inflammation.
I hope it's not kidney stones, I had a friend with them and they were excessively painful. my pain is worse on days when I don't drink enough water. I guess it could be the beginning of some tiny stones?
Beth75, thanks for the warning. I know it's not likely but I have to be aware of all possibilities.
I have to call the doctor's office to get results from yesterday's urinalysis. OMG, now there's MCD! I already have very low blood albumin, though from what I've read that's an early Crohn's symptom. One that my other GP shrugged off for years.
When you get MCD from 5ASA, how is it usually found? Urinalysis? I don't want to start the 5ASA with regularity until I get a baseline test for my kidneys and liver, but no one will do it until I find a new GI. So I guess I need regular urinalysis to make sure the 5ASA is not damaging my kidneys?
In the meantime, everyone's saying I should just take the 5ASA asap. But with the hair loss, the lack of monitoring, the risks, the general ickiness of it and the fact that it didn't help in the short term, I am just hanging in with dietary changes for now.