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Artc
New Member


Date Joined May 2008
Total Posts : 15
   Posted 5/23/2008 4:41 AM (GMT -7)   
Hi, this is my first time on the forum.
I am a 49 yrs old from Singapore.
I was dx'd with crohns about a month ago after suffering bloodly stool, lost 15kg within a month, abdominal pain,high fever. Admitted hospital 2x.
I am on prednisone 30mg/day,metronidazole 600mg/day,Azathioprine 50mg/day, ciprofloxacin 1g/day & mesalzine(salofalk) 750mg/day
Currently having constant fatigue, muscular pain on the lower left leg.

 

Reading as much posts in the forum as possible to gain how people with this CD cope.

Do you guys have a slight fever on and off?
I don't believe having a flareup as I just discharged from hospital 3 days ago.
 

Appreciate any advise. So confused and don't know how to cope with this CD.


 

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/23/2008 5:20 AM (GMT -7)   
Hi Artc Welcome to HW and we are glad to have you here .Crohn's can be a bit mind boggling at times and it does help to have a good support system as we have here. I don't get temps. but some do,I get night sweats bad and there are lots here that do. Yes crohn's has a lot of different problems and I have found alot of comfort from being on here. I was getting muscular pain awhile back to the point where I used a crutch for a few days it helped with walking .It has gone away for now. Hope you feel better and continue to improve. lol gail

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 5/23/2008 5:29 AM (GMT -7)   
I do get fevers on and off. If the Crohn's is active, I get a fever for maybe a few days to one week every month. Sometimes very high fevers (>39 C) with chills and night sweats.

Just thought I would mention--I have read that NSAIDS (drugs made with aspirin, ibuprofen, and naproxen) can damage your intestines. So you might want to take Tylenol (Acetaminophen) for your fevers if you need to take anything.

Some people on the forum, when they feel like they might be flaring, go on a liquid diet for a few days. You could make it at home--drink broth, milkshakes--or buy a liquid meal replacement at the store. Using a meal replacement drink in addition to eating will also help you gain the weight back. Recently I lost a lot of weight and when I was at my lowest I felt tired and empty all the time, but that improved. When I started gaining weight again. Right now I eat food and get 1500 calories/day from a high calorie meal replacement drink.
 
It is also possible that the meds make you feel fatigued (esp. Azathioprine, though you are on a relatively low dose) and prednisone can cause joint pain, as well as the Crohn's itself. If your pain is in the calf muscle, that may mean you are low in potassium. Try eating foods with more potassium--bananas are probably a good option.

Hope you feel better soon.


July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying...
Enteral Nutrition, Omega-3 (Flax Oil and Fish Oil), VSL#3, Vitamin E, Folic Acid, Psyllium

Post Edited (Illini) : 5/23/2008 6:35:18 AM (GMT-6)


Artc
New Member


Date Joined May 2008
Total Posts : 15
   Posted 5/23/2008 6:18 AM (GMT -7)   
Thanks for your reply gachrons.Illini,


Illini,
So fevers on and off is normal for active Crohn?
What kind of liquid meal replacement do you recommend?
Read so many peoples staying away from high fibre and diary diet that causes flareup. Should I sustain from them now?

Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 5/23/2008 6:35 AM (GMT -7)   
Hi Artc welcome to the forums.I get fevers as well sometimes and yes it is part of Crohns. Hopefully some day there will be a cure for this awful disease but the meds are getting better.
Crohns for 11 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 5/23/2008 6:43 AM (GMT -7)   
Regarding the muscle pain in your leg, be aware that ciprofloxacin can cause ruptured tendons, including the Achilles' tendon. I don't mean stop taking the drug, all drugs have potential side effects, just be alert and contact your doctor if this seems like more than a simple muscle pain.

Illini
Regular Member


Date Joined Dec 2007
Total Posts : 298
   Posted 5/23/2008 6:45 AM (GMT -7)   
Yes, fevers are common with Crohn's.

In the US you can buy products in the grocery store such as Ensure or Boost which come in bottles. There are also powders such as Nestle's Carnation Instant Breakfast.

There are meal replacement liquids you would obtain from a doctor or pharmacy. Some of these products are made by Nestle and include Peptamen, Nutren, or Modulen IBD which is a powder. Personally I use Nutren 1.5. It provides 375 calories per can. Abbott (Ross) and Novartis make many others.

Would it be possible to talk to your doctor or maybe a nutritionist, since these brands might not be available to you, and find out what is available in Singapore?

Doctors do recommend a low fiber diet. I think you should avoid dairy only if you notice it makes your symptoms worse. Actually I find yogurt is good for me, so I eat it often.


July 2007 Drug-Induced Liver Injury
January 2008 Crohn's Ileitis
Currently trying...
Enteral Nutrition, Omega-3 (Flax Oil and Fish Oil), VSL#3, Vitamin E, Folic Acid, Psyllium

Post Edited (Illini) : 5/23/2008 7:48:02 AM (GMT-6)


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/23/2008 7:33 AM (GMT -7)   
Also to add to what others have written, leg pain can also be due to levels of vitamin B12 being low. If you are suffering
with constant diarrhea, I would ask to have this simple blood check.

Welcome, hope to see you often.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts

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