solution the "new" word for "cure'!!

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dunny2
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Date Joined Jan 2007
Total Posts : 3200
   Posted 5/23/2008 7:07 AM (GMT -7)   
I am so tired of those out there, ready to pounce on unsuspecting individuals. Don"t you people realize that most
of us are so sick, and the last thing we want to hear is a bunch of "mumbo jumbo" Don't you think our doctors would
let us suffer needlessly, as part of the hypocratic oath says "first do no harm", if there was a 'solution' they would have
used it by now.

So thanks moderators, for doing such a good job!!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/23/2008 7:37 AM (GMT -7)   
Dunny
Thank you for your post
It is true we get SO many "quick cure all " for this DD dont we??

It is appreciated that you have taken the time to thank the mods
The members on this forum are great at spotting the snakeoil salesmen and "cure alls'
As well so WE appreciate all of you's as well for helping to keep this forum running smoothly

Take care and again'
THanks........LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE
 
   
 
                   
 


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/23/2008 9:26 AM (GMT -7)   
dunny2, I completely agree with you about "solution" being the new word for "cure."  Then they can (and do) say that they never said their product would "cure" Crohn's.  To me, saying you have a "solution" to an incurable disease is basically the same thing.  And yes, thanks moderators for getting rid of the junk that will be a waste of our time.  It makes me mad to have someone use my illness and my...don't want to use the word desperation...strong desire for relief for their own financial gain.  I can say that in the several months I've been on here, I haven't had to deal with many of those people, thanks to the moderators and the other members.  Thanks everyone for looking out for each other and for offering support...sometimes, you all are the only ones who really understand.  Have a happy and safe Memorial Day weekend. 
...rejoice in our sufferings, because we know that suffering produces perseverence; perseverence, character; and character, hope.   Romans 5:3-4


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/23/2008 9:46 AM (GMT -7)   
I agree so much with you Dunny, I too am so tired of these scammers.  I appreciate the moderators as well for stopping this.  I also appreciate that certain things work for some, but everyone needs to remember they don't work for ALL.  I feel that way also when folks say this or that is the cause of Crohns.  There are way too many possibilities that I don't think anyone has the answer yet. Crohns is way too individual.  I worry that those who are newly diagnosed will grab on to the questionable information and could possibly be hurt by it. JMHO

Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Erik45
Regular Member


Date Joined Oct 2007
Total Posts : 149
   Posted 5/23/2008 10:15 AM (GMT -7)   
I with you all on this "quit trying to make a quick dollar on us we have enough problems with our health"
So take a hike you people with your juice cures lol!!! We heard it all..
Thanks from me Forum Moderator for keeping them out.
Crohns for 13 years
1 surgery so far
2 times in hospital for blockages
MEDS:
Remicade
Imuran
B12 Injections


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/23/2008 10:29 AM (GMT -7)   
Maybe I am just too optimistic but what if one of these alternative treatments was really helpful? Don't you think that many people thought probiotics were spam suggestions until some tests were done reviewing it? I agree that no one should be trying to make a buck off sick people by selling some sugar water.  But if there is some alternative treatment that may work for some I would like to just know about it... and use my own reasoning skills to decide if it is worth the investment or not.  I understand that they are blocked because it violates forum rules.  What if we had a thread for "commercial interests" and then if you aren't interested you don't read it? I'm on the fence on this one.  I don't want anyone to lose money buying into a fake cure but at the same time so many odd things have worked for so many (chinese medicines, probiotics, digestive advantage, aloe vera, calcium) that it is worth hearing everyones story.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/23/2008 11:03 AM (GMT -7)   

Unfortunately there are a lot people out there wanting to take advantage of those who are desparate for answers, and relief. People selling "snake oil" cures have been around for hundreds of years. So this is nothing new, just the addition of the internet provides a new way to prey on people.

That's not saying all natural treatments are snake oil. But you really need to do your research, AND talk to your doctor first.

A lot of things haven't really been proven either way IMO either. Look at the fish oil. I just read a study the other day, now they are saying it didn't help people with Crohn's. So it's just important to keep your doctor in the loop, and do your reading! Because not only could you lose your money, but it can be down right dangerous for your health too!



~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/23/2008 11:19 AM (GMT -7)   
Bottom line, what works for some doesn't work for all, it's trial and error...my daughter told me about noni juice helping 2 people with crohns out to the point of full remission for both of them (she heard from a friend of a friend) it's probably true, BUT that doesn't necessarily mean it will work for every IBDer...

I still like to think for the most part that people offer what has helped them (just as I do) but you cannot force anything down anyone's throat so what I don't understand is why not just ignore (instead of fight) the post that come across as scams?

There's no perfect world, even here at HW there are all walks of life.

I know the newbies might get confused about "cure" claims and as a community we need to protect them but there are better ways of dealing with it then arguing back and forth.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 11:50 AM (GMT -7)   
I agree with Jen.... I think people like us... with Crohn's disease... or other autoimmune diseases... need to be especially careful when trying such things, too... I mean, we're already sick... and... someone here said they don't like the word desperate... but... that's very accurate for a lot of people... I know it's very accurate for me... :(... Despite feeling this way, though, I try to keep vigilant... because I don't want to end up taking something... and then getting worse...


I don't think any one food or juice would ever be significant enough to actually cure Crohn's... I think some foods and juices might help someone with Crohn's feel a little better, though... Like... some yogurts, perhaps... And then... Just ordinary, easy digestible comfort foods...


I've heard that papaya juice has digestive enzymes in it... So, that could possibly help someone feel a little better... *I haven't tried it myself... I'd like to get my hands on some... because I really like juice... and if it helps with digestion, that's a bonus...*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


bektold
Regular Member


Date Joined Jul 2007
Total Posts : 456
   Posted 5/23/2008 12:02 PM (GMT -7)   
At the suggestion of an experienced Crohnie, I bought a bottle of chewable papaya enzyme tablets about a year ago, shortly after diagnosis.  They may have helped a little bit, but I can't honestly say I used them regularly enough to know for sure.  I was very ill at the time, just out of the hospital and trying to get my meds properly adjusted.  Now that things are more controlled, I may try them again.  I'd really like to go from "technical" remission to asymptomatic remission.  Wouldn't that be heaven?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/23/2008 12:42 PM (GMT -7)   
The supplement form of digestive enzymes do help alot of IBDers, luckily I can eat the natural ones, pineapples, papayas, kiwis and mangos are tolerable and very effective for me when eaten after meals, they help break food down in the digestive tract so your system doesn't have to work as hard...others have issues with eating these fruits, some do well with their juices...it's trial and error for all.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/23/2008 12:46 PM (GMT -7)   
You know for me anyway, it depends on how the person comes across. If they are a long time poster, or just another patient even, giving a suggestion of something that works for them, I think that's fine. If someone told me about a certain probiotic that I should look in to, talk to my doctor about ect... I'd be good with that. I've gotten a lot of really wonderful advice, and tips over the years from others who have tried different things. But I become VERY wary of anyone claiming something cured them, and they are selling it for a profit themselves. I don't think it's anything to fight over, but I can see why others get upset by people trying to peddle products to the ill. You just gotta be careful, that's the best advice I think.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 12:52 PM (GMT -7)   
Yeah... The whole papaya juice thing was recommended to me by a friend... And he wasn't pushing it off as a cure or anything... He just said it had digestive enzymes in it... and that it might help.... And any little extra help I can get, I'm willing to go for that... Plus, as I said... I like juice... And juice is generally good for you, anyway... what with the vitamins and all... :)....


*Have to be careful about drinking too much citrus fruit juice, though... it can bother me sometimes... a little bit every now and then is okay... but if I drink too much at one time... man... //@.@\\'...*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/23/2008 1:38 PM (GMT -7)   
hehe Yeah, I can't drink too much citrus fruit juice either. I really like juice too, but it's like a natural laxative if I drink too much!! :)
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 1:53 PM (GMT -7)   
Ehh... My problem is that it starts burning my throat really bad... Think maybe it causes some acid reflux or somethin'.... (Not a common problem for me, but it occurs every once in a while...)... Sometimes, causes burning pains for my tummy, too...


But that's only if I drink too much... like I said... a little now and then doesn't bother me...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 5/23/2008 6:56 PM (GMT -7)   

Here is a cheap solution from the UC board.  I cringe at the nuts but I do love spinach and rarely eat it at home.  Think I might start.

http://www.healingwell.com/community/default.aspx?f=38&p=1&m=1132491


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/24/2008 8:20 AM (GMT -7)   
Interesting thread. OK here is my beef -- why can't miracle cures taste wonderful?? My preference for a miracle cure would be that I HAD to eat a handful of scrumptious cookies at least twice a day (more would be better). Or maybe at least once a week I had to eat a delicious steak (I do love cow), corn on the cob dripping with butter, all followed by an ice cream sundae. Yum!!! "Just a spoonful of sugar helps the medicine go down....."

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/24/2008 8:24 AM (GMT -7)   
Have you guys seen the TV commercial about crohns ? The jest of it is, if you have symptoms your crohns may not be under control ,so see your doctor.. Well Duhhhhhhhhhhhhhhhhhhhhhhhhhh..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/24/2008 8:39 AM (GMT -7)   
Wow!!! I'm soooo glad they told me that. Me too stew-pid to no. Gess I need to by d'eir miracle cure too.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/24/2008 9:50 AM (GMT -7)   
HAHA! No kidding, that's just such a huge help isn't it?
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/24/2008 10:18 AM (GMT -7)   
Thanks Dunny. Sniper,:)! Fall Colors I can take some cheesecake meds. Love the idea!

Fitzy I have found that on good day sometimes food processed and then juiced spinach is cool (granted there is d, but not a tremendous amount of blood, no more then normal). I have end up food processing and then juicing a lot of stuff.

I have a problem when we have newbies that see this whatever juice as the cure to their symptoms. Main thing is do your research, and do whatever you feel is best. This is a highly individualized disease. The big problem is when people are trying to sell something.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Malshay
Regular Member


Date Joined Jan 2012
Total Posts : 45
   Posted 2/18/2012 9:13 PM (GMT -7)   
As a new member I may be out of line but understanding that there is no cure for Chrons..I have accepted that but as far as doc's doing all they can is contoversial. There is such thing as Insurance and pharmasutical companies "running: the show. If they cured everything those companies would be out of business. I mean think about it. Not to mention hospitals and doctors. In a nutshell..keeping some people at bay and on meds is what keeps the health care going. If they came out and gave the actual cure for "incurable diseases then thier kickback from those companies would be at zero. Really this goes on.

jpnutritionfirst
Regular Member


Date Joined Apr 2009
Total Posts : 383
   Posted 2/18/2012 10:12 PM (GMT -7)   

I think it's unfortunate that so many people on here are demonizing profit motive.  That's a powerful force that may eventually bring about a cure for these diseases (despite the fact that now it seems like the profit motive is pushing pharma companies to make drugs you take every day instead of a one-and-done cure).  And there's a lot more to medical research than you may think.  There are a lot of political forces behind what gets published and even the structure of studies is now being seriously questioned (i.e. randomized controlled trials will no longer be the ideal study to run). 

The bottom line is that big results require big changes.  An herb or supplement will unlikely bring about a significant change, though it may help somewhat.  Changing your diet around drastically and continuing it for several years may be the answer for some.  It's a fact that there are people who no longer experience symptoms of this disease and they all figured their own way out, but the vast majority of such people were on a diet of some sort. 


Crohn's diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Low-dose naltrexone 7/5/10 - 2/8/12
Boswellia + vitamin D 5000IU + sulfasalazine 2grams daily

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 2/19/2012 3:20 AM (GMT -7)   
 
I think that in today's society there are increasing numbers of people who have been diagnosed  with many illnesses/conditions.
Personally I do believe that what we consume contributes to this(never used to believe this up until a few years ago lol)
The majority of our meat is intesively reared and pumped full of drugs. Fruit and veg is 'forcefully' grown under artificial conditions and sprayed with insecticides/pesticides. The earth is depleted of all minerals and never given a chance to recover. 
Food from stores is pumped full of preseravtives/sugars/salt/chemicals for altering the colour of such items etc. The list is endless. Unfortunately we want cheap/convenient food and that is what we are getting only along the way we have lost nutritional value and gained needless other toxins.
 
I agree with jp that big results require big changes and you know what it isn't easy.  

Crohnswifey
Regular Member


Date Joined Jan 2012
Total Posts : 70
   Posted 2/19/2012 9:22 AM (GMT -7)   
dunny2- do you mind elaborating- what made you feel this way? Which late night infomercial? Or was it an online link? Just curious.
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