What can I do to get relief?

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Brian DK
Regular Member


Date Joined Jul 2005
Total Posts : 41
   Posted 5/23/2008 7:10 AM (GMT -7)   
I was diagnosed 6 years ago with crohn's and have very little problems ever since.  But, for the last 2 1/2 weeks, I have been having I have had cramping, bloating, a bubbling feeling, and unable to use the restroom when I feel like that would help me.  I go to the gastro Dr on Wednesay and just called to try and get in sooner, but can't.  I am not sleeping well because I don't feel good.  I don't have any severe pain or I would think about going to the ER, it is just constant discomfort at this point.  I am hungry, but am afaid to eat.  Do you think drinking Prune Juice would help give some relief?  What other foods could I eat while feeling like this won't make me feel worse?  I have thought about taking more Asacol as well, but not sure I should do that without talking to the Dr.  I just don't know what to do now.  Any thoughts?
 
Thanks

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/23/2008 7:36 AM (GMT -7)   
Brian I think at this point, I would wait to see what your gastro as to say. Are you moving your bowel at all?
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


Brian DK
Regular Member


Date Joined Jul 2005
Total Posts : 41
   Posted 5/23/2008 7:45 AM (GMT -7)   
Hi Vicky,

I am going to the bathroom, just not real well. I always feel like if I could just go really well, maybe I would start feeling better. So, I don't have any total obstructions at this point I guess. I just haven't felt like this before and this has been a terrible 2 weeks. I can't work very well because of this discomfort.

belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 5/23/2008 7:53 AM (GMT -7)   
Brian I would be drinking lots of fluids and maybe go on a very low residue or liquid diet. If your issues at the moment are constipation, several of the crohnnies on this board use products like miralax, others use fibre supplements. The problem is that it doesn't sound as though you have a terrific awareness of what's going on inside you. Am I right in thinking that your attitude since diagnosis, is to basically ignore the fact that you have a chronic illness?

Sort of like, "Yah, I know I have crohn's disease, but I'm lucky, it's just a mild case and i can handle it. No problem."

So while you've been busy getting on with your life (and who would blame you) the disease has been quietly perking along inside. You have been non-compliant in taking your medication and, because it is "mild" case you haven't experienced any full-blown crises. And now something isn't right and you haven't a clue what your body is trying to tell you.

It is very hard for any of us to know either. What will provide you relief depends so much on what is causing your symptoms. In my experience constipation in crohn's can be from very different causes. It can mean that you're bowel is narrowing to the point that things are getting backed up. It can mean that your inflammation is settling down and you need to now add fibre to your diet. It may mean that the nervous system that controls the bowel's peristalis is impaired.

Maybe you have a reached the point in your journey with crohn's to begin paying attention to what your body is trying to tell you. Start a food\symptom journal. See whether you can correlate symptoms with what's going on in your life and your stomach. Most important have a thorough discussion with your GI and make a commitment to take this disease seriously.

You need to start from ground zero and begin to build a relationship with your disease and with your health care providers.

I've been where you are and this is said with the very best wishes
Belleenstein:

30+ years living with Crohn's.


Brian DK
Regular Member


Date Joined Jul 2005
Total Posts : 41
   Posted 5/23/2008 8:02 AM (GMT -7)   
Wow, that sums it up totally.  I have been pretty open in telling people I have crohns, but have not avoided eating any foods or really paying attention to symtoms.  I really didn't have any symtoms accept the occasional diahera after a meal or a few pains here and there.  You are correct with the medication as well.  I have been very bad about taking that too :(  I am 27 and just thought that maybe everything would remain as it is.  I haven't read a lot on crohns or know a terrible lot about the disease.  I know in general what it is, but no details that would benefit me, esspecailly in a time like this.  I don't know what to be eating, or if to be eating at all.  I am sipping on water right now, hoping that will help loosen things up or take some of this pressure I feel away.  Thank you veyr much for your reply.  You are 100%, I need to start understanding the disease better and acting accordingly.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/23/2008 9:48 AM (GMT -7)   
Hi Brian Where is your crohn's located? Mine was in the TI area and with the narrowing I could not get my bowels to move just water was coming out. You remind me of when I had my abcessin my abdomin I started thinking prune juice too.Have you had a ultra sound to rule out abcess?Ask your Dr. what is best when you see him for those times you cain't go. Low roughage is foods that are easy to digest like minced meats, veggies cooked really soft, white bread, tuna ,creamed soups,jello ,puddings ,stuff like that. I eat corn flakes for breakfast for bulk.I think if you still have gramps and constipation you might need more testing done or a different med. Hope this helps you some. lol gail

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 11:38 AM (GMT -7)   
My constipation is still pretty bad.... but... it's a bit better than what it was since I've added more fiber to my diet... and I've been taking in a lot of fluids... and I walk a little bit every now and then, too.... I don't get cramping pains anymore...


*I still get sharp, stabbing pains, though....* :(...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Brian DK
Regular Member


Date Joined Jul 2005
Total Posts : 41
   Posted 5/23/2008 12:44 PM (GMT -7)   
Thanks for the replies.  I am hoping that in maybe I will start feeling better.  I have been drinking lots of fluid today and have only had a few crackers and a piece of bread.  No fun, especially on Memorial Day weekend.  I am very glad this site is available so I can talk to others with similiar problems.  Thanks again.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 12:56 PM (GMT -7)   
What kind of fluids are you drinking?


You can't live off of crackers and a piece of bread.... People with Crohn's have a tendency to be nutrient-deficient, anyway....


Perhaps you should look into buying a nutrition drink.... *Lot of people here can recommend one, I'm sure.... I drink Ensure myself... or... the generic brand, anyway (just as good)...*


This way, you'll at least have some nutrients in your system while you're trying to deal with the disease....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


not creative
Regular Member


Date Joined Mar 2007
Total Posts : 466
   Posted 5/23/2008 3:57 PM (GMT -7)   
I'm going to second Celey's recommendation for fluids. Get a supplement drink so you can stay up on the nutrition when you're avoiding food. I drink target brand ensure...it's helpful and I find it makes me feel satisfied so I don't feel hungry.
Laurenne, 23 Student @ University of California, Davis.
Dx'd w/ IBS and CD in 2002
On Humira, Strattera, Zoloft, (Multivitamin, Flax Oil, and Omega complex when I remember.)


Brian DK
Regular Member


Date Joined Jul 2005
Total Posts : 41
   Posted 5/23/2008 5:40 PM (GMT -7)   
I will go pick some of that up.  I have been drinking chicken broth all day and water.  I am starting to feel a bit better, but as you have stated, I am not getting any nutriution right now.  I haven't gone to the bathroom all day either, but I guess if I haven't been eating  what can I expect.  I ate some yogart too, that was about 3 hours ago and so far I don't feel any worse off of that.  Wednesday can't come soon enough, I hope I get something that will get me back on track.  Thanks again for all the recommendations and words of encouragement.

Crohn'snme
Veteran Member


Date Joined Feb 2007
Total Posts : 734
   Posted 5/23/2008 8:35 PM (GMT -7)   
Brian, If you aren't feeling better, go get seen. I usually switch to soft, liquid diet when I'm having problems. My guess is your having pains for a reason, that reaon needs to be figured out by a doctor. So go and be seen.
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