Joint pain even on prednisone?

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Jen77
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Date Joined Mar 2006
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   Posted 5/23/2008 7:45 PM (GMT -7)   
Do you guys still get some aches and pains even though your on steroids? Now, I've had a painful spot on the bottom of my foot since yesterday. But I did step on a stinkin thorn (ouch!) so I think that might just be it. But today my hands are achy. I did a lot of cleaning with them yesterday, so maybe because of the Crohn's if I over use them they'll hurt?
 
I just don't want to start having problems, while even on steroids. I'm getting ready to lower to 30 mg this weekend. I'm doing wonderfully tummy wise, no D or pain. No more swelling, but still a little achy. Anyone think that's normal? Who knows what normal is anymore huh? LOL
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Crohn'snme
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Date Joined Feb 2007
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   Posted 5/23/2008 7:55 PM (GMT -7)   
I put off taking that evil med till absolutely necessary, so I don't remember for sure.  I don't remember these type of pains.

Jen77
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Date Joined Mar 2006
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   Posted 5/23/2008 8:11 PM (GMT -7)   
Oh I know it's an evil drug, but it's been a life saver at this point. Mainly all I have is a little puffy cheeks as a side effect. I've even gotten used to the mood swings lately. Doing quite well on it actually. I'll take the puffy cheeks any day over the banana sized lip I had and the swollen joints! Not to mention all the D and pain. Sometimes it's just a necessary evil!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
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Date Joined May 2007
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   Posted 5/23/2008 8:18 PM (GMT -7)   
Well... Jen.... I'm on 40 mg of prednisone.... and I've been having really bad joint pain.... :(... Don't know what my deal is....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Jen77
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Date Joined Mar 2006
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   Posted 5/23/2008 8:19 PM (GMT -7)   
Sorry to hear you're having pain too Celey. I'm guessing we'll have some pain no matter what we do, with having this joint involvement. I probably just can't over use my hands like I used to. Lovely!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Sharann
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Date Joined Sep 2005
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   Posted 5/23/2008 8:25 PM (GMT -7)   
Yes, I for sure get alot of miscellaneous joint pains on pred which stop when I go off it. It sucks. If you get severe pain in one joint especially a hip, call the doc right away.
I am a Certified Doxie Lover(Weinerdogs)


Celey
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Date Joined May 2007
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   Posted 5/23/2008 8:27 PM (GMT -7)   
I know the prednisone is helping a little bit... with my tummy pain... but... I am still having tummy pain, and it still hurts quite a bit (just not as much as it did)... I'm not well at all... I feel really bad (especially today...)... *Sigh*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 8:28 PM (GMT -7)   
:(... I've been having hip pain.... *I am seeing a doctor about it, though... I've had some X-rays done (of my lower back, knees, and ankles)... I won't find out the results until next Friday, though...*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 5/23/2008 10:16 PM (GMT -7)   
Oh geez, so the prednisone can actually CAUSE some joint pain? That's all we need huh? I haven't had any hip pain yet, just in my hands and feet mainly. I'll keep an eye out for the hip pain.

I hope you start feeling better Celey. I know the pred is helping me a lot, but I guess nothing is going to make us completely well huh? Guess that would be asking for too much! *sigh* I'm still waiting for my referral to a rheumatologist to go through. They were supposed to look over my case, get in touch with my insurance and call me. That was 2 weeks ago. So I'm aways from getting any answers on the joint pain, besides them just saying Crohn's related.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 10:18 PM (GMT -7)   
I thought prednisone was suppose to help with joint pain....



I know prednisone can make your body feel kind of sore, though... like... when you put on clothes, it can hurt, sometimes.... *I'm starting to have that problem with the prednisone now, too*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 5/23/2008 10:26 PM (GMT -7)   
I thought it was supposed to help too! Wel I guess it has, because I was having joint SWELLING in addition to pain. The swelling is gone, so that's good. Maybe that's what I'm having, soreness.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 10:36 PM (GMT -7)   
Well... For me... Usually the soreness comes on my back and shoulders and arms... and it's only if I'm putting my clothes on... or if someone touches me in those spots or if I lay down for too long... It's different from the joint pain... *Sounds like you're having joint pain (because its just your hands and feet)... not soreness... Not sure if Sharann was experiencing joint pain or soreness, though... because the 'miscellaneous joint pain' kinda sounds like it was all over... or spread out or somethin'... Then again, she mentioned the thing about the hip, so... dunno...*


I can tell the difference between the soreness and the joint pain, though.... my back pain is lower... get throbbing... and a sort of... sharp ache... Hips are the same way.... Feels like I need to crack my knees or somethin', but I can't get them to.... And my ankles... well.... I don't think just prednisone-soreness would make them get so weak and pained as they do....
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 5/23/2008 10:40 PM (GMT -7)   
Oh, I definitely got what your describing in my back the first week I started the pred. It was a throbbing like pain, pretty awful too. For me it would happen when I'd go to sit down after walking around. It would throb for a few minutes then stop. After a week or so I stopped getting it, figured I just adjusted to the meds. But yeah, that is different then this joint pain. I just hope I'm not going backwards and not responding to the pred now. That's all I'll need.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/23/2008 10:51 PM (GMT -7)   
Well... You're still doing good tummy-wise, right? :)... Think it means the prednisone is still working for you... Hope it stays that way, too...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


LBJ
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Date Joined May 2005
Total Posts : 511
   Posted 5/24/2008 4:11 AM (GMT -7)   
Thats when my joint pain and tummy issues felt the best!!! Sorry I'm not much help.
I didn't like everything else it did to me. It blew me up like a balloon, I was hot all the time, ate everything in site,
When I was up on 80mg it actually broke me all out on my back and chest. It was awful!!!

Jen77
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Date Joined Mar 2006
Total Posts : 2690
   Posted 5/24/2008 8:01 AM (GMT -7)   
Yes, tummy wise, doing great. So it's still gotta be working. My foot I still think was because of that thorn I stepped on. Didn't think it did that much damage, but then again I did have to physically pull it OUT of my foot. Someone tracked it in the house from outside.

My hands are better today, I think I just over used them cleaning the other day. So I'm hoping I'm just over paying attention now to all the little aches and pains of life. Right away I want to associate everything to my flare up!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/24/2008 1:29 PM (GMT -7)   
That happens.....


LBJ, you got really hot while you were on prednisone??? (That's kind of a relief... I have been getting very hot lately... and I was associating that with the flare-up... not prednisone... so... it's probably the prednisone)...


Weird... I'm only on 40 mg of prednisone and it's already got me breaking out on my back and chest and shoulders....


And I still don't feel good... :(
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Sharann
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Date Joined Sep 2005
Total Posts : 778
   Posted 5/24/2008 2:19 PM (GMT -7)   
The hip pain warning is to something that is rare but happens to some on pred which is Avascular necrosis of the hip. It can damage the hip joint alot and is serious. This is not to scare anyone, just to be aware.
I had pains in my feet, wrists and fingers on the pred. I also got general achyness like the flu. Pressure on many areas also hurt. I think that this is quite common apparently. I do like the quick "remission" of CD symptoms it produces.
Just wanted to clarify :)
I am a Certified Doxie Lover(Weinerdogs)


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/24/2008 2:22 PM (GMT -7)   
Ahhh... Okay... So, ya had joint pain and the general soreness (which I believe is definitely caused by the prednisone...)


Hmmm... :|.... Well... It's a good thing I had X-rays done.... *Hope my hip pain isn't being caused by something like that....*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 5/24/2008 2:23 PM (GMT -7)   

Hi!  Prednisone is a strange drug for sure!  I didn't have any joint pain until I started prednisone, and it gets worse when I am going down on a dose.  It is mild, though, but does vary directly with the dose.  Also, I get hot, too, and have what feel like strong hot flashes. ( I am familiar with "regular" hot flashes from menopause).  I got facial acne, too when I first started, but it went away.  Although I do have Crohn's, I was taking the prednisone for autoimmune hepatitis.  My Crohn's was slightly improved by the prednisone, but basically remained mild. 

Good luck, guys

 

Just a thought...why do we always have a bunch of diseases!!! It just doesn't seem fair mad mad yeah


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 5/24/2008 5:47 PM (GMT -7)   
Prednisone can actually cause a fibromyalgia flare.

If you have fibro, the pred will sometimes cause it to act up. Someone above said that it hurt to be touched, that sounds like fibro.

Some of the members on the Lupus forum have both fibro and lupus and they do suffer when they have to go on prednisone.

Also . . . when you are doing the pred taper, your joints can hurt as you get down into the single digits until your own body starts making cortisone again. That's one reason you need to do the end of the taper VERY slowly if you've been on pred for a while.

Just a thought.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

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Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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pix
Regular Member


Date Joined Mar 2008
Total Posts : 134
   Posted 5/24/2008 6:50 PM (GMT -7)   

Dear Alwaysrosie

Thanks for the information and confirmation of my joint experiences.  I have been on a very gradual taper, having been on pred 40mg for around one year.  I went from 2.5 every other day to none--(seems gradual enough :-) ....), and I feel stiff and achy.  It is so weird how pred helps joint disease, yet can cause joint pain even if you don't have any joint problems.   mad

All I have to say is that I hope I never have to be on it again!!

pix


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/24/2008 7:06 PM (GMT -7)   
I'm hoping I can get put off the prednisone... try some other medication or somethin'... because I've been on it for so long...


Thing is... Won't be able to talk to my GI about it until he's done celebrating his daughter's marriage.... *Sigh*
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/24/2008 7:41 PM (GMT -7)   
Well it's good to know that the pred is still working, and that it can actually cause some joint aches. My hands feel good tonight, foot still bothering me, but I'm going to hang on to thinking the thorn did it. My poor doggie got on stuck in her paw tonight, those things are so evil!

Meanwhile gonna try and taper down to 30 mg tomorrow (from 35mg). Lets hope it goes well, I'd like to get off of it eventually myself here!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 35 mg, Asacol, Questran, Toprol XL (for high blood pressure).


Celey
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Date Joined May 2007
Total Posts : 1284
   Posted 5/24/2008 8:08 PM (GMT -7)   
How long have you been on the prednisone, Jen?
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

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