I just spent about 20 minutes on the toilet feeling immense pain, missed class, so I thought I'd write a post about what I was thinking.
Has anyone who has been told they are in remission not feel pain? Like, even though I was said to be in remission because they did blood work and a colonoscopy and said the inflammation was minimal or not even there, I still had lots of pain weekly. My old GI would just write off the pain and tell me to take Tylenol, but that never helped. My new GI isn't ignoring my complaints of pain (like I said in another post, he thinks something else may be wrong with crohns or something else wrong entirely) because the pain gets so bad that I can't even focus in class. And the pain is just really strange. I've felt the pain since I was at least 12. It alternates between a bubbly sensation, numbing pains (they hurt, but they also have a tingling feel...kinda like when a leg goes to sleep but more painful), and sharp pains.
I've read in other posts that some of you get those pains, but also that some of those people have IBS too. Is IBS even really treatable? I was always under the impression that IBS meant "we don't know what's wrong with you, but something is", and so they couldn't really do much.
I realize that a lot of this is also effected from diet, etc, etc. But right now my diet is pretty well. I only eat chicken or turkey (I don't like the taste of fish). I stay away from fried foods or foods with lots of fat in them. I also stay away from caffiene as often as possible (sometimes I really want a coke though...). I just feel frustrated that the only time I feel good is if I eat just plain white rice or baked potatoes (no skin, of course). It's such a bland diet for someone who LOVES spicy indian or thai food.
Dx with crohn's since Oct '04.
Have had symptoms since 2000.
Recently changed GIs, new GI is thinking something else may be wrong.
I see him on June 4th. Wish me luck.