Questions about pain

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Quesadilla
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 5/28/2008 7:00 AM (GMT -7)   
I just spent about 20 minutes on the toilet feeling immense pain, missed class, so I thought I'd write a post about what I was thinking.
 
Has anyone who has been told they are in remission not feel pain?  Like, even though I was said to be in remission because they did blood work and a colonoscopy and said the inflammation was minimal or not even there, I still had lots of pain weekly.  My old GI would just write off the pain and tell me to take Tylenol, but that never helped.  My new GI isn't ignoring my complaints of pain (like I said in another post, he thinks something else may be wrong with crohns or something else wrong entirely) because the pain gets so bad that I can't even focus in class.  And the pain is just really strange.  I've felt the pain since I was at least 12.  It alternates between a bubbly sensation, numbing pains (they hurt, but they also have a tingling feel...kinda like when a leg goes to sleep but more painful), and sharp pains.
 
I've read in other posts that some of you get those pains, but also that some of those people have IBS too.  Is IBS even really treatable?  I was always under the impression that IBS meant "we don't know what's wrong with you, but something is", and so they couldn't really do much.
 
I realize that a lot of this is also effected from diet, etc, etc.  But right now my diet is pretty well.  I only eat chicken or turkey (I don't like the taste of fish).  I stay away from fried foods or foods with lots of fat in them.  I also stay away from caffiene as often as possible (sometimes I really want a coke though...).  I just feel frustrated that the only time I feel good is if I eat just plain white rice or baked potatoes (no skin, of course).  It's such a bland diet for someone who LOVES spicy indian or thai food.

Dx with crohn's since Oct '04.
Have had symptoms since 2000.
Medications: nothing but a daily vitamin
Recently changed GIs, new GI is thinking something else may be wrong.
I see him on June 4th.  Wish me luck.


rootsmith
Veteran Member


Date Joined Jan 2004
Total Posts : 598
   Posted 5/28/2008 7:51 AM (GMT -7)   
Hi, Pain was my primary symptom that my diagnosis is based on. Colonoscopies (3) have always been normal as have several biopsies. Don't know if anything is going on in the small intestine or not. I started on pentasa which relieved the pain but I still have occasional discomfort but not what I would call "pain". I just recently found out what a normal gut feels like when I started on prednisone. I describe it as neutral, something you don't even think about. I was even starting to think about adding fiber to my diet and I don't think prednisone is constipating. It didn't last when I tapered.

Good thing you have a new GI who is interested in finding out what is wrong. My last one suggested a course of steroids, or perhaps a trial of sulfasalazine, but then flip flopped on me and decided I had "IBS". Didn't offer any treatment, just sort of escorted me to the front desk. It took me 4 years to get back to a new gi when I flared after surgery last Jan.
10 years, many tests, 3 gi doctors, Pentasa 1000mg 3x day
diovan, simvastatin, sertraline, lyrica  


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/28/2008 9:29 AM (GMT -7)   
Hi, I have weird pains in my right side and my breasts (not related to TOM). I was told that it's just another symptom of this DD. Someone suggested that it had to do with the immune system and recommended I see a rheumatologist.
Tressa 34 (F)
Not sure of my dx- currently UC, but with skip lesions. Bloodwork is inconclusive for UC & Crohn's. Colonoscopy shows ulceration in terminal ileum and descending colon
Colazal 3X3/day
Lialda upped to 4/day,
Colazal 3X3/day
Phosphatidylcholine 4 (420 mg capsules) once/day


Illy
Regular Member


Date Joined May 2008
Total Posts : 117
   Posted 5/28/2008 11:00 AM (GMT -7)   
what's the phosphatidyl choline for?

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/28/2008 11:06 AM (GMT -7)   
Chocolate also has caffiene in it, Quesadilla.... Do you eat chocolate? *I know I can't handle chocolate at all...*

Try keeping a food diary.... That might help you find out what foods are bothering you... so that when you're desperate, you'll have a little more variety besides the rice and potatoes.
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 5/29/2008 8:33 AM (GMT -7)   
The phosphatydl choline was meant to line my colon (and induce remission), but it didn't work. I'd been on it for about 3 weeks, hoping and hoping to find something to keep me off the pred! Anyway, I'm in a bad flare and it's safe to say- it didn't work. There's been some research on it and I thought I'd give it a try. There were posts on the UC forum if you want to search it.
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Colazal 3X3/day
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days
Canasa BID

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