Need advice/entocort

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Ann Ireland
Veteran Member

Date Joined Apr 2006
Total Posts : 511
   Posted 5/28/2008 2:57 PM (GMT -6)   
As you can see from my profile I am in SERIOUS trouble with health issues.
I have been on entocort steroids by mouth (3mg) daily for near on 10/15 yrs.
My crohns is not too bad at all. One resection in all that time, around the time of diagnoses or soon thereafter.
I dont have much crohns pain. I dont manage the diarrea well but it never was a prob until I became ill again in 05 with all the other stuff I mentioned like sjogrens, lupus , movement disorder and early PD and chronic muscle myopathy.
I feel its time to try get off the entocort. I dont usually have follow up with gastro,, rarely see him, some consultants say I must have my crohns checked regularly but I am not a fan of my gastro.
Any suggestions for getting off the steroid and tryng other meds instead.
I know I have to be careful. If it works why change. But I need to be careful with steroids now because of my other probs.
advise grateful received, or rather suggestions might be a better word or your own experiences etc.
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Pes Cavus, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder, movement disorder, recently dxed as drug induced 2008 Crohns Disease 1996,Hypothyroidism 1998, Raynauds 2006, Sjogrens 2008, Lupus 2008, Chronic Muscle Myopaythy 2008, spine in very, very bad way dx 2008
Irish, not an illness!

100mcg tyroxine, 10mg Cipramil, 3mg Entocort, 30mg Tamazipam, mystatin, sudocream, neurontin 600mg, acidopolis, Vitamin B complex, Coenzyme Q10, Vitamin B12 injection, Nexium 40mg, Fortijuice.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 5/28/2008 6:34 PM (GMT -6)   
Is there a reason you're not on immunosuppressants or a biological treatment like Remicade?

Oh, and do you know where your Crohn's is active? If it's low down, you may be able to treat it with a topical med.

Co-Moderator Crohn's Forum.

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