osteopenia causes pain??

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RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 5/28/2008 9:45 PM (GMT -7)   
Hi everyone...
 
I just got diagnosed with osteopenia and am now taking calcium supplements and vitamin D.  My dr thinks it's the cause of being on prednisone for a long time 2years ago.  I have been having really severe body aches and pains to the point where I can't move, get up or down.  Nobody could figure out what was wrong.  All my tests were great and no signs of arthritis so they decided to do a bone density scan and sure enough it's osteopenia.  Now my question is does anyone experience this kind of pain and if so did it go away after taking supplements regularly?  Any advise or thoughts are truely appreciated.
 
RitaS
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 5/28/2008 10:18 PM (GMT -7)   
my illesostomy has allowed a larger tolerance range for foods without the pain. i have some small areas i can still feel bowel issues but nowhere close to the pain u describe. so i dunno either.. advice hmmm well just calcium is only part of the salt exchange,> sodium is also important,,lower density is normal for aging,, i dunno,, are u dehydrated as in a cramping pain..mabe also see where yur potassium is

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/29/2008 1:59 AM (GMT -7)   
Hmm. That's odd. Did they actually tell you that osteopaenia causes pain?

I have osteopaenia too, and I have those pains too. Did they check for fibromyalgia? And are you on any other meds?

I.
Co-Moderator Crohn's Forum.


Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4392
   Posted 5/29/2008 2:46 AM (GMT -7)   
Osteopenia can cause bone pain.  Is the pain a deep, boring, ache; or is it more like your muscles got a big workout?
You may be low in potassium and/or magnesium. Talk with your doctor about taking a daily multivitamin and maybe some extra magnesium. Good luck,
-Razzle
Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication Allergies & Intolerances, Asthma, Gut issues (dysmotility, non-specific inflammation), UCTD (Lupus?), Osteoporosis, Anemia, T- & B-Cell Lymphopenia, malabsorption/malnutrition, Lyme Disease (Igenex Lab IgM WesternBlot positive/CDC negative), etc.
Meds:  Pulmicort, Injectable Vitamin B12, Herbs, Nutritional Supplements, Homeopathy.


RITAS
Regular Member


Date Joined Feb 2006
Total Posts : 140
   Posted 5/29/2008 10:03 AM (GMT -7)   
My pain is bones and muscles. I don't know if they checked for fybromyalgia. They checked everything and my purpose of going to the dr were my pains so he would've said something. He actaually put me on a one week taper off low dose of prednisone and the first dayI started taking it, I felt 100% normal again. i don't want to get off of it because I don't want the pain to come back. It's soooooo bad!!
Rita
Crohn's Free Since April '06
Total colectomy/ileostomy April '06
Reversal July '06
Bowl resection/ileostomy July '07
Currently trying to learn about the "new me"


Illy
Regular Member


Date Joined May 2008
Total Posts : 117
   Posted 5/29/2008 3:40 PM (GMT -7)   
Bones are not just calcium, they are also magnesium, boron and other things.  If you are perimenopausal or postmenopausal, you might also need hormone replacement to help rebuild your bones.  How much D are you taking and what form?  For that matter, what form of calcium are you taking?  most calcium carbonate ends up in the toilet.  that's just about your bones.  as for the pain, I don't know what else you are taking, but if the pain is inflammation, fish oil might help, but it should be a fairly high amount.

S H
New Member


Date Joined Jun 2008
Total Posts : 1
   Posted 6/5/2008 9:52 AM (GMT -7)   

Hello everyone...I was just diagnosed with osteopenia.  I'm scared - I don't want painful fractures of the spine of anything else. 

Two years ago I fell while walking the dog and the next morning I could barely walk because of the pain in the area between my spine and right hip.  It was unbearable, so I went to a chiropractor - he worked on my upper back.  A year ago I went to a third chiropractor and he took an xray - he found the thinning on all my vertebrae.  I immediately had a bond density scan and they told me I have the bones of someone in her early twenties.  How confusing is that!  Four chiropractors told me my left hip is out of alignment (up and back).

Two weeks ago I went to the fourth chiropractor.  He said I don't have a hip out of alignment, I have a short left leg. He asked me to get an xray to find out how much of a lift I need in the left shoe, and he gave me an exercise to do to loosen a muscle in the hip.  I've been the exercise faithfully for 2 weeks and the pain has not decreased. 

I've been reading this thread and there are some good ideas, such as vit. D, fish oil, and calcium, but I don't see any quantities.  Also, what about exercise?  What about hormone replacement therapy?


Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/5/2008 10:49 AM (GMT -7)   
For me a single daily multivitamin with vitamin D and a calcium supplement are sufficient to combat my osteopenia-- like yours caused by too much prednisone. However, you may have different dietary needs.

With that said, when I taper off of Prednisone I have similar symptoms, although not as severe. It always went away on its own, supplements or not. If it's the same as the pain I had, time will be the cure.

Also just a common sense reminder here. Keep your doctor apprised of any supplements you're taking, or planning on taking, including doses. As for establishing what to take and what doses your doctor might have specific suggestions, or you may be refered to a nutritionist.

I hope that helps
-- Jason
Diagnoses? Crohn's in 1983; Kidney Stones in 1997; Reactive Airway Syndrome in 2002; Major Depression and GAD in 2003; Migraines in 2006; ADHD and IBS in 2007.

Current Meds? 6MP; Adderall; Wellbutrin; Zoloft; Albuterol (emergencies only); Fexofenadine; and Epidrin or Imitrex (depends on migraine severity...etc)

Overall: Things are So-So. In other words "It could be worse. It could be raining."


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/5/2008 4:40 PM (GMT -7)   
Hi S H, and welcome!

I think it's best to let your doctor work out the quantities. What you'll need to take will depend on how ill you are, what meds your taking, how well you're eating, what exercise you can do, etc etc etc.

Me, I'm on a calcium supplement, Vit D capsule and multivitamin daily. The physiotherapists gave me a regiment of weight bearing exercises and I try to do some most days. I'm also on APD infusions several times a year.

Hope thhis helps.

I.
Co-Moderator Crohn's Forum.


Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 6/5/2008 5:11 PM (GMT -7)   
Osteopenia is a precursor to Osteoarthritis (which is what I have). It is more prevaliant in females than males. Prolonged use of glucocorticoid medications such as prednisone can be the cause of it. Taking Vit. D, Calcium and sometimes the use of anti-bone-loss drugs like Fosimax are required.

If you are taking these vitamins and drugs then I would ask your doctor to do a Dexa Scan to see if the density of the bone is thinning more or not. If you are not on any drugs for it and the density is the same or thinning I would ask the doctor for the medication.

I have lived with it for years and during and after a flare it flares up and I end up like now on hydromorphone so that I can get out of bed and walk.

I wish you all the luck and hope that you do find some relieve due to this.

Shoshanna
CD diagnosed 34 years ago
Stem Cell Transplant may be back on
Lap-assisted Ileocolic Resection- February 2008
Ankylosing Spondylitis
Uveitis
Back on Prednisone - I hate it
Methotrexate
Ranitidine HCL 
Prednisone 1% (eye drops)
Maxidex  (eye ointment)
Homatropine 5% (eye drops)
B12, Folic Acid, Vitaman D, Calcium

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