Crohn's forum has more going on then ANY other topic!

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wednesday77
Regular Member


Date Joined Oct 2007
Total Posts : 390
   Posted 5/29/2008 8:30 AM (GMT -7)   
Has anyone noticed that the Crohn's forum has more posts and topics than any other topic on Healing Well?  9352 Topics and 82018 Posts - the only one second to Crohn's has 69475 (and that is Ulcerative Colitis :)  So great this is such a wonderful place with so many people contributing their experience and advice!  Thank you! :)
32 yr old Female
Crohn's Colitis
DX 12/06
 
Currently on Remicade, Oxycodone, Protonix, trying to remember to take Multivitamin and Calcium, need to start taking Probiotics and Omega 3-6-9
 
Presently healing from a flare and 2 week hospital stay, during which abcess was drained by surgeon


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/29/2008 10:01 AM (GMT -7)   
It makes you wonder if we all have verbal diarrhea as well as the other!!!!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis

Laughter is the brush that sweeps the cobwebs from our hearts


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/29/2008 10:29 AM (GMT -7)   
Us crohnies really know how to "shoot the crap" don't we!!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/29/2008 10:32 AM (GMT -7)   
Wow, that is great! I have a feeling it is because no one else will listing to our nasty stories and problems... I feel so free when I come here cause I doubt I can gross any of you out!
 
pb4 and dunny you are both so funny!
 
Karen

 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for Hital hernia and other issues  Might be having surgery soon to correct hernia.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/29/2008 10:38 AM (GMT -7)   
Not sure if that's good or not. Either we are just a big supportive bunch, or we all seem to suffer the most and need the support. :(
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 30 mg, Asacol, Questran, Toprol XL (for high blood pressure).


MamaDove
Regular Member


Date Joined Dec 2006
Total Posts : 181
   Posted 5/29/2008 11:59 AM (GMT -7)   

 

Quite an observation wednesday and I loved all those comments that followed...Verbal diarrhea...what a hoot!!!

The GIs of the US could learn a great deal from all of us EXPERTS!

Fantastic place to come if you have to deal with these illnesses...

Thank you Healingwell, we all appreciate it!!!

Peace to all!~MamaDove


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 5/29/2008 12:13 PM (GMT -7)   
Actually, not A GOOD THING. It means there is more to talk about & worry about with IBD than any of the others...

<sigh>

RedAdmin
Veteran Member


Date Joined Aug 2003
Total Posts : 1017
   Posted 5/29/2008 12:21 PM (GMT -7)   
Actually, I think it is because this is the best format out there. I have tried some of the other sites and I love the way Peter has set this up.
Red (Lee Ann)
 Happy Bunny 
      When life gives you lemons, squirt juice in your enemy's eyes.


Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 5/29/2008 1:30 PM (GMT -7)   
I absolutely LOVE the format of this board, too. Easy to read, well organized too!
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/29/2008 2:21 PM (GMT -7)   
We are a chatty bunch of old crohnies! (and young pups too)

Eight replies to this post in only a couple of hours.

Does anyone know which post got the most views so far?? Mods -- do you keep score? I did a quick scroll through several previous pages and found:
In first place -- "Probiotics" has 37,759 views so far! Woo wooo!
Second place -- "Prochymal - Phase 3" has 24,201 views so far. Way to go!
And my own modest post "Think I'm going to try hookworm" is in third place with 14,003 views.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/29/2008 2:44 PM (GMT -7)   
It's good to have support when you're going through a rough time... especially if you can't get into physical contact with others who go through the same things you're going through...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/29/2008 4:27 PM (GMT -7)   
Exactly. We've discussed this before. It can be harder for IBDers to discuss their concerns in their "normal" peeer groups, and that's one reason why the UC and CD forums are so busy.

It's why UC and CD have so many mods, too.

:-)

I.
Co-Moderator Crohn's Forum.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/29/2008 4:28 PM (GMT -7)   
PS. Thanks for the compliments! I'll make sure Admin sees them.
Co-Moderator Crohn's Forum.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/29/2008 5:41 PM (GMT -7)   
Hi Let's face it misery loves company. And we"re getting both. Gotta love it. lol gail

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 5/29/2008 5:54 PM (GMT -7)   
And here's an example as to WHY it's hard to discuss Crohn's stuff with others in our "normal" peer groups:

I went on a road trip to the mountains with a group of girlfriends I work with. I brought along with me an arsenal of stuff including my own special Charmin toilet paper, Pepto/anti-D stuff and Cottonelle wet wipes. One of the girls with me who know ALL about my Crohn's actually asked me, "What in the WORLD do you need those wet wipes for?! Who uses those except mothers changing babies diapers?!" I stared her down and said, "You're not seriously asking me that, are you?!!"

Uh, yeah.....I'd rather discuss my bowel issues with YOU guys over her any day!!! :)
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, One-A-Day multivitamin, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/29/2008 5:57 PM (GMT -7)   
:-)
Co-Moderator Crohn's Forum.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 5/29/2008 5:59 PM (GMT -7)   
You should have told her the wet wipes were for her verbal diarrhea!  tongue
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/29/2008 7:04 PM (GMT -7)   
We have such good sense of humors too!!!

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 5/29/2008 7:07 PM (GMT -7)   
I do believe, as Ivy says, that Crohn's and Colitis have traditionally been diseases of shame and silence and that is one of the reasons this forum is so busy. It is a place we can feel truly free to disclose exactly what's going on in a way we might not be able to do with anyone else.

But none of us should get so wrapped up in our own woes that we diminish that being borne by others. Maybe one of the reasons that we're busier than the CF board for instance is that many CF patients don't live long enough to get involved with these kinds of chat lines and while they are alive their parents are often too busy doing the daily regimen of physiotherapy etc that goes along with that DD to spend a lot of time on these boards. Just trying to keep it in perspective.
Belleenstein:

30+ years living with Crohn's.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 5/29/2008 8:06 PM (GMT -7)   

As chronic disease sufferes, I doubt any of us are so wrapped up in our own woes that we don't think of others that suffer differently...I don't think a single one of us even looked at it that way for why the CD and UC forums are so much busier.

:)

belleenstein said...
I do believe, as Ivy says, that Crohn's and Colitis have traditionally been diseases of shame and silence and that is one of the reasons this forum is so busy. It is a place we can feel truly free to disclose exactly what's going on in a way we might not be able to do with anyone else.

But none of us should get so wrapped up in our own woes that we diminish that being borne by others. Maybe one of the reasons that we're busier than the CF board for instance is that many CF patients don't live long enough to get involved with these kinds of chat lines and while they are alive their parents are often too busy doing the daily regimen of physiotherapy etc that goes along with that DD to spend a lot of time on these boards. Just trying to keep it in perspective.


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 5/29/2008 9:16 PM (GMT -7)   
Oh there is definitely worse things to have then Crohn's Disease, I try to remind myself that all the time.

Although I will say, there are better things to have then Crohn's too. Like I'd take IBS only any day too. We've all got our crosses to bare, that's for sure. It's nice having people to share with, that know exactly what you're going through though.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 30 mg, Asacol, Questran, Toprol XL (for high blood pressure).


belleenstein
Veteran Member


Date Joined Feb 2007
Total Posts : 1010
   Posted 5/30/2008 3:26 AM (GMT -7)   
PB4 I was responding to some of the posters on this thread, who, in fact, said that we have it worse.
Belleenstein:

30+ years living with Crohn's.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/30/2008 5:35 AM (GMT -7)   
It's probably the prednisone talking, Bellensteen... //^_^\\'...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23416
   Posted 5/30/2008 5:46 AM (GMT -7)   
Hi! I'm from the Uc forum and I noticed this one going on so I thought I would pop in. I think one of the main reasons we have so many here on the CD forum as well as the Uc is that no matter who you talk to that does not have an IBD, they just can NOT possibly understand in all aspects. One reason is because most of us don't look sick. These diseases wax and wane. So you can be feeling good one minute and have plans with friends or family and the next you feel absolutely horrible that you have to back out. That leads to frustration to not only you but your friends and family as well. Some of us have great support systems but even then, they can question your truthfullness when you say you're not feeling good even though you look great! So when we come on here, we can talk about these problems as well as not be judged for having this "closet" disease. Cd and Uc are not easy diseases (or conditions whatever you want to call it) and lets face it - can you sit around the dinner table talking about your bowel habits? :) No, but you can do that here and we won't bat an eye!
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/30/2008 7:19 AM (GMT -7)   
Great Thread and I totally agree we can come here and yak about anything ....

HW has IMHO saved many a persons minds over the years with being able to discuss whatever is laugh or cry about it happening and
I know I was welcomed with open arms when I first found this place

I love the humor with Sniper..... VV....... Mattew........Randy.....C2 and her broom....... all the vets for sure and the new ones too

WE have to have a place to come and know we are okay with anything we want to talk about that is or isnt coming out of our ......ya knows........

VERBAL D I love it .........

Again great thread IMHO

Ivy thanks for letting Peter know.......you are truly great even with all going on......LYN
  DX With Crohns,Pyoderma Gangrenosum,Anxiety/Panic,Fibro & Other DD
 
Moderator @ Anxiety Panic..Alzheimer's..Co mod @ Crohns
                               FIGHT the FIGHT with all YOU HAVE
 
   
 
                   
 

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