Recently Diagnosed

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Odin4
New Member


Date Joined May 2008
Total Posts : 12
   Posted 5/30/2008 8:44 AM (GMT -7)   
Hey everyone, I'm new to this forum but I was diagnosed with Chron's Disease a little over a week ago. I have inflammation from my esophagus to my intestines and all of this is a little overwhelming. I've been taking Prednisone and 6mp for a little while until the doctor decides what medicine i should stick to. He's easing me off the Prednisone cuz i've been on it for too long and my symptoms r coming back. After reading all of your stories I feel a little better about dealing with the disease but I was just wondering how you guys dealt with it at first and if things went smoothly. I've also been reading that it's important to watch what you eat and figure out what foods work for you. What types of things do you guys stay away from? and does anyone have any suggestions for meals?

karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 5/30/2008 9:00 AM (GMT -7)   

Odin4, welcome to the HW Group. I know the diagnosis is tough. I went on to Entocort as well since the Prednisone was not controlling my symptoms and I needed something I could take more long term. As for foods, I am still getting used to what I can and can't eat after over 1 year.

I would also recommend some books that helped me in the beginning.
The First Year: Crohn's Disease & Colitis - by Jill Sklar

Learning Sickness: A Year with Crohn's Disease by James M Lang

I also read what to eat with a bad gut author? Was ok but did give me some ideas….

 

And a free Book 100 questions and answers about   go to http://crohnsonline.com/ to get it

 

Maybe you will find one of these helpful.

 

Good luck!

Karen

 


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)

Diagnosed w/  Fibromyalgia May 2007 also on Soma

Also on Prilosec 2x a day for reflux.

 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 5/30/2008 9:32 AM (GMT -7)   
Ho Odin4 Welcome to HW . I follow a low roughage diet and stay away from nuts,seeds,pocorn, corn, salads, raw veggies,coconut,turnip. I do eat chicken,minced meats,lasagna homemade without the seeds I strain my sauce,veggies cooked really soft,corn flaes ,white bread, white rice,potatoes,fish. These are a few things I do and don't. I follow easy to chew easy to digest and take more time to chew my foods. At first it was hard but I had a history of IBS before the crohn's diagnosis so had bowel problems for many years. I got in aontact with the crohn's and colitis society and they lent me a book and some videos. I got on here at HW and it helped with some of the anxiety and depression. I liked being able to share my time with others that have the same health issues. I also enjoy helping others. It is not a easy disease to live with and not as scarry when a person has others to be with. I hope your inflamation gets in remission soon, and glad you are here with us. lol gail

ERANJO
Regular Member


Date Joined Apr 2008
Total Posts : 60
   Posted 5/30/2008 9:35 AM (GMT -7)   
Hi, I was diagnosed almost 2 years ago, things still aren't going smoothly, but it will eventually.  I started out on Pentasa, but then my GI doc wanted to switch me to Humira, I have been on that since Dec 07. I did good for about 3-4 months, but now its starting up again. I don't have "D" like alot of people do, I used to have constipation, but that has gotten better, I guess with the medication.
Good luck and I hope your feeling better soon.....Kelly
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