Sorry to hear your inflammation is quite bad. I had my surgery almost 10 yrs ago now and my problem over the last year or 2 is scar tissue which is causing a stricture for me. But my GI decided to try me on Entocort just to see would it help, as i am trying to avoid surgery too. He also put me on Imuran at the same time.
Unfortunately Entocort did not help me at all, but i'm pretty sure that's because meds cannot help with narrowing from scar tissue. BUT because your problem is inflammation, i would really recommend that you give it a try. I know it has been a success for many people on this forum with inflammmation. I must say that i personally had ZERO side affects from the Entocort - no puffiness, no weight gain, nothing. The only difference i noticed was very dark yellow urine, but i'm sure that was the Imuran and not the Entocort. Entocort also has minimal long term side affects, which is great to know. So i can see no reason why you shouldn't give it a go. And if it doesn't work for you - at least you'll know. Then you can maybe try something like Remicade/Humira. Best of luck anyway and keep us updated if you decide to try it!
I have taken it for off and on 5 years. I have noticed little or no side effects: mainly a moon face as like with Prednisone. I've got off it several times and found that the last 3 mg capsule was the most difficult to end, something like Prednisone.
Entocort is broadcasted as non-systemic and topical only. I understand that whatever is absorbed and passed on to the system is removed with the first pass through the liver.
I swear by it and my only complaint is about its cost, and it won't go generic for sometime.
My goodness, i am so sorry to hear you are going through so much right now. The last thing you need is the crohns to be flaring. But i guess it's inevitable that when faced with stressful situations - your own health suffers. I think meds maybe just what you need right now to help keep things from getting worse - and hopefully they will help improve your situation. Did you have your ileocecal valve removed when you had your surgery. I had mine removed and i have been taking Questran everyday for the last 9 years, it' been a blessing to me i swear. It will never help with crohns symptoms so it's not gonna make your crohns feel better, BUT - if i didn't take it, i would have bile related diarrhea(sp?) everyday and the awful pain that accompanies it. I ran out of Questran a few times and had to go a day or 2 without it - not pleasant at all! So if you had the valve removed i would really recommend sticking to the Questran for the D and then try the Entocort for the inflammation. My thoughts are with you....Stay strong and best of luck - with everything.