Aches&Pains - Just part of Crohns?

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LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 5/30/2008 2:22 PM (GMT -7)   
Hi Everyone,
 
I have a question regarding body/joint aches & pains. For the last 4/5 years i have been having the most awful pains in my shoulders and neck. They have been getting worse over the last few years but now i'm starting to feel like a granny at 29!
 
They're at their worst in the morning, i wake up in alot of pain - the worst being my neck and sometimes if it's bad enough it gives me a headache too - so i feel like i have a hangover and also like somebody threw me down a flight of stairs and i landed on my neck. It can also wake me up at night if it's really bad. Along with this i seem to have very swollen hands which can ache from time to time(but not as much as my neck/shoulders ache). And i can also have pain in my lower back occasionally. But the worst is the pain in my neck and shoulders EVERY morning without fail. I can never enjoy a lie in because as soon as i wake up i need to get out of bed with the pain. And i'm sitting at my desk everyday at the computer so by the time 11am hits i'm in pain for the rest of the day. I've been to see physiotherapists on neumerous occasions but they never seem to help. My doctor doesn't seem to take it seriously and says it's from sitting at a computer all day and says i need to exercise more and do certain stretches blah blah blah.
 
So my question is - is it just another symptom of crohns or could it be something else?

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 5/30/2008 3:21 PM (GMT -7)   
Lots of people have other conditions along with the Crohn's. Maybe you should see a rheumatologist, as athritis is common with folks with Crohn's. If your doc is not helping then get another doc!
49 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 8 250mg pills per day, Cipro 1 week/month, Metamucil, probiotics


Crohn's 4 ever
Regular Member


Date Joined May 2008
Total Posts : 207
   Posted 5/30/2008 4:47 PM (GMT -7)   
Gumby is right, there is a crohn's arthritis, but you may want to make sure that is all there is to it. Dont hesitate on it. Are you flaring alot??

Crohn'snme
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Date Joined Feb 2007
Total Posts : 734
   Posted 5/30/2008 7:36 PM (GMT -7)   
You hit it on the spot is it Crohn's or something else. If you doctor isn't listening go see someone else. I too flare with joint pains and aches when my crohn's isn't being manager.

sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 5/30/2008 8:34 PM (GMT -7)   
IMO you should schedule an appt. with a Rheumatologist.
I have arthritis secondary to crohns. I also have fibromyalgia and your symptoms sound familiar to that also.
A Rheumatologist will be able to give you answers.
 

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 5/31/2008 6:13 AM (GMT -7)   
Hi LiLi,

You might also want to take a good look at your mattress. CD and CD medications can certainly give you aches and pains -- 6MP is causing a little knee achiness for me. But a bad mattress can just make it all worse!

LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 5/31/2008 6:23 AM (GMT -7)   

Thanks for the replies.

Well i don't know if my crohns is "flaring", i don't think there is too much inflammation (waiting for GI appt in August to get results of tests) But the scar tissue i have is causing a stricture and all sorts of problems. So i guess it's flaring in that sense. But i'm starting to worry about arthritis or whatever else it may be as i know some of these problems come hand in hand with crohns. I guess i should tell my doctor to refer me to a rheumatologist.

Sukay, maybe you could tell me what the main symptoms of fibromyalgia are, as i'm not 100% certain.

Thanks again..

sukay
Veteran Member


Date Joined Feb 2003
Total Posts : 1432
   Posted 5/31/2008 9:04 AM (GMT -7)   

 

Hi Lila, :-)

Well, I was like you, I was very achy in all my joints. I knew I already had osteoporosis due to long term steroid use. I was put on Fossomax and then later Actonel when that came out. I always took my medication for that and finally after seven years my bone density test showed I had no more osteoporosis! So those type of drugs really do work!

Back to my achy joints. I saw a rhuemotologist that ran some tests on me and confirmed the diagnosis of Arthritis. Most drugs that she tried for me always upset my stomach with my CD. So there basically wasn't much she could give me for that.

After a while, I thought my arthritis was getting worse. I couldn't carry my grocery bags anymore and I couldn't even stand having to carry my purse on my shoulder. I had to start carrying a handbag instead of the shoulder strap kind. I could barely lift my arms to wash my hair or use the blow dryer.  I now let my hair air dry. Luckily my hair is curly anyway, but no more straightening it! I couldn't do my normal daily activities anymore because I just hurt all over! I too had lots of problems with my neck, shoulders and back. I became very stiff! Plus I became very sensitive to touch. 

One day during my examination in the Rheumy's office she touched with a finger in the middle of my chest. I wasn't expecting it and I was loud and said, "OW!!!!" and backed off with a stern look on my face! :o) I explained to her that I wasn't expecting that, and nobody had pointed a finger at me and touched me in that area like that, and that I didn't know it was sooo sensitive! She continued to touch other "trigger point" areas like the knees, elbows, neck, back, etc., all which were very tender. She told me I had fibromyalgia.

She again started to try some new medications on me which right now I can't remember any of their names but most only worked for a time and then became useless for me. Finally she suggested that I try physical therapy. I did that for about 8 weeks along with deep tissue ultra sound treatments. Finally I was able to get some type of relief. Later my GI had me try Remicade for my CD since nothing else was working for me. That has helped tremendously for my CD and arthritis and probably my fibromyalgia so thankfully I lucked out because I couldn't tolerate any of the other arthritic medications.

When my stiffness and deep tissue pains start to come back I have found one med that does help for my fibromyalgia and that is Skelexon. It is a deep tissue pain reliever. Plus I know it's time to get more rest and take it easy on my body when I flare up. I have some stretching exercises that I do all the time. Plus I use a bean bag type of thing that I warm in the microwave and put around my neck when I flare up.

Here at healingwell there is a fibromyalgia forum. You may want to check it out and talk with some of the people over there. I'm sure they would have a wealth of information.

Good Luck. I hope you are able to find some relief.

(((Gentle Hugs)))

All my best! 


~sukay~
 Bipolar - August 2004
     Crohns disease - 1995 
Arthritis & Fibromyalgia 
 
Leo Buscaglia


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 5/31/2008 6:16 PM (GMT -7)   
Are you on any medications, It could be a side effect. When i go on pentasa, I have weird feeling in my feet , neck and shoulder pains, swollen hands, and backache.

Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 6/1/2008 4:27 PM (GMT -7)   
Yeah... Prednisone causes joint pain, too... Awful stuff...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


LiLa
Regular Member


Date Joined Nov 2007
Total Posts : 106
   Posted 6/3/2008 5:43 AM (GMT -7)   
Hi guys,

Thank you Sukay for such an informative reply. It's always good to have plenty of info behind you when you're going to see a specialist, i will definitely do some more research on the subject and hopefully will get my doctor to refer me to a Rheumy asap. It's actually quite worrying to think that it could be any of the conditions you mentioned. But it's getting out of hand now. Believe me - i never in my life have ever wanted to get out of bed in the morning but as i said - these days i have to get up as soon as i wake up because the pain is so bad.

Carmen, i am currently on 3mg of Entocort and 100mg of Imuran daily. I only started on these meds a couple of months ago so i'm not sure if it's being caused by the meds. Maybe they have been making the pain worse recently.

Shoshanna
Regular Member


Date Joined Feb 2008
Total Posts : 91
   Posted 6/3/2008 5:23 PM (GMT -7)   
gumby44 said...
Lots of people have other conditions along with the Crohn's. Maybe you should see a rheumatologist, as athritis is common with folks with Crohn's. If your doc is not helping then get another doc!

Arthitis is the most common extraintestinal complication of IBD. It may affect as many as 25% of people with Crohn's.  I have Ankylosing Spondylitis and Osteoarthritis in hips and joints.  Another common complication is Uveitis (Illeitis) that effects your eyes.  Dang, I got that too.  With this you can have a flare up with arthritis or your eyes prior to Crohn's flare or you can have then at the same time.  You will find this over time that they can go either way at any point. 
 
So I would suggest that you ask to see a Rheumatoligist and be evaluated by them not your family doctor or you gastroenteroligist. 
 
Just to let you know the meds you take for Crohn's or Ulceritive Colitis are the same meds used for arthritis.  So maybe you can kill two birds with one stone. 
 
Shoshanna
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