Joint Pain due to Crohn's Question

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Veteran Member

Date Joined May 2005
Total Posts : 511
   Posted 5/31/2008 7:29 PM (GMT -6)   
Ok if I do indeed have Crohn's (waiting results of blood test to tell me for sure), and my joints hurt plus a few
filling with fluid (right knee and left arm elbow), my current Crohn's doctor keeps saying he can't treat my joint
pain, he can only treat my Crohn's.  Ok I understand this, but if the joint issue is due to the Crohn's flaring,
and he treats the Crohn's, the joint issue should just go away too right?  Why would I need to see
a joint doctor as well??   Joint doctor said I have Inflammorty Arthritis.  Ok yeah but I have it because
I'm having a really bad Crohn's flare or flare of some sort.
When this all started with me almost 9 years ago, I had this same thing happen.  I was going to Rhem. and
back then they were just shooting my joints with cortisone.   I finally got to a GI and when I had my scope,
he said I had Crohn's and I was admitted to the hospital for 5 days.  Once I got treatment for the Crohn's,
I felt 100% and joint pain was gone. 
My GI doctor now (not the same one that said I had Crohn's)  is not listening to me when I'm trying to
tell him that my joints hurt because I'm in a flare. He keeps wanting me to go to the Rhem.  If he would
just treat the gut issue, the joint issue I'm almost sure will go away. 
I'm going to meet new GI doctor Friday and hoping he will listen to me.  :-(

Veteran Member

Date Joined Mar 2006
Total Posts : 2672
   Posted 5/31/2008 10:31 PM (GMT -6)   
I'm being referred to a joint specialist right now. A lot of us see both. GI docs just don't want to deal with the "outside of the gut" symptoms. It's not what they specialize in. I just wish we could all have CROHN'S specialists! That would be nice, a doctor that can treat the whole disease!

For me treating the flare helped my joint and other inflammation that I was having. Sometimes it has to be treated separately though, with other medications that only a joint doc will know how to treat. So it's best to have a specialist if you need it for that.
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Currently taking Prednisone: tapered to 30 mg, Asacol, Questran, Toprol XL (for high blood pressure).

Veteran Member

Date Joined Apr 2005
Total Posts : 2346
   Posted 6/1/2008 3:13 PM (GMT -6)   
From my experience, once I got my gut under control, my joint issues disappeared. Like you, my knee at one point was so swollen and painful that I couldn't walk for a couple of days. I started on 60 mg. of pred., and woke up the next morning feeling like a new person. Since that flare, I haven't really had many issues with my joints.

Regular Member

Date Joined Apr 2008
Total Posts : 33
   Posted 6/1/2008 11:16 PM (GMT -6)   
yep me too, when the crohns in under control my joint pain is under control. In the beginning my rhem would say get your gut worked out and you should feel releif when it comes to your joint pain and I would tell my GI so we could treat the Crohns and the GI would say not really, it may not be related - which I am sure for some that is true but the rhem thought so and It was from what I was feeling

Crohn's 4 ever
Regular Member

Date Joined May 2008
Total Posts : 207
   Posted 6/2/2008 7:13 AM (GMT -6)   
I too have a left knee problem, swells, hurts and gets full of fluid, once I lost 10 lbs it went mostly away, but it still gets stiff and yes it is all related to crohns. Not all doctors are created equal, I went to a new GI who came to my city and he went on and on about symptoms of Diabetes, and I thought HELLLOOO , I have crohns, not diabetes. Needless to say I got away from him and was seeing him to get away from another. When I moved I got a good doctor and now on Humira, which I have been on just over 2 months, still having the odd flare. I went to physio and everything and this darn knee was bad and was told it could be osteo arthritis which affects your joints and cartilage. Good luck, keep looking for a doc til someone hears you!
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