When you have a flare

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LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/2/2008 6:50 PM (GMT -7)   
Does your GI doctor want to do a colonoscopy on you?    I'm starting to realize that every time I have a
flare my GI wants to do a scope.  I just wondered if this was normal??   Keep in mind I don't have very
many flares and pretty much can stay drug free except when I do flare up.  

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/2/2008 6:55 PM (GMT -7)   
Hi No mostly talks about my meds. lol gail

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 6/2/2008 6:57 PM (GMT -7)   
PS I/am not on meds right now but in the past that is what happened. By the way how often have you flared? lol gail

Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 6/2/2008 8:55 PM (GMT -7)   
mine usually try meds first then a colonoscopy as a later resort if meds won't solve anything. In the meantime sometimes they scope me on a 2-3 year basis just to check up on things whether I am flaring or not..luckily for me its been a few years right now and I am no hurry to get another.
27 year old, married. Diagnosed with Crohns at 17, suspected of having for at least a year or so before that.  Alot of Crohns in my family history.  No surgeries yet. Imuran treatment with Prednisone tapering at moment.  Possible Fistula.


LBJ
Veteran Member


Date Joined May 2005
Total Posts : 511
   Posted 6/3/2008 4:08 AM (GMT -7)   
gachrons said...
PS I/am not on meds right now but in the past that is what happened. By the way how often have you flared? lol gail
I don't flare very often.  (Knock on wood)   I have little flares that can normally be controlled with Cipro for a few weeks.
But I'm in the middle of a bad one where my joints flared up.  I had to go on Prednisone and I seriously think something
is wrong because I can't really eat.  I'm eating but not much.  I'm actually loosing weight on Prednisone.  So something
is definitely wrong.   I just wondered if scoping every flare was a normal thing for GI's to do. 

Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/3/2008 5:03 PM (GMT -7)   
Since Crohn's manifests itself fairly uniquely within people I'm not sure there's a "normal." When you flare, if your symptoms point to possible stricturing, fistulization or any of another number of conditions best viewed through a scope, then I suspect that's why your doc is doing a scope every time. Since you're not routinely on medications to stay in remission I can see where wanting visual confirmation is desired...

While scoping is not the most pleasant thing in the world, in the long run it's likely safer than constantly getting X-Rayed. The reason is that X-Rays can damage DNA which in turn can cause cancer... So the more you have them, the higher the risk... though it's not a terribly high risk... so don't panic the next time an X-Ray is mentioned.

As for the implied question "Is my doctor a quack who just likes putting things up my kiester?" I can't tell ya. He may or may not be.

The only way to get a good idea is to start getting second opinions. Start within his office. If you hear a consistent and different course of action start asking "Why?" to both your usual GI and the one you're getting the second opinion from. "Why do a scope? What will this tell that bloodwork won't? Why risk a puncture of the colon versus the DNA damage of an X-Ray?" ...etc. Basically keep your questions "on topic" and pertinent to the symptoms you have and how they relate to the doctors suggested diagnostics.

While getting scoped is your doctor getting to know you a truly intimately way, it's not like you're married to her/him. You can, in fact, see other doctors without fessing up to it. And unlike dating you're not even socially obliged to saying why you've gone to see someone else permanently. So if something seems "off" or you just plainly don't want things shoved up your bum and your doc won't listen to you, start seeing a different GI doc.

Another bonus is you won't get those annoying drunken middle of the night calls with your doctor reminiscing about "good old times" and how "lonely" he or she is now. Well OK... I can't say that for fact about you... But I know I don't get them... Well for me that goes beyond just doctors... *sigh*

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 6/3/2008 5:27 PM (GMT -7)   
if I get admitted to the hospital, its almost guaranteed I will get scoped. Ive been scoped I think 4 times.
June 05, July 05, Sept 07, May 08--each time admitted in the hospital-------so Im not really sure but Ive had GI's say they would scope once a year to make sure everything is getting better.

Anyone can give up, it's the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that's true strength

Diagnosed with severe Crohn's colitis in May 2005--spread to ileum and small intestine as of April 2008. Have taken Imuran, Remicade, TPN, Colozal, Entocort, Flagyl, PamineForte, Cipro, Dicyclomine, Prednisone, Asacol, Prevacid, and the list goes on. Currently on Remicade every 8wks, 40mg Pred, Pentasa.


Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/3/2008 8:29 PM (GMT -7)   
I tend to get admitted to the hospital while vomitting for hours (yes I know I shouldn't wait that long... But it's tough to dial 911 when you're vomitting and not every bad tummy pain results in a pukefest...) And for some odd reason the doctors aren't willing to scope a vomitting patient... Go figure... A CT scan though is usually ordered...

All that said and done I've been scoped 4 times... Remarkably low considering how long I've been diagnosed with Crohn's. That probably says more about my former doctors than my current as he's the only one who has been that "intimate" with me.

Post Edited By Moderator (ivy6) : 6/3/2008 10:26:36 PM (GMT-6)


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 6/3/2008 9:14 PM (GMT -7)   
Nope! I was even hospitalized twice and we did other tests (CT, small bowel, etc) but no scope.

My current GI has actually never scoped me; I've been under his care for 2 years. We talk about it everytime but financially I just can't swing it right now so he is being patient. Said that as long as the Humira is working, he'll let me avoid it but if things take a turn down, he wants to see what he's dealing with.

I've been scoped just twice since being dx in 03.
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