Sorry to here about all the problems you are having.Personally I have not had a prob with my liver just the bowel troubles(if you can use the word "just").But as far as i know this desease can affect any digestive organ,and everyone can present in very unique ways.
Hang in there ,this is a great site and someone will be along soon who has had similar experiences.
Hi and Welcome!!! I'm so sorry your going through all that. I have never had problems with the liver either. And like you, when I do have flares and my GI does a scope, my colon is always clear showing no active disease. Its so frustrating!!! I'm going for a scope July 3rd and I'm really going to be mad if it shows no active disease because I am having a flare. My whole body aches and I feel like I'm 90 years old when I'm only 36. Its really rough getting out of bed every morning. :-( My doctor isn't even 100% Crohn's is what I do have so I'm still waiting on some test. But I'm almost positive I do. However, it is frustrating when I have these scopes and they are clean.
I don't believe I have had Crohn's for very long (I am not "officially" diagnosed yet, but I am hoping I will be sometime soon), but I have noticed that my symptoms seem to come in a particular order.
When I first started having problems, I remember getting the mouth sores, next was the big "D", and then my eyes flare up, and the arthritis kicks in. I was on prednisone for a little over a month, about 2 months ago, and it all got better. Then everything came back but worse this time, in the same order. It seems like my extraintestinal symptoms are more prominent and constant than my actual bowel symptoms are.
I sincerely hope you are able to get some answers soon! This disease can be so frustrating! My Internist and my Opthamologist are frustrated because they know something is going on but the first GI I saw would not diagnose Crohn's and her report actually conflicted with the pathologist's report (go figure!).
Take care and keep us posted!
Diagnosed w/ Crohn’s Disease March 2007 On 150mg Azathioprine (generic Imuran), Pentasa, & Entocort (take zofran for nausea now)
Diagnosed w/ Fibromyalgia May 2007 also on Soma
Also on Prilosec 2x a day for reflux.