I'm fairly new to the forum and have found it extremely useful to see how others cope with CD...Although I was diagnosed with CD in 1990, I've never met a fellow cronie before!
In light of some of the stories I've read, I clearly don't have much to complain about. My diagnosis came during surgery which then put me in remission for ten years...In 2001 I started having flare-ups and obstructions. I've tried most drugs (except Remicade) but nothing work as my issue was primarily related to scar tissue in the anastamosis region and so I ended up with a second resection in 2004.
All was well until two months ago (from 02, I've tried SCD but not much else) when I got a flare-up and partial obstruction which showed as being primarily inflammatory in nature in a CT scan. However, my doctor told me that I have 'fibro-stenotic' CD which, as I understand it, means I'm at high risk for developing obtructions / strictures. Although the usual therapies are less likely to work, controlling any inflammation is key to preventing my gut tissue from developing fibrosis which eventually leads to obstructions (and more surgeries).
Given the above, I was wondering if anyone would care to comment on two things:
1- anyone with a similar diagnosis? if so, how have the fared with different therapies, diets and how much remission time did their resections buy?
2 - what's the experience with 6MP as a monotherapy (which my doc wants me on again before trying any anti-TNF; I'm currently on 15mgs of Pred)? what's the longest people have been on it? do the benefits outweigh the slow onset of action and potential lymphoma risks?
In advance, thanks for your help.