New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Quesadilla
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 6/4/2008 9:08 PM (GMT -7)   
I went to my GI today and he explained to me why he believes I was misdiagnosed:
 
When I first got symptoms, my white blood cell count was out the roof, I was put on antibiotics and was cured.  Then it came back after about 3 weeks (I probably didn't get rid of the infection completely and it swelled again)
When I got my first colonoscopy when my symptoms were bad, the inflammation shown was acute (something you would see with bacterial infection), and nowhere near chronic (something like in someone with CD or UC)
The pills I got for CD didn't really help all that much that I could tell, and even after I quit taking them before my old GI told me to, I continued to get better/not flare up again
When I got my second colonscopy when I started having bad symptoms again, it was completely clear of everything (even scarring)
I've taken multiple ASCA (I think that's what he called that test) and I am just barely in the range for being (possibly) positive (like .3 in the range).
And my symptoms of constipation/diarrhea with extreme cramping/pain, alternating
 
So, he's said he thinks I have IBS!  (bleh...) But, out of this I've gotten a new pill to try.  It's an anti-spasmadic...or something.  It's called Levbid.  If you guys have any input on this drug (like just sidenotes to be aware of), all input is appreciated.  I'll also ask the IBS forum.  My GI said to try this for a couple weeks and see if it improves.  I've also got myself a nutritionist lined up through the college for cheap (like 5 bucks an appt!).  I know its going to just be a grad student, but a grad student is better than nothing and they'll be able to give me better information and will have the means to look up new information easily.
 
I'll let you guys know how these pills work out.
Dx with crohn's since Oct '04.
Have had symptoms since 2000.
Medications: nothing but a daily vitamin
Recently changed GIs, new GI is thinking something else may be wrong.
I see him on June 4th.  Wish me luck.


medchrt1
Veteran Member


Date Joined Sep 2005
Total Posts : 517
   Posted 6/4/2008 9:17 PM (GMT -7)   
excellent. i wish my gi would have prescribed meds like that. seemed i had to beg to get lomotil. i figure if you feel better u eat better etc...

Quesadilla
Regular Member


Date Joined Nov 2007
Total Posts : 26
   Posted 6/4/2008 9:29 PM (GMT -7)   
Yea, I pretty much said "I missed two days of class last week because I couldn't get off the toilet...I need something to help the pain, urgency to go, and severe diarrhea."

It sucks having something wrong with your gut when you're trying to be busy living an active life.


Dx with crohn's since Oct '04.
Have had symptoms since 2000.
Medications: nothing but a daily vitamin
Recently changed GIs, new GI is thinking something else may be wrong.
I see him on June 4th.  Wish me luck.

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 4:32 PM (GMT -7)
There are a total of 2,735,546 posts in 301,315 threads.
View Active Threads


Who's Online
This forum has 151417 registered members. Please welcome our newest member, porkdot.
344 Guest(s), 12 Registered Member(s) are currently online.  Details
imagardener2, THE HAPPY TURTLE, hypoHashimoto, middleaged1, IamColumbo, getting by, magoo2, NiceCupOfTea, ChickNorris, U B Tough, Fairwind, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer