I went to my GI today and he explained to me why he believes I was misdiagnosed:
When I first got symptoms, my white blood cell count was out the roof, I was put on antibiotics and was cured. Then it came back after about 3 weeks (I probably didn't get rid of the infection completely and it swelled again)
When I got my first colonoscopy when my symptoms were bad, the inflammation shown was acute (something you would see with bacterial infection), and nowhere near chronic (something like in someone with CD or UC)
The pills I got for CD didn't really help all that much that I could tell, and even after I quit taking them before my old GI told me to, I continued to get better/not flare up again
When I got my second colonscopy when I started having bad symptoms again, it was completely clear of everything (even scarring)
I've taken multiple ASCA (I think that's what he called that test) and I am just barely in the range for being (possibly) positive (like .3 in the range).
And my symptoms of constipation/diarrhea with extreme cramping/pain, alternating
So, he's said he thinks I have IBS! (bleh...) But, out of this I've gotten a new pill to try. It's an anti-spasmadic...or something. It's called Levbid. If you guys have any input on this drug (like just sidenotes to be aware of), all input is appreciated. I'll also ask the IBS forum. My GI said to try this for a couple weeks and see if it improves. I've also got myself a nutritionist lined up through the college for cheap (like 5 bucks an appt!). I know its going to just be a grad student, but a grad student is better than nothing and they'll be able to give me better information and will have the means to look up new information easily.
I'll let you guys know how these pills work out.
Dx with crohn's since Oct '04.
Have had symptoms since 2000.
Medications: nothing but a daily vitamin
Recently changed GIs, new GI is thinking something else may be wrong.
I see him on June 4th. Wish me luck.