Another work failure

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LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 6/4/2008 9:17 PM (GMT -7)   
So...I got a part time job in February but had one to many absences and ended up losing my job confused .  It's the second job I've lost since last fall.  I just haven't felt good enough to be able to show up to work everyday.  I've been the breadwinner since I got married, so this is a big change for me.  My husband doesn't quite make enough to pay the bills.  So I guess I have a couple of questions.  One, does anyone have any good tips for finding a work at home job?  I have a good skillset and a degree, but I haven't been able to find anything legit out there.  Second, should I consider looking into disability?  I hate to depend on that, but I've been sick for 3 years straight now.  Nothing seems to be working.  And I've had an open rv fistula for almost 10 months now that refuses to close.  I don't know how successful people with Crohn's have been in winning disability cases.  I'd rather work, but I just don't know if that is a reasonable goal at this point.  Anyone have any advise?
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 6/4/2008 9:33 PM (GMT -7)   
I will not be rude and ask your age. Only bring this up to point out that the older you are the better chance you can get disability . I think from what you have listed in the other set back category that you have a good chance . You need your doctors on your side too. May be worth a try..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 6/6/2008 12:40 AM (GMT -7)   
Thanks Sniper. I'm pretty young, mid twenties. I haven't asked my doctors what they think yet. I guess that would be a good place to start!
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


Jason D in MN
Regular Member


Date Joined Jun 2008
Total Posts : 54
   Posted 6/6/2008 10:59 AM (GMT -7)   
It never hurts to explore your options. If you're in the USA, the disability rules for IBD tend to be weight centric. (i.e. if you're not grossly underweight, you're almost immediately considered not disabled by IBD...Secondary signs and symptoms are a different matter)

You'll 99% liike be rejected on your first application. This apparently is standard operating procedure for disability claims. The CCFA has a number of tips on how to pursue disability claims. Be warned if you "can fulfill any job in the economy" you won't qualify for disabilty. So have plenty of documentation as to your status and its impact on your ability to hold work. Also getting some sort of representation on appeal helps alot (from the stats I saw you're far more likely to win an appeal with legal represeantation than without...)

The reality of disability benefits -- it appears -- is it's a pain to get. But once you get it, you get the help you need.

Best of luck to you!
-- Jason
Diagnoses? Crohn's in 1983; Kidney Stones in 1997; Reactive Airway Syndrome in 2002; Major Depression and GAD in 2003; Migraines in 2006; ADHD and IBS in 2007.

Current Meds? 6MP; Adderall; Wellbutrin; Zoloft; Albuterol (emergencies only); Fexofenadine; and Epidrin or Imitrex (depends on migraine severity...etc)

Overall: Things are So-So. In other words "It could be worse. It could be raining."


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/6/2008 11:04 AM (GMT -7)   
If you give me more information about your degree and type of work you do I can try to help you think of things to do from home. What was the hardest part about getting to work? Could you find a job that is more accommodating once you recognize what accommodations you need? For example, I miss a lot less work at the law firm I am at because I have constant bathroom access. Working in corrections I did not always have that luxury and thus would miss more work when I coudln't "hold it." Did you find mornings worse than afternoons and maybe a second shift job would be better for you? I am not saying you are not disabled by any means. Just trying to help you find a way to make some money when you need to.

LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 6/8/2008 1:51 PM (GMT -7)   
Thanks for the info Jason, it was very helpful.

Fitzy, my degree is in Psychology, but I had been working as an IT business analyst. basically I managed the financial aspects of IT projects at a hospital. I've been trying to find just some administrative work to do from home (data entry, payroll, ap, ar, things like that) since i have experience there also. yes, mornings are definetly harder from the nausea and if i get up before i'm ready i'll spend the next three hours throwing up. but one of my other issues is this rv fistula i have. I'm leaking all the time. and i have to wear big pads. but they don't always cut it. for example, i'm sitting down at my computer at work, i get up to get a chart and whoosh! it can be like a geyser. I'd have to bring a change of clothes with me to work. and another issue is that i'm allergic to the remicade that i'm on. but it's a weird reaction. to make a long story short, about a week after my infusion i get dizzy like bad vertigo, nauseated, and migrainish headaches where noise and light bothers me. this lasts between 2 days and a week. makes it hard to go into a job. but if i was working part time at home, i think i could work through it. there's just not a lot of legit and non-sales telecommuting jobs out there!
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Asacol, Imuran, Remicade, Humira, Prednisone, Canasa, Fentanyl, Warfarin, TPN


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 6/8/2008 3:17 PM (GMT -7)   
Hey with a degree in psychology-depending on what state you are in you may be qualified to do the type of work I do-as a psychology assistant or associate-depending on wether its a BA or MA. The best parts of my job are that it pays well, is part time, and the schedual is very flexible-I can decide what days to work and wether to do days or evenings. Since I ususally worked only four hours a day my physical condition did not matter as much-now that I feel better I typically work six hours a day.
Sj

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/9/2008 6:27 AM (GMT -7)   
Hey Lavender! IT is a great way to get into working from home. Whenever we have computer issues we call our IT guys who either remotely connect to our system and fix it or they talk us through the steps. On occassion they have to come here but most of the time they do it remotely. Our software guy runs his business from his house.

As far as Psych goes... how about being a research assistant for a professor or anyone else that is trying to be published? Most of the research is done electronically and you could do a lot of it from your own computer at home.

I also have the issue where I get really naseaus if I get up before my body is ready. You have it worse than I do because it rarely actually leads to me vomitting. But here is one way I reduce the naseau. When my alarm goes off I start by just rolling onto my back and laying there with my eyes closed "snoozing." Then I take the covers off and adjust to the room temperature. Then I just sit up in bed and lay there upright for another 3 minutes or so. Then I sit on the edge of the bed, feet on the floor for a few minutes. Then I slowly stand up and start to go about my day. I also take an acid blocker at bed time and in the morning. I find if I get up too quickly the naseua is worse and lasts all morning. If I do get up to quick and feel ill sometimes I will lay back down for twenty minutes or so and then try again. Often this works. But I have to set my alarm about a half hour earlier to do all this (when I do it).

In IT there should be a lot of jobs that run second shift. That way you are not on people's machines when they need to be working on them. Working afternoons is easier on me than mornings.

I have no advice about your fistula except to let your doctor know that the treatment isn't working. Yikes, I just looked up to see what meds you were on. 2007 was a rough year for you!
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